I'm new to the forum and worried as crap

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Viperguy
Regular Member


Date Joined Nov 2010
Total Posts : 259
   Posted 11/3/2010 7:08 PM (GMT -6)   
Hi everybody,
 
I just turned 57.  My PSA score has been rising the last couple of years from 2.2 to 3.2.  Had a DRE by a Urologist and was told the prostate was double normal size and very hard.  After squeezing the prostate, the doctor also gave me a urine test that came back with a positive score of 36 which is bad (UMR3 i think) .  Scheduled for a biopsy 12/2/10. 
 
I feel quite certain their may be some cancer involved.  I'm thinking ahead about the robotic procedure if necessary.  Is it proper on this forum to give the name of my doctor in order to receive some feedback from others?

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 11/3/2010 7:21 PM (GMT -6)   
You can cdertainly give your Drs name and you probably want to give you location to see if anyone knows of some special Drs in your area. I was 57 when i got my DX. Many here have been younger.

Good luck and keep us posted.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 11/3/2010 7:22 PM (GMT -6)   
Welcome Viper and glad you posted. Worry comes with the possibility of cancer so you are not alone with that feeling. Not sure about the rules regarding feedback about Dr's but someone can always email you or vice versa. Lets hope you dont have cancer but if you do then you want to educate yourself. Get a copy of the biopsy so that can play into any choice of treatments. Keep us posted and let us know what city you live in.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010

Robotic surgery 5/09 Atlanta, Ga

Catheter out after 10 days

Gleason upgraded to 3+5, volume less than 10%

2 pads per day, 1 depends but getting better,

started ED tx 7/17, slow go

Post op dx of neuropathy

T2C left lateral and left posterior margins involved

3 months psa.01, 6 month psa.4

Viperguy
Regular Member


Date Joined Nov 2010
Total Posts : 259
   Posted 11/3/2010 8:24 PM (GMT -6)   
 
Thanks guys for the warm welcome. 
 
I've been doing my homework on this disease and believe prostate removal would be my best option should the biopsy prove positive.  I have considered John Hopkins Hospital but it's over 6 hours away making post op visits difficult.
 
My Doctor is James Jensen, Edwards Cancer Center, Huntington WV.   Dr. Jensen is well known in the area of robotic surgery and has performed over 1,000 robotic procedures.   My initial impression during my first appointment was very positive.  Please let me know if you have any feedback on Dr. Jensen be it positive or negative.  
 
I'm probably the biggest worry wart on the forum.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/3/2010 8:55 PM (GMT -6)   
Viper,

Stop, take a deep breath, and slow down. Before you have had a biopsy you are already going to surgery. Just take it one step at a time and before your do ANYTHING, take some time to understand all youcan about prostate cancer, about the possible treatment choices, and what the biopsy report means.

On the first few items of the prostate forum, you will see some items that include a tremendous library of internet resources, books, etc. Just slow down and learn everything you can. You will be able to take charge of your situation, not the doctor. You can decide how you want to treat it, not the doctor.

We have a saying here, that surgeons recommend surgery, and radiation oncologists recommend radiation. You need to decide with the help of multiple doctor's opinions which treatment choices are best for you, based on your biopsy, your pathology, your age, etc. Each treatment choice has plusses and minuses. Doctors tend to gloss over them, and just assume you will deal with it.

You have come to the best forum in the internet. Welcome. Ask anything you want , but don't always expect to get sugar coated answers. We like to tell it like it is, some are not so gentle.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 11/3/2010 9:05 PM (GMT -6)   
Viperguy, I can't help you with the Dr choice however I can assure you that if you require treatment for PCa the anxiety level will go down post surgery, worry is always highest when you get your initial diagnosis. There comes a time when you accept that you've had cancer and carry on with your normal life routines...albeit with a few temporary inconveniences.
 
Good luck with your diagnosis and procedure.
 
r
age 56
PSA 5.5
Biopsy, both lobes involved
Gleason 3/4=7
open RP May 18, 2010
Pathology: 15% involved, lymph nodes and v. d. clear, margins clear
June 3-10 10-12 pads/day
2 months 8 pads/day
Aug 1, 2010 5-6 pads/day
Aug 20, 2010 3-5 pads per day
Aug 16, 3 month PSA: undetectable
ED 95% with viagara
Sept 22, 2 pads a day
Oct 12, PSA 0.03
ED, 100% with viagara, just doeable without

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3891
   Posted 11/3/2010 11:12 PM (GMT -6)   
I second Goodlife's motion..You are getting WAY ahead of yourself. Before you start worrying about treatment, wait until you are diagnosed! In the meantime, pick up a copy of "Guide to surviving prostate cancer" by Dr. Patrick Walsh and become informed as to what you may (or may not) be dealing with...Prostate cancer comes in many different flavors and they are treated differently..Should you need treatment, surgery may or may not be the best choice..
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
age 61: 5.2
age 64: 7.5, DRE "Abnormal"
age 65: 8.5, " normal", biopsy, 12 core, negative...
age 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
age 67 4.5 DRE "normal"
age 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 11/4/2010 4:27 AM (GMT -6)   
Welcome to the forum

Try not to worry too much too soon (And you may not be the biggest worrier here by any means - we are all worriers)

You will be able to have a better understanding after a biopsy, a raised PSA on its own is not a sign of cancer even with a hard prostate. You may just have an infection so get some antibiotics (you should get given antibiotics for the biopsy too, but that is some thing different)

As I've been a worrier and looked into things before I needed to, I won't be too much of a hypocrite by saying don't do it, but try to avoid getting too far ahead of the band.
Cross bridges when you come to them and not before you've left home. Don't go looking for bridges to see what they are like if you might need to cross them one day, don't go climbing up towers to see if you can see what's on the other side of a river you may not be going to cross and don't go looking for rivers.

Alf
Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr 10 CT
28 Apr 10 start RT 66Gy
11 Jun 10 end RT
Tired
BMs weird
14 Sep 10 PSA <0.1
Erections OK

Viperguy
Regular Member


Date Joined Nov 2010
Total Posts : 259
   Posted 11/4/2010 6:17 AM (GMT -6)   
To be perfectly honest, your words of support really help. You've been there and done that. Who can better advise than someone who has weathered the storm. I have a couple of friends that had PC; one had seeds and swears by it; the other went to John Hopkins and had open removal operation. My biggest concern with seeds is 10-15 years post op of PC returning and going to the bone.

I know I'm putting the cart before the horse but with my luck I could be the only name in the hat for a drawing and someone would pull out 7-5/8 (the hat size). I will continue to read up on the disease and "hope for the best, while preparing for the worst". It's just my nature.

Many, many thanks to all.

rhb47
Regular Member


Date Joined Mar 2010
Total Posts : 208
   Posted 11/4/2010 7:38 AM (GMT -6)   
Hi Viper,

My husband was just the opposite-he was diagnosed last March and was convinced he didn't have cancer till he was sitting in the doctor's office getting his biopsy report. I, on the other hand was convinced he did and started reseaching after the elevated psa.
Take the advice above and don't assume you have pc. But, if you do, this is a great place to come to with -we hate getting new members because we know what it means, but you'll find help, compassion and good friends.

Renee
Husband diagnosed 3/10
Age 56, PSA 4.7, free 7.6%

Biopsy 5 of 10 cores positve-all right side-25% to 57%
Gleason 6
DaVinci surgery with Dr. Vip Patel scheduled 8/9/10

Post Op: Gleason 3+4=7
Negative surgical margins and lymph nodes
No seminal vesicle and angiolymphaic invasion
perineural invasion present
Both nerve bundles spared
No ED or incontinence
6 wk. PSA .01

JoeFL
Regular Member


Date Joined Oct 2009
Total Posts : 420
   Posted 11/4/2010 8:35 AM (GMT -6)   
Viper,
 
Here's another vote for you to sloooow doooown! Lots to learn and think about before you sign up for anything. If it turns out that you need treatment, do a lot of reading on this site. All the experiences here will help you make your treatment decision...it sure helped me.
 
Be sure to let us know how the biopsy turns out. Regards,
 
Joe 
Age 67 PSA 4.5 Biopsy 9/4/09 Bostwick Labs 5 of 8 sections (5 of 11 cores) positive-Gleason 3+3=6 Stage T1
BT on 12/11/09 (84 seeds of Palladium 103) Home same day/no catheter. Some burning, frequency, urgency for 6 weeks. No incontinence, mild ED. Normal activity within 3 days. 25 IGRT sessions ending 3/22/10 - some fatigue until 30 days after last treatment. PSA on 5/26 - 0.1 PSA on 9/1 - 0.1

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 11/4/2010 12:08 PM (GMT -6)   
You know, I realize a lot of well-meaning folks tell others to slow down. (Warning: RANT alert!)
 
I think we all need to realize that we all process information differently. Some are type "A"; others are not.
 
When my PSA shot up, I was anxious and I got the same malarkey (don't worry...wait...etc. etc. etc.). For myself, I was much better off doing the research early on. I knew that if I got the bad dx., I might not be thinking so rationally. As it was, when I got the dreaded dx. I had a plan in place (what to do, who to see, etc.). Frankly, that helped me tremendously.
 
The same thing is happening now. I fear a BCR as my PSA numbers are creeping up. I again got the "relax" responses. For some, that may be the best ... for THEM. For me, that would not be good advice.
 
So, I met with a local radiation oncologist and got many procedural/other questions answered and I also established myself as a patient so if I need to move they would do it very quickly. I also saw a medical oncologist to get other questions answered. NOW I can relax because everything is set should I get the next dreaded information (ie: yes, it's definitely back).
 
I wish folks would realize that we are all wired differently and one has to know thyself and what works best.
 
Viper -- you are doing what works best for you.
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. 9/21/10--0.06

Highwayman
Regular Member


Date Joined Sep 2010
Total Posts : 148
   Posted 11/4/2010 1:09 PM (GMT -6)   
Viperguy,
welcome to the forum. I'll echo others here and say that you will know much more after the biopsy. Hard to stay calm after something like what you just found out. Read Walshes book. Good luck with the biopsy; it may prove to be something else.
Any other symptoms such as getting up more often at night? I wish peace of mind for you. Please post back with results.
Mike
Age 48 w/diagnosed
10/06 PSA 3.0
11/06 PSA FREE %13.2
10/07 PSA 3.4
12/07 Biopsy-neg
1/09 PSA 4.6
6/09 psa 5.8
2/10 psa 8.7
7/10 PSA 10.8
8/2010 3rd biopsy GG 3+3=6, one of eight cores -2%
Lap 10/22/10 Dr. Troxel
Path- Neg Margins, Gleason 6, Nerves spared
next appt 11/2

JoeFL
Regular Member


Date Joined Oct 2009
Total Posts : 420
   Posted 11/4/2010 1:21 PM (GMT -6)   
Mel,

Point taken. While I still don't think Viperguy needs to "rush to judgement" just yet, you made some very valid points. If that was a RANT, it was artfully done.

Joe
Age 67 PSA 4.5 Biopsy 9/4/09 Bostwick Labs 5 of 8 sections (5 of 11 cores) positive-Gleason 3+3=6 Stage T1
BT on 12/11/09 (84 seeds of Palladium 103) Home same day/no catheter. Some burning, frequency, urgency for 6 weeks. No incontinence, mild ED. Normal activity within 3 days. 25 IGRT sessions ending 3/22/10 - some fatigue until 30 days after last treatment. PSA on 5/26 - 0.1 PSA on 9/1 - 0.1

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 11/4/2010 1:22 PM (GMT -6)   
Learn precisely what level of disease (best you can of course) you are dealing with (get a copy of the pathology results) and then look at all your options, get some opinions and resolve some of the controversies that you need to put your own decisions upon, as only you live with the consequences and treatments. I am assuming that you could very likely be found with PCa.
 
Internet library of info and patient histories at:
 www.yananow.net  also www.prostate-help.org   www.ustoo.org   www.phoneix5.org

Less sugar coated: there are no guarantees, PCa is crazy and variable, atleast 24 variants are now found, all those also have 3 different ploidy analysis of their DNA structures and docs have no way to precisely know if PCa is fully contained or not...it is a best guess scenario so look at nomograms and such things, too.
Be thankful you didn't have my start with PCa, best to you in whatever you decide.
 
I mention all this so you have a heads up, some docs supply only what people want to hear and not the Full Monte of it all.  Keep reading stuff as you are questioning my statements, question everything is in your best interests and always with this.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Post Edited (zufus) : 11/4/2010 12:27:55 PM (GMT-6)


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 11/4/2010 2:34 PM (GMT -6)   
compiler said...
You know, I realize a lot of well-meaning folks tell others to slow down. (Warning: RANT alert!)
 
Viperguy, first of all, "welcome."  Having been down that road, I'm sorry that you are now experiencing the anxiety that goes with looking at a biopsy in your near future.  Hang in there.
 
Mel makes a good point that different people process things differently.  Newcomers are often implored to "slow down", but that suggestion is really targetted more specifically at not rushing into a treatment
 
I think Mel's excellent point is that some guys dive feet first into research of what PC is, what PSA is, etc., etc...and that research is highly beneficial because it is with the newly acquired knowledge that one can make an educated decision on possible treatment choices.  Prostate cancer is frequently very different from most other cancers in that it is very typically slow growing.  Most people don't intuitively know this (about slow growth) before taking time to learn more about it...the American public has been conditioned to the "get it out now" response to cancer, and the is not always/not necessarily the best choice with prostate cancer. 
 
You are not even sure that you have prostate cancer yet, although you have some indicators that a biopsy could be worthwhile.
 
While the internet can be a good source of information, I often recommend that newcomers buy one of the two "bibles" of prostate cancer to get a legitimate grounding in the facts:
  • Guide to Surviving Prostate Cancer, by Dr Patrick Walsh, and/or
  • A Primer on Prostate Cancer: The Empowered Patient's Guide, by Dr Stephen Strum

Both authors are widely-regarded experts in Prostate Cancer.  Both books can be ordered via online booksellers.  There are other good books if you wanted to go further, but these two are both foundational...I wouldn't recommend reading others until you've read these first.

best wishes...


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/4/2010 2:54 PM (GMT -6)   
mel, the general remark about "slowing" down to someone new with PC on their mind, even before a dx, is still a good idea. we have all seen too many panic with a dx and rush into a primary treatment without thinking it through or even honestly examining all the options that might be best suited in their particular cases, and with some, it could certainly include AS, if the criteria and the mind set is right for it.

reading both books that casey suggested, and many have along the way too, is definitely a good way to get a basic education on the subject.

viper, until you have that biopsy, not much to speculate upon. unfortunately, unless one is having a saturation type biopsy done with several dozen cores, a single 6-12 core biopsy may or may not find evidence of cancer on the first pass. Many times it does, but not always. It took 3 with me, and the intuiation of a very experienced urologist to hit "pay dirt" with my dx, not that I ever wanted it to be positive.

so this would be a good time to get a good primer on the subject, so that if, you get a positive dx, you will be more familiar with what lies ahead.

hoping you don't have to join the club, we are thrilled when someone membership gets turned down due to lack of cancer.

good luck

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 11/4/2010 5:50 PM (GMT -6)   
Viperguy,
 
I've alreday relpied to this thread but thought I should add something that was inportant to me at the time. When My urologist first told me I had cancer he also gave me all the options, surgery, radiation, seeds. I asked him for his recommendation and considering my age, Gleeson score and biospy said he would choose the proststectomy. I also leaned in that direction but he would not allow me to decide on the spot. He gave me a book to read with all the options and referred me to a radiation specialist.
 
He refused to allow me to make a decision until I has discussed radiation with the oncologist and even then stressed that it was my decision which treatment I chose. The oncologist looked at my data and recommended surgery. (this was 2 weeks after my initial diagnosis).
 
I did chose surgery which was performed 10 days later. Both my urologist and oncologist have me on follow-ups so I feel well looked after
 
Take your time when you decide, get another opinion to help you make the decision. By the way, I live in Canada and I coninually impressed with our health system.
 
r
 
age 56
PSA 5.5
Biopsy, both lobes involved
Gleason 3/4=7
open RP May 18, 2010
Pathology: 15% involved, lymph nodes and v. d. clear, margins clear
June 3-10 10-12 pads/day
2 months 8 pads/day
Aug 1, 2010 5-6 pads/day
Aug 20, 2010 3-5 pads per day
Aug 16, 3 month PSA: undetectable
ED 95% with viagara
Sept 22, 2 pads a day
Oct 12, PSA 0.03
ED, 100% with viagara, just doeable without

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/4/2010 7:21 PM (GMT -6)   
I don't know how many guys on here have said they wish they had known more before they decided to have treatment.

I also don't know how many men and women we have heard on here who have been in a state of panic, complaining about not being able to sleep, or function becasue of worry.

Much of this comes, (myself included) by not stopping, and slowing down, and approaching the issue of PC logically. Once they are able to read and discover a lot of the facts about PC, and realizing that it ios not an immediate death sentence and that most men will die of other causes, theor quality of life will improve, prior to treatment and after treatment.

Telling someone to slow down, no matter what their personality type whether it be A or Z is still good advice in my opinion. It is probably true that type "A" folks will disregard it and bust on ahead, but it still doesn't invalidate the advice.

No one has never said to not read and investigate until the cows come home, in fact, quite the opposite. We also will respond to as many questions as a guy can post on here, all in the spirit of alleviating panic and distress. But again i would say, slow down, get the facts, make your decsions, and then deal with the events . Panic and hurry has never helped anyone.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

qualityoverquantity
Regular Member


Date Joined Nov 2010
Total Posts : 21
   Posted 11/5/2010 6:29 AM (GMT -6)   
The two books recommended by Casey59 are very good, I'd highly recommend you also read "Invasion of the Prostate Snatchers" by Mark Scholz and Ralph Blum.

teallen
Regular Member


Date Joined Sep 2010
Total Posts : 38
   Posted 11/5/2010 9:11 AM (GMT -6)   
I agree with most things said on here,but don't get so overwhelmed that you can not make a very informed decision. I found that talking with friends and family about the different options and how they will effect me helped alot. Sorry for your news,it's not the end of the world and your not alone. Hang in there
Age 42 PSA 7.4 4+4 G8
Davinci Sept.8 2010
No incontinence issues but ED issues
1st post surgery PSA <.008

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7082
   Posted 11/5/2010 2:31 PM (GMT -6)   
Comparing advice, I think when we say "slow down", it would be fair to replace that with"do not rush around in panic mode - but do not sit idle - proceed deliberately with calm and determination". That should work for all personality types.
 
If you are fortunate enough to be proven to not have PCa, you will at least walk away better educated to talk to others about it, and have a basis should your path come this way again in the future.
 
I suspect that most men, after all the Komen publicity, know more about breast cancer than PCa.

fulltlt
Regular Member


Date Joined Nov 2010
Total Posts : 264
   Posted 11/5/2010 3:23 PM (GMT -6)   
Viperguy said...
Hi everybody,


I just turned 57. My PSA score has been rising the last couple of years from 2.2 to 3.2. Had a DRE by a Urologist and was told the prostate was double normal size and very hard. After squeezing the prostate, the doctor also gave me a urine test that came back with a positive score of 36 which is bad (UMR3 i think) . Scheduled for a biopsy 12/2/10.



I feel quite certain their may be some cancer involved. I'm thinking ahead about the robotic procedure if necessary. Is it proper on this forum to give the name of my doctor in order to receive some feedback from others?


I don't know what area of the country you are in but if you are anywhere near the Chicago area I would recommend checking out the Chicago Prostate Center in Westmont, IL. Also consider having a stereotactic perineal prostate biopsy instead of the standard transrectal biopsy.

I was diagnosed a few days after my 57th birthday this year. I know the feeling.

Post Edited (fulltlt) : 11/5/2010 2:26:30 PM (GMT-6)


sm416
Regular Member


Date Joined Sep 2010
Total Posts : 27
   Posted 11/11/2010 6:36 PM (GMT -6)   
Viperguy,
 
Education is important, this is scary.    No matter how hard we try to prepare...it never seems to be enough. 
 
The one thing that I can truely hope for you is that your situation is not cancer, nor will it ever be cancer.
 
Steve  wink
Age: 58 Married 28 Years.
Initial PSA 2.9 elevated to 5.7 before Robotic RP surgery
33% of 1 of 12 biopsy points (left side near bladder)
August 9th Prostectomy with 3D Robotic Surgery
August 16 Staples and cath removed.
October 26 cystoscopy to remove blockage

unhappycramper
Regular Member


Date Joined Nov 2005
Total Posts : 113
   Posted 11/12/2010 3:40 AM (GMT -6)   
My story...
I will only sound like a broken record here,but listen to these seasoned veterans of prostate cancer. You may or may not have it. For example for two years I was told by a few doctors I had IBS, hence the 'unhappycramper' username. Then some smart doc ordered a CT and found a rare one in 100,000 carcinoid NET tumor cancer,which I have had two surgeries for, one general Hemi-colectomy and another using a daVinci Robot to excise twin carcinoid tumors between my rectum and seminal vesicles. These docs are only human and they also can and will make mistakes in diagnosing an illness. They made a grave mistake while I was suffering all along with a partial bowel obstruction caused by tumors in my ascending colon, and nothing to do with IBS at all.

I had my Radical prostatectomy on January 09, 2009. I am still incontinent and big time erectile dysfunction. To be honest, I had read Pre op that if the surgery was a nerve-sparing one,then chances were I would get the blood flowing once again and can achieve a normal erection...don't believe everything you read. Everyone is different. I had my catheter for 7 weeks after surgery and also had a JP (Jackson-Pratt) drain in my left side, because the bladder was leaking, due to the way he sutured the ureter back to the bladder. Now according to a recent CT, there is a fluid density lesion causing mass effect on my bladder and may have to go to radiation intervention to have a radiologist extract this fluid. Instead of staying over one night in the hospital and going home with a catheter for a week, I had that 'ball and chain' for 7 weeks and stayed in the hospital for 12 days!!! In time, the sutures had healed. He put me on daily kegel exercises and Viagra 100mg every day for six months, ($$$) and two years later, still, a whole lotta nada! Even a battery operated Vacuum Pump doesn't seem to work at all. And the thought of injecting my penis with a needle is unsettling too.
I am urinating about 10 -13 times daily, with dribbles at anytime. When I sit down to pee, I have to sometimes wait for 15 minutes to stop dribbling..unbelievable. This mass lesion has been slowly increasing in size over this past year.

You have to be your own advocate and research this thoroughly. While I was told I had IBS, I joined a few forums and got some friendly advice like I get here. I wish you the best!

Post Edited (unhappycramper) : 11/12/2010 1:45:46 AM (GMT-7)

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