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Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1162
   Posted 11/4/2010 7:39 PM (GMT -6)   
Had my open prostatectomy on Tuesday and they sent me home today. Doc said it was a "textbook surgery." I'm hoping that doesn't mean he was reading the book as he went along. tongue He said he saw no reason to believe there was any cancer beyond the prostate, but we'll see how the pathology report looks. He also said he was able to spare the nerve bundles completely, and that the bladder neck was in good shape.

The epidural worked really well while they had it going, and I was feeling amazingly good Tuesday and Wednesday (I got to see the prostate in a jar before they closed). Late yesterday they removed the epidural catheter and reality hit me, but the oral pain meds seem to handle the pain reasonably well. I'm still taking Endocet.

They gave me an elastic band around my upper thigh to hold the catheter tube in place, but it tends to slip down when I stand or roll over in bed. Seems like it's pulling the tube out slightly, which makes me very nervous. I'm wondering how bad it is for that tube to pull out slightly -- maybe a half inch to an inch. Maybe I should just use old fashioned, pull your hair out tape.

It feels so good to be home. My woman has really gone above and beyond, and I can't thank her enough. We took a short walk down to the park this afternoon, followed by a long nap. Things are definitely coming along, though, and I should be in pretty good shape in a few days.

I'm wondering how optimist is doing. His surgery was yesterday, I believe. I hope I'm making sense through the pain meds (they play hell with my typing), but I'll check in here later. All the information and support I've found here has been terrific, and I thank you all.
Age 55

PSA:
8/09 2.69
7/10 4.00
8/10 4.11

Biopsy 8/10
Three of 14 cores positive: 10%, 60% & 80%
Stage T1C
Gleason 6

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/4/2010 7:55 PM (GMT -6)   
Fantastic, glad to hear you did so well.

Don't worry about the tube too much. It has a balloon on the end with water in it. You really have to yank it to do any harm. Pain will be your guide.

I didn't understand that they did the epideural with a drip. That is pretty cool. Don't be afraid to take the pain meds. That is what they are for.

Look forward to hearing your pathology.

Welcome to the other side.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/4/2010 8:13 PM (GMT -6)   
glad to hear you safely on the other side, good luck in your recovery
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 11/4/2010 8:33 PM (GMT -6)   
Hi Jazzman and welcome to the other site. Glad to hear that all went well.
Now just take it easy for a few weeks and give your body a chance to heal.
All the best to you.
 
Mag

Born 1936
PSA 7.9, Gleason Score 3+4=7, 2 of 8 positive
open RP Nov 06, T3a, Gleasons 3+4=7, Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; at SRT Start=0.1, Salvage RT completed (33 days-66Gy) 19 Dec 08
PSA: in Jan 09 =.05, all tests to date (Jul 10) <.04

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 11/4/2010 9:16 PM (GMT -6)   
Congatulations, Jazzman.  Surgery under an epidural would be a different experience, for sure, as would seeing the prostate in a jar.  I had a clip on my inner thigh that held the catheter tube.  The glue from that was with me for a couple of weeks afterwards.
 
Here's wishing you a smooth and speedy recovery.  You're already well on your way.  Bill

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 11/4/2010 9:39 PM (GMT -6)   
Welcome to the other side Jazzman. We have been waiting for this day to come. I must say the epidurl is very cool. I think I would have liked that. Now gust get yourself healed. Get to walking when you can. I found that brought my stringth back.

We will be waiting for the path report.

Cajun jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7082
   Posted 11/4/2010 10:32 PM (GMT -6)   
Great to hear from you - glad all is well. Keep us posted!

dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 150
   Posted 11/4/2010 10:37 PM (GMT -6)   
Glad you had such an uneventful surgery! !
It sounds like you are doing great at home too with the walk in the park. Keep up the good work.

best of luck

David
Age 55
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....November 17th....
FINISHED 01/14/09
05/14/09
1st PSA after SRT <0.04
12/03/09
2nd PSA after SRT <0.04
06/03/10
3rd PSA after SRT <0.04

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3889
   Posted 11/4/2010 11:14 PM (GMT -6)   
Hey Jonathan, sounds like you did great! No general anesthesia, you don't see that very often.. Yeah, that bag can be a real pain...I attached a stout alligator clip to a short strap attached to the bag. Then I clipped that to my Tee-shirt hem. The bag itself was down my pant leg at my knee. This eliminates the bag from slipping down your leg..I also had another elastic Velcro strap around my upper thigh which had a sleeve to securely hold the drain tube and prevent any pull on the penis. The strap also limited movement of the catheter tube preventing irritation from constant movement...Medical supply stores, not drug stores, have all this stuff...But it IS a happy day when they remove it!!

Walk all you can, it REALLY helps speed up your recovery....

dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 147
   Posted 11/5/2010 4:07 AM (GMT -6)   
Jazzman1, just a quick word about your reference to your lady. I cannot thank my wife enough for alll the help and support throughout my diagnosis, surgery, and recovery. Whilst we see mentions in the forums about our better halves I really think they should be appreciated more than we actually see.
 
All the best from England.

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 11/5/2010 6:01 AM (GMT -6)   
Glad you're home

Epidural seems amazing - Do you mean you were conscious during surgery? how long did surgery last? What did you do?

Shave your thigh then use the tape to hold the catheter in place. (use beard trimmer setting or a lady's shaver)

My elastic band for the bag also had velcro to adjust the tightness and an anti-slip rubber layer on the inside, never caused any problems by slipping down.

All the best from Holland
Alf
Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr 10 CT
28 Apr 10 start RT 66Gy
11 Jun 10 end RT
Tired
BMs weird
14 Sep 10 PSA <0.1
Erections OK

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 11/5/2010 6:06 AM (GMT -6)   
Welcome to the other side. Like you I cannot thank my wife enough. Not sure what I'd have done without her.

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1162
   Posted 11/5/2010 10:10 AM (GMT -6)   
Wow, thanks for all the encouragement and support!

The epidural was pretty cool, but not what I thought it would be. Despite the surgeon telling me I'd be awake for the surgery, I either slept through most of it, or I just don't remember it. They said they'd give me something to "relax" me, but I was a little more than relaxed. I think somebody woke me to show me the prostate, but I wasn't really "around" for much else. What I didn't have was the heavy general anesthesia and respirator, so snapping out of it was pretty quick and easy. Felt pretty comfortable and clear-headed immediately afterward.

Having the epidural in after surgery is really a great thing for pain control. People were amazed how good I seemed, and I felt really good. I felt better the day after than I do today, now that I'm home and on narcotics. All in all it wasn't too bad though.

A few of you mentioned the women who cared for you at home, and you just can't give them enough credit. I'm so grateful to have her here doting on me right now. The women who help their men through this ordeal are nothing short of amazing.

Thanks for all the advice and reassurance regarding the catheter. They scare the hell out of you by telling you it MUST BE PROTECTED, but they don't really tell you what that means. I haven't had any major discomfort there, and I think I've got the Coach tape rigged up so it's not moving around now, so I guess I'm doing OK there.

I had my first shower today and I feel like a new man. I also did some walking yesterday and I'll try to get out for a short walk again today. I understand that it really does help with recovery. I guess from here on in it's just a matter of riding it out.

Jonathan
Age 55

PSA:
8/09 2.69
7/10 4.00
8/10 4.11

Biopsy 8/10
Three of 14 cores positive: 10%, 60% & 80%
Stage T1C; Gleason 6

open radical prostatectomy at Cleveland Clinic 11/2/10

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 11/5/2010 10:19 AM (GMT -6)   
Just be careful not to raise the catheter bag above bladder level, and don't let the tubing get kinked. Both lead to uncomfortable sensations, and you don't want the urine to feed back into the bladder. I even noticed some odd sensations when working with the tubing to change and clean the catheter bag, or to convert from the large bag at night to the small bag during daytime. They must have given you one of the "twilight" drugs that are also used during colonoscopies, for instance, in addition to the epidural. Three or four hours would be a very long time to lie there awake while they operated. Was your body in a head 45 degree downward position?
Age 65
Dx in June 2010.
PSA gradually rising for 3 years to 6.2
Biopsy confirmed cancer in 6 of 12 cores, all on left side
Gleason 7 (3 + 4)
Bone scan, CT scan, rib x-rays all negative.
DaVinci surgery late August at Advocate Condell, Libertyville IL
Negative margins; negative seminal vesicles
Smooth recovery; 18 holes of golf at 4 weeks.
Continence OK after 7 weeks. ED continues

TinFoilHat
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 11/5/2010 12:31 PM (GMT -6)   
The day I was discharged after open RP (9/23), the kindly orderly taped my catheter tubing directly to my upper thigh. I was shaved from belly to groin, so the tape went right over the hair on my thigh. On catheter removal day, tearing the tape off was BY FAR the most pain I had throughout the entire RP ordeal.

Hopefully you’ll have more good news to share.
Jeff

Age: 49 (09/61)

PSAs: 12/08 - 1.8, 12/09 - 2.5, 6/10 - 3.9, 8/10 - 5.7

Biopsy 8/10: 14 samples, 5 positive, Gleason: 3 + 3

open RP 9/23/2010

Post Op Path: Organ contained, Gleason 3+3, nerve bundles spared, negative margin.

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1162
   Posted 11/5/2010 12:35 PM (GMT -6)   
No, I was laying flat on my back. I think they just do the 45 degree thing for laporoscopic surgery. The surgery only took about 90 minutes, or so I'm told. I think it may be slower with the robot, but I'm not sure about that. They said they weren't giving me twilight drugs, but something to relax me. But then you hear contradictory things from different people sometimes.

I hear what you're saying about weird sensations when the bag gets moved. I've been keeping it in a bucket on the floor, which works pretty well. I agree about not raising the bag too high; I don't even like raising it above the knee.
Age 55

PSA:
8/09 2.69
7/10 4.00
8/10 4.11

Biopsy 8/10
Three of 14 cores positive: 10%, 60% & 80%
Stage T1C; Gleason 6

open radical prostatectomy at Cleveland Clinic 11/2/10

stevmac1
Regular Member


Date Joined May 2010
Total Posts : 129
   Posted 11/5/2010 1:00 PM (GMT -6)   
Jazz,
Welcome to the other side. I'm sure you'll do fine. Rest up while you can & enjoy being waited on.
steve
50 Yrs. old. DX Feb, 2010 w/6.6 PSA.
Biopsy 04-24-10, Gleason 3+3=6
4 of 5 cores left side inv. 4 of 6 rt side
RRP 06-07-10....
16 days post-op, catheter out.
Gleason upgraded to 3+4
No involvement of lymph nodes & seminal vesicle.
Perineural invasion present :(
Totally continent @ 8 weeks post-op. (!!!)
1st post-op PSA @ 12 weeks - Less than 0.05

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 818
   Posted 11/5/2010 1:04 PM (GMT -6)   
Jonathan,

You sound like you're doing great! How did it feel, being shown your prostate in a jar? I wasn't so lucky, although I did see kidney stones once. Bizarre.

DJ
Diagnosis at 53. PSA 2007 about 2; 2008 4.3
Biopsy Sept 2008: 6 of 12 cores pos; Gleason 4+3 = 7
CT & Bone scan neg
Da Vinci at City of Hope Dec 8, 2008
Rad prostatectomy & lymph node dissection
Cath out on 7th day, in on 8th day, out again 14th day after neg cystogram
Path: pT2c; lymph nodes neg; margins involv; 41 grams,
PSA 1/08, 4/09,7/09, 10/09, 11/09,2/10 <0.01, 10/10 0.1

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1162
   Posted 11/5/2010 5:18 PM (GMT -6)   
For all I could tell, it could have been a piece of bloody gauze in a jar.

I said "oh," and went back to sleep.
Age 55

PSA:
8/09 2.69
7/10 4.00
8/10 4.11

Biopsy 8/10
Three of 14 cores positive: 10%, 60% & 80%
Stage T1C; Gleason 6

open radical prostatectomy at Cleveland Clinic 11/2/10

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 709
   Posted 11/5/2010 5:41 PM (GMT -6)   
Jazzman,
 
Like Rick Bragg once wrote, "will somebody please say Amen." I can imagine how you feel, surgery over, first walk, right mindset.  Wishing you well and a speedy, uneventful recovery.
 
Mr. Bill
 

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1406
   Posted 11/6/2010 2:05 AM (GMT -6)   

Welcome to the other side, Jonathan!  So, you did go with the epidural?  I am happy to hear it worked out so well.  My husband chose to have the night bag the entire 13 days he had the catheter, and the bucket was so helpful.

As one of those loving wives, I must share what was a scary part once the surgery was done.  Ron wanted to take a shower the day he came home from the hospital.  I was there to help him wash up, and I was so afraid he was going to fall as I held him up.  He was still a bit groggy.  Luckily, all turned out well.

Jonathan, you will have such a sense of freedom the day the catheter is taken out.  So, you have that to look forward to.  I wish you you a speedy recovery and an extra hug for your wife.

Best wishes,

Aimzee  


Husband Ron, age 63
4/1/10 PSA 5.5 Prostate size = 50 cc.
Biopsy on 4/20/10 12 samples... Adenocarcinoma: 3 positive on right side, one core left base (5% ` 0.5 mm) - two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
Bone Scan/CT Negative (2 lesions on liver)
8/18/10 - Da Vinci Prostatectomy
Post Op: Gleason 7 (3+4)
Negative surgical margins and lymph nodes
Both nerve bundles spared
Catheter - 13 days
ED / Day time incontinence.
Post Surgery PSA 8 weeks - .01

Pocketman
Regular Member


Date Joined Aug 2010
Total Posts : 121
   Posted 11/6/2010 8:27 AM (GMT -6)   
Hello Jonathan,

Glad to hear you are doing well. You'll fell better with each new day. I had my prostatectomy October 29 and can relate to your situation. I too found the extra plumbing challenging. Like many have said, attach the tubing to a leg and don't make any sudden moves. You'll be fine. Mine was removed yesterday - oh happy day!

Thank you for mentioning the women's contributions. My wife has been terrific throughout this entire "adventure."

I will post my experience in another thread.
Age 61, Diagnosed July 2010
PSA 04/09 - 2.5; 05/10 - 3.7; 07/10 - 4.7
DRE and Ultrasound - Negative
Size at biopsy - 32 grams
T1C, 3+3=6, 1 core of 12 60% positive
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