Back from the hospital too

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rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 11/5/2010 7:10 PM (GMT -6)   
First, congrats Jazzman. Sound like you did well.
I was under the knife until 1:15 PM yesterday. Got home today at 2:30 PM today. It was a LRP, no robot, at Sloan Kettering. The surgery lasted 5 hours. He was able to save both nerve bundles. I feel lucky that I didn't have many of the problems I have read about here. No shoulder pain from the gas, no swollen or red testicles or any complications so far. The catheda is painful though and I am still very bloated with gas. I'm taking vicoden. I'm doing a lot of walking. It helps a little. My wife was great during this whole episode. I couldn't have gotten through it without her. The staff at Sloan were terrific. It was like a hotel. You even ordered your food from room service.The car ride home was tough. I felt every bump.
Many of the tips I read on this site have been very helpful. Shaving my thighs, bringing oversize underwear and sweat pants, getting an oval bucket for the bag. Plus no surprises having read so many posts. Thanks to all of you for sharing.
When I got home I packed up an order for my business. My wife dropped it off to UPS. May be a world record for returning to work 25 hours after surgery.

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1160
   Posted 11/5/2010 7:45 PM (GMT -6)   
Congrats back atcha, Rick. Sounds like you're doing really well.

All the information here was a huge help to me too; I've got my oval bucket at my side and my Coach tape wrapped around my leg. Didn't know about that bumpy ride home, though. It was kinda like doing the Northwest passage in a covered wagon.

I got to order my meals too, but apparently they have better food service at Sloan. I got a rubber omelet at the Clinic.

No problem here with the catheter, except for keeping it from moving around. Cleaning the tip a couple times a day with a warm moist Q Tip helps a lot. I guess you can use Vaseline too, but I haven't needed it so far.

Good luck with your continued recovery. I'm not out to set any records getting back to work, but I may catch up on my guitar playing in the next few weeks.
Age 55

PSA:
8/09 2.69
7/10 4.00
8/10 4.11

Biopsy 8/10
Three of 14 cores positive: 10%, 60% & 80%
Stage T1C; Gleason 6

open radical prostatectomy at Cleveland Clinic 11/2/10

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/5/2010 8:14 PM (GMT -6)   
rick, congratulations on getting to the other side, the recovery side, hope it continues well for you
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 11/5/2010 8:27 PM (GMT -6)   
Rick,
Sounds like it went quite well so welcome home. Please take it easy and not be in too big of a rush to return to work. A friend of mine had a vasectomy about 30 years ago and even told his wife to go ahead with her vacation to Europe with her parents the day after his surgery. The morning after he went to do some work in the garden, and the bottom fell out. He was in a world of hurt and no one was there to hear his screams. We can laugh about that now, but take care and keep us posted.
Michael

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 11/5/2010 8:32 PM (GMT -6)   
Welcome to the other side Rick.

Thank heavens for Vicodan.

Just give your body time to recover.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2670
   Posted 11/5/2010 9:23 PM (GMT -6)   
Congratulations on successful surgery and best wishes for a speedy recovery.  Don't forget, though, that you've just had major surgery.  The incisions may be small, but your insides have been cut, cauterized, clamped, moved around, and one part of you has been removed.  It's easy to underestimate the seriousness of the surgery because of the laparascopic wounds, but you really need to let yourself heal and not push it too hard.  Here's wishing all the best to the several who had surgery this past week.

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 11/5/2010 9:24 PM (GMT -6)   
Congratulation Rick, glad you had a good experience with the surgery. WE are now waiting for your application to the zero club.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18 months) undetectable
Latest PSA test (21 months) .005

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4110
   Posted 11/5/2010 9:56 PM (GMT -6)   
Rick27, Glad that the surgery went so well. Now keep up that walking. It will help you in the long run. As the others have said "welcome to the other side"

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 11/6/2010 1:47 PM (GMT -6)   
Thanks all! I am taking it easy. Walking is the only physical activity. Great to get this part over with. Catheda removal scheduled for day 8.
History: 2 brothers with prostate cancer
Age 56
PSA at age 45: 4.7. DRE normal.
PSA at age 52: 8.0. DRE normal. 1st biopsy 12 cores, negative
PSA at age 55: 9.5. DRE normal. 2nd biopsy positive 2 of 14, gleason 3+3. both cores <5%, Start WW
PSA at age 56: 9.2. DRE normal. 3rd biopsy positive 4 of 14, 3 cores <5%, 1 core 7% Gleason 3+4 in 1 core, prostate 81cc
LRP, no robot, Sloan Kettering

beachbum50
Regular Member


Date Joined Sep 2007
Total Posts : 292
   Posted 11/7/2010 9:15 AM (GMT -6)   
 
Rick, I'm very happy to see your making a quick recovery. I think I may have beat your work record, four hours after returning to my room following 4 1/2 hours of robotic, a customer just HAD to speak to me and get a problem resloved! I asked my wife to follow my answers carefully, as I was still a little buzzed from the surgery! Took care of the problem, and I don't think the client even knew I was not quite right! Try to take time to recover, let your body heal and fill out that ZERO CLUB application!
 
Beachbum turn

Pocketman
Regular Member


Date Joined Aug 2010
Total Posts : 121
   Posted 11/7/2010 11:55 AM (GMT -6)   
Rick - I'm about a week ahead of you. Listen to your body and move slowly. You'll find greater strength each day.
Age 61, Diagnosed July 2010
PSA 04/09 - 2.5; 05/10 - 3.7; 07/10 - 4.7
DRE and Ultrasound - Negative
Size at biopsy - 32 grams
T1C, 3+3=6, 1 core of 12 60% positive
da Vinci 10/29/10

rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 11/7/2010 1:22 PM (GMT -6)   
Beach you win. You don't sound like a beach bum either.
Thanks Pocket.
Day 3 and no bowel movement. I'm so bloated I was trying not to eat too much. I don't get hungry pangs like before. I suddenly had low blood sugar and almost passed out. Now I'm scheduling my eating just like I schedule my meds. This is a learning process.
I can't believe how small the incisions are. I wasn't sure what to do changing the dressings after a shower. I left the butterflies in place and put anti-bacterial lube on them with a new bandage. We called the nurse but they never got back to us.
I'm scheduled for catheda removal on day 8. That is sooner than I expected. I forgot to ask the Dr. the most important question: Did any cancer escape the prostate. I was drugged when I saw him.
History: 2 brothers with prostate cancer
Age 56
PSA at age 45: 4.7. DRE normal.
PSA at age 52: 8.0. DRE normal. 1st biopsy 12 cores, negative
PSA at age 55: 9.5. DRE normal. 2nd biopsy positive 2 of 14, gleason 3+3. both cores <5%, Start WW
PSA at age 56: 9.2. DRE normal. 3rd biopsy positive 4 of 14, 3 cores <5%, 1 core 7% Gleason 3+4 in 1 core, prostate 81cc
LRP, no robot, Sloan Kettering

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6982
   Posted 11/7/2010 1:49 PM (GMT -6)   
Rick,
 
The only thing the doctor could have told you was how the overall surgery went, and if he actually saw anything worrisome. The pathology report takes a few days to a week to come back, and the doctor should discuss it with you in a follow-up, likely when they take out the catheter. Remember to ASK FOR A COPY. You will want this for you files, and to help you - rereading it as you learn the new terminology should give you more information each time. If you have not gotten a printed copy of your biopsy report, get that as well. I did some comparison of the reports trying to make sense of them.
 
I was told that while in the shower for the first several weeks to NOT allow direct water pressure from the showerhead on the sutures - just use a sponge or cloth to squeeze water to run over them. No scrubbing at all. Pat dry only. I was given some large waterproof panel bandages with adhesive edges to put over the JP drain port and nearby DaVinci incisions while showering. They are use and trash. I also put a little Polysporin on the fresh bandages when needed, but for everything but the JP drain, I just put enough bandage on them to prevent clothing from touching them. The doctor did not want the JP drain port to get wet at all, and did not want me changing that bandage unless really needed.
 
The Polysporin was preferred by the doctor over the Triple-antibiotics. He didn't explain, but I have had the same advice from a dermatologist who removed some skin lesions. 

rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 11/7/2010 4:40 PM (GMT -6)   
Thanks 142
History: 2 brothers with prostate cancer
Age 56
PSA at age 45: 4.7. DRE normal.
PSA at age 52: 8.0. DRE normal. 1st biopsy 12 cores, negative
PSA at age 55: 9.5. DRE normal. 2nd biopsy positive 2 of 14, gleason 3+3. both cores <5%, Start WW
PSA at age 56: 9.2. DRE normal. 3rd biopsy positive 4 of 14, 3 cores <5%, 1 core 7% Gleason 3+4 in 1 core, prostate 81cc
LRP, no robot, Sloan Kettering 11/4/10

Pocketman
Regular Member


Date Joined Aug 2010
Total Posts : 121
   Posted 11/7/2010 8:22 PM (GMT -6)   
rick27 said...
Day 3 and no bowel movement. I'm so bloated I was trying not to eat too much. I don't get hungry pangs like before. I suddenly had low blood sugar and almost passed out. Now I'm scheduling my eating just like I schedule my meds. This is a learning process.

I experienced the very same thing last week during my first few post surgery days. I was very hungry after two days of liquids. Had a bowel movement later in the second day and was allowed solid food, which tasted great. Went about three days feeling more and more bloated. Stool softeners twice daily and finally broke down and took some milk of magnesia, which did the trick. I am on day 9 now and still do not have complete regularity, but it's much better.

Hang in there Rick, it gets better.

rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 11/8/2010 6:49 AM (GMT -6)   
Thanks Pocket. I'll try the milk of magnesia. That first BM is the next hurdle.
History: 2 brothers with prostate cancer
Age 56
PSA at age 45: 4.7. DRE normal.
PSA at age 52: 8.0. DRE normal. 1st biopsy 12 cores, negative
PSA at age 55: 9.5. DRE normal. 2nd biopsy positive 2 of 14, gleason 3+3. both cores <5%, Start WW
PSA at age 56: 9.2. DRE normal. 3rd biopsy positive 4 of 14, 3 cores <5%, 1 core 7% Gleason 3+4 in 1 core, prostate 81cc
LRP, no robot, Sloan Kettering 11/4/10

anxiety out the roof
Regular Member


Date Joined Aug 2010
Total Posts : 111
   Posted 11/8/2010 9:54 AM (GMT -6)   
I am going to have surgery in the near fyture. What is the plastic bucket for and the leg around the tape. Also where can I find all the info on surgery that you have found? thanks in advance

Pocketman
Regular Member


Date Joined Aug 2010
Total Posts : 121
   Posted 11/8/2010 10:10 AM (GMT -6)   
anxiety out the roof said...
I am going to have surgery in the near fyture. What is the plastic bucket for and the leg around the tape. Also where can I find all the info on surgery that you have found? thanks in advance
The plastic bucket is to carry and protect the catheter bag.  The tape around the leg is to secure the catheter tubing.  Securing the tubing is very important.  I would remove mine occassionally when idle, but anytime you're mobile with the catheter in place, you'll want to keep the tubing under control.
 
I've read a lot about surgery on this web site.  There are some others that are specific depending upon the procedure you'll be going though.  One thing I've seen is that each surgeon and facility has some variance in protocal.  What kind of procedure will you be going through?
Age 61, Diagnosed July 2010
PSA 04/09 - 2.5; 05/10 - 3.7; 07/10 - 4.7
DRE and Ultrasound - Negative
Size at biopsy - 32 grams
T1C, 3+3=6, 1 core of 12 60% positive
da Vinci 10/29/10

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6982
   Posted 11/8/2010 10:24 AM (GMT -6)   
Anx,
 
Check the first posts at the top of the forum. There is one with collected tips and ideas about getting ready.
 
The bucket started as an idea for holding the catheter bag at night. I had read on another forum that a lady had put a bent coat hanger between the mattress and box springs of the bed to hang the catheter bag on. That was not practical for me, so I used a 14 liter work bucket (very barrel shaped, so that it does not turn over easily).
You put the bucket by the bed, and hang the big/night bag over the lip of the bucket. The bag will most likely have two plastic hooks at the top. This accomplishes several things - the bag is low enough that you drain; the valve is upright, so it does not clog as easily; if the drain of the bag comes open (it will happen) the urine stays in the bucket, not on your floor/carpet.
Since I never used the leg bag (stayed on the big bag to avoid changing, and risk of urinary tract infection), I also used the bucket while sitting at my computer desk.
 
The catheter tube should be fixed to the inside of your leg to keep it from pulling. The hospital gave me some tape-based pads to clip it to, but with some pretty ugly bladder spasms, the tape was being constantly dissolved by the urine. I dug around in the medicine cabinet, and tried "sensitive" tape. That fell apart too. Finally came up with what is labeled "Coach Tape" by J&J, and "Tender Tape" by Walgreens. This is a stretch tape, like an elastic bandage, that interlocks, so you don't need the metal clips. I put one turn under the catheter tube "Y", and one above. It holds the tube in place, can get wet and be rinsed out (once, maybe twice), and doesn't tear the skin off your leg.
 
 

anxiety out the roof
Regular Member


Date Joined Aug 2010
Total Posts : 111
   Posted 11/8/2010 12:26 PM (GMT -6)   
thanks- surgery is bad enough. Anythong to make it easier helps alot

Highwayman
Regular Member


Date Joined Sep 2010
Total Posts : 148
   Posted 11/8/2010 1:36 PM (GMT -6)   
You may want to put a suction hook in the shower down by your knee. that helped me alot and kept the floor dry for the ten days I had the bag.
Age 48 w/diagnosed
10/06 PSA 3.0
11/06 PSA FREE %13.2
10/07 PSA 3.4
12/07 Biopsy-neg
1/09 PSA 4.6
6/09 psa 5.8
2/10 psa 8.7
7/10 PSA 10.8
8/2010 3rd biopsy GG 3+3=6, one of eight cores -2%
Lap 10/22/10 Dr. Troxel
Path- Neg Margins, Gleason 6, Nerves spared
next appt 11/2

rick27
Regular Member


Date Joined Sep 2010
Total Posts : 71
   Posted 11/8/2010 4:14 PM (GMT -6)   
In addition to this site, you may want this book:
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer, Second Edition

It is not easy but you will get though this thing. When reading posts on this site you will see some scary stuff. But most is unlikely to happen to you. Most people who breeze through the procedure probably wouldn't even think about posting. Good luck!
History: 2 brothers with prostate cancer
Age 56
PSA at age 45: 4.7. DRE normal.
PSA at age 52: 8.0. DRE normal. 1st biopsy 12 cores, negative
PSA at age 55: 9.5. DRE normal. 2nd biopsy positive 2 of 14, gleason 3+3. both cores <5%, Start WW
PSA at age 56: 9.2. DRE normal. 3rd biopsy positive 4 of 14, 3 cores <5%, 1 core 7% Gleason 3+4 in 1 core, prostate 81cc
LRP, no robot, Sloan Kettering 11/4/10

ejn
Regular Member


Date Joined Jun 2010
Total Posts : 87
   Posted 11/8/2010 5:12 PM (GMT -6)   
Rick,  Sounds like you are doing well.  If you are taking the pain killers you better be taking stool softeners also or that BM will be rock hard and hurt more than anything left over from surgery.  You can get them over the counter and I doubled up on them.  Good luck and keep us posted.
 
Ed
Age 53
Pre OP PSA: 1/2008=5.9, 2/2010=6.0 (free=9%)
Biopsy, 4/10/2010 This was my 2nd Biopsy. The Uro put me out and took 36 samples. 3 samples positive 1%, 2%, 2% no evidence of perineural invasion. T1c

Dx April 2010
Gleason: 3+3=6
CT Scan: Neg
DaVinci: 8/11/10, Dr David Bryan, SSM DePaul-St Louis
Post Op Path:
Gleason 3+3=6
Tumor involves left lobe only
Tumor constitutes less than 5% of gland volume
No vascular or neural invasion detected
No capsular invasion detected
Distal urethral margin of resection free of tumor
Proximinal urethral margin of resection free of tumor
Radial margin of resection free of tumor
Seminal vesicles uninvolved by carcinoma
TM stage T2a (unilateral less than 1/2 of one side), NX, MX
ALL Margins uninvolved
Extra Prosatic extension: Absent
PSA: 9/10 <.1,

Alegar
Regular Member


Date Joined Oct 2010
Total Posts : 91
   Posted 11/9/2010 9:04 AM (GMT -6)   
Congrats, Rick!

I had to learn to be a little patient with my recovery. Think of this part of your journey as "switchbacks" and not necessarily as a straight path. It is this way for me: always a little challenge pops up along the way to divert my healing.

Great to see you are doing so well!

Alex
54 year old 188 Lb. 6 ft.
Diagnosed July 1, '10 with PC,
PSA 3.88 Gleason 3+3=6, 2 out of 12 samples positive
DaVinci Oct 1 '10
Cath/JP Drain out Oct.16, '10

AIRBORNE ALL THE WAY!

Spartan78
New Member


Date Joined Sep 2010
Total Posts : 13
   Posted 11/9/2010 10:24 AM (GMT -6)   
Hey Rick---glad you are in the recovery phase!!!

I'm 6 1/2 weeks out from da Vinci, and got a 0.01 PSA yesterday, and all other post-surgery is doing well. Here are my tips:

--Walk, walk and walk--does help with the whole digestive tract getting back, and you feel normal again just getting out in the fresh air
--But walking was hard because the catheter was really uncomfortable at the tip no matter what. I did use Vaseline frequently. Also, someone on here suggested dropping the tube connection straight down as far as possible, even to lower leg with some slack. My tube originally went directly over to my thigh, pulling and creating friction against the tip. So I re-taped it lower, just past my knee, and gave it some slack to sorta swing. I would have even dropped further but my tube wasn't long enough. Really helped.
--I took stool softeners for about a week or more--others have said, very painful if you are constipated, and I got off pain killers quickly.
--Don't get over active. A friend of mine thought all was good after about two weeks, he felt great, and played golf---big mistake.
--once stitches are healed up, about two weeks, my brother-in-law DR suggested Vitamin E oil which I still put on every morning.
--I had very little incontinence issues. A little dribbling. I bought Depends and wore at night, but only a few times, and pads for occasional usage with dress slax etc. and went to briefs rather than boxers--good for support and all too.

Hope this helps!!!
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