After almost a full year's delay, finally going to start a well needed out-patient oncology rehab program. Was suppose to start late last year, after my SRT ended, but it never happened. I ended up fighting all that terrible post radiation damage and pain, and was stuck on the suprapubic catheters for nearly a year. Now the program is being tailored for the fact that I have been through Radiation twice in a 10 year period, that I endured 8 ops in 23 months, and that I have a urostomy now, chronic fatigue syndrome, and now my current recovery.
I start next week, Thursday, so won't have a full idea of what I am getting into, or a schedule until then. It's expensive, insurance only covers small portion, but let's just say, I have a patron that has made sure that I will be able to go the full term of the program, for which I am thankful.
Believe it or not, I am taking another self imposed break here from HW. This is my last post for the month of November, I will see how I am feeling and doing at the first of December. I may be out December also.
I don't feel my services here are really needed any more on a regular basis, lot of new faces, somewhat different tone to the place from what it use to be, etc. Like it better when it was more what it was suppose to be, a support site - patient to patient, not happy with the endless debates about reports and research that even the doctors can't agree on, don't feel that offers anything positive to those fighting PC or those new to PC in my opinion. Then more and more"psuedo" medical advice is being offered here, they may not label it the same way, but it has the same effect. There's even a difference in respect and tolerance - that's not a good change IMO. Just needs to return to its roots - as there will always be an endless stream of newly diagnosed men coming here, or their wives or daughters - all of them scared of the dx, unsure what to do, afraid of dying from cancer - these are the folks I feel we need to help and support. For those that want to have these intellectual debates, perhaps a new site could be set up, and they could debate each other. Just like the Frank site is great for those with very technical and graphic ED issues, so could a "PC Research & Study" site be, for those that like to pick apart all the never ending studies and PC reports. If doctors and true experts don't agree on this stuff, why would a patient be expected to know better?
Those that have my phone number are free to call, and my email address is very public so that anyone can reach me by email.
Good luck to one and all.
David in SC
Post Edited (Purgatory) : 11/11/2010 8:42:21 AM (GMT-7)