Rectal Sorness

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Robert H
New Member


Date Joined Nov 2010
Total Posts : 5
   Posted 11/11/2010 4:06 PM (GMT -6)   
Had PC Robotic Surgery May 27, 2010. I continue to have Rectal Sorness-not bad, but noticable at times. No Blood or pain on bowel movements. My Urologist said that I have some staples remaining that could be causing irration, but should get better. I was a Gelease 3+3=6, T2C , no positive margines, no capsular pentetration, 5.9 PSA pre surgery. Now under going Radiation Therapy in the Pelvic area - guess a few cancer cells escaped. Have hasd a rapidly rising PSA since 3 month visit, .22 - Aug 25, .34 Sept 15, .44 - Oct 10. Also taking Hoprmone shots as part of an agressive treatment in combo with the Radiation. Anyone experience Butt discomfort foir 6 months.

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 486
   Posted 11/11/2010 5:55 PM (GMT -6)   
Hello Robert, and welcome to the forum that no one wants to join. I am familiar with the tender rectum you describe, and I had similar symptoms starting with my biopsy, and not ending until a month after my surgery. I had an open RRP on July 21, 2010. At this point, I feel as good as before I even knew I had PCa. (except for this little thing we call ED)

What I'm confused about is your treatment protocol. With no capsular penetration, and negative margins, I don't understand why you are going through RT. The only evidence that "a few cancer cells escaped" would be the path report showing positive margins. Did you have positive lymph nodes?

T2C tells us that you had cancer in both lobes of the prostate. Gleason 3+3=6 is not an aggressive PCa such as what I had. Even the hormone therapy is very controversial for a G6. Can you provide more details of your post surgery pathology?

Now, back to the rectal soreness. I'm not sure if what you are experiencing and what I experienced is the same. Since the prostate sits right on top of the rectum, there is much pushing, shoving and detail surgery around the rectum which is required to get the little bugger out. (Ever skinned a rabbit?) When I mentioned my rectal discomfort to my surgeon immediately after surgery, his comment was; "We used your rectum like a punching bag for a while......I expect you are a little tender there.......Give it a few weeks, and don't sit in hard chairs...."
The first time I rode in a vehicle about ten days after surgery, still carrying that catheter, it was most uncomfortable....even to the point that I bought a hemorrhoid donut to sit on. It did not help much however. A few weeks later, I noticed that it didn't hurt any longer. Today, I can sit in hard chairs again.

Your surgery was a month before mine was, and you should be healed up by now. I would give it another month, and then pressure your surgeon for answers.

k
Age 57 at Dx
5/09 PSA 2.26
6/2010 PSA 3.07 FPSA 18% DRE +
6/2010 Bipsy, 7 of 12+, >60%, 4+5=9
7/21/2010 - RRP
Nodes neg,Ves neg
tumor contained, still 4+5=9
pni ext.
9/3, 2010 PSA - 0.04
9/3/2010, I'm 99% continent
10/14/10, PSA still 0.04, and lupron #1, now 99.9% continent
Total ED, 3 caverject failed, pump sux
10/20/10 OD'd on trimix, after 3hrs, neo synephrine shot

teallen
Regular Member


Date Joined Sep 2010
Total Posts : 38
   Posted 11/11/2010 6:02 PM (GMT -6)   
  Robert ,I am only a little over two months from my surgery and am experiencing this also. With talking to several of my friends that had been through this,some say that they had experienced this pain or discomfort for up to a year post op. Hopefully this will not be the case for us.Good Luck !!
Age 42 PSA 7.4 4+4 G8
Davinci Sept.8 2010
No incontinence issues but ED issues
1st post surgery PSA <.008

Robert H
New Member


Date Joined Nov 2010
Total Posts : 5
   Posted 11/11/2010 7:56 PM (GMT -6)   
Hi, Thanks for your reply. There was no Lympho Vascular Invasion seen on the Post Op Path Report and Two Lymph Nodes were Negative for Mestatic Neoplasm. My Urologist said that the Post Op Path Report could not have been much better than what I received. The Urologist as well as the Radiation and Medical Oncologist feel some microscopic cancer cells were left in the Prostate bed. There may be some Prostate Tissue left over from the surgery. I have just completed my 4th week of  7  of RT and the Bone scans and  Pelvic MRI that were done were all negative. They feel if they treat the Pelvic area, specifically the Prostate bed, should correct the problem. The Medical Oncologist provided me with some info that suggest Hormone Therapy along with Radiation could be an added benefit for a cure. Needless to say, I am really nervous about all this as I thought it was over after receiving such a positive Path Report. 

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 486
   Posted 11/11/2010 8:31 PM (GMT -6)   
Were I you, I would be asking what is the basis for their assumption that "a few cancer cells were left in the prostate bed." I find that a little troubling.

Either way, good luck with your treatment, keep posting your progress. This forum is a great group of guys, and they care.

k
Age 57 at Dx
5/09 PSA 2.26
6/2010 PSA 3.07 FPSA 18% DRE +
Biopsy, 7 of 18+, >60%, 4+5=9
7/21/2010 - RRP
Nodes neg, Ves neg
tumor contained, still 4+5=9
pni ext.
9/3, 2010 PSA - 0.04
9/3/2010, I'm 99% continent
10/14/10, PSA still 0.04, and lupron #1, now 99.9% continent
Total ED, 3 caverject failed
10/20/10 OD'd .5cc trimix, after 3hrs, neo synephrine shot
tried .15 & .17 cc neg, next .2

Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 665
   Posted 11/11/2010 10:42 PM (GMT -6)   
Robert, I had a very favorable path report as well, and 0 PSA for almost 2 years. It seems that rising PSA usually indicates the presence of some remaining cancer cells, unless they left prostate tissue (in which case a low constant level of PSA is no threat). I was told that although my path report was good, rising PSA was a good enough reason to start secondary/salvage treatment. I asked my rad oncologist about how, with negative margins, I could have cancer cells remaining at the prostate bed, and his answer was that it just shows how technologically limited the pathology analysis still is. I was skeptical that the radiation treatments I had would help, but sure enough, PSA dropped, so I feel that it is likely that they were right in treating the prostate bed in spite of the negative margins.

I hope your treatment is successful as well. Please post how things go for you.
Regards, Jeff
Gleason,3+4;PSA,7.9,Nerve-sparing RRP,03/2008(Age 48 then),confirmed 3+4 Gleason,pT2c, 60g, neg margins; perineural & lymphatic invasion present;3 lymph nodes removed,clear seminal vesicle invasion:absent;Gleason 4 was 5-10%; PSA <0.1 until Oct 09:0.1; retest <0.1; scans clear;monthly results from Jan 2010:0.2,0.2,0.17,0.17,0.24,0.31,0.29,0.41, IGRT SRT started 8/4/2010, PSA@5 weeks into SRT:0.17

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 11/12/2010 1:27 AM (GMT -6)   
Robert, Welcome

The PSA rising post op to 0.44 would seem to be the reason for your SRT (similar PSA story to mine but I had Gleason 7 and SVI as well, so I was almost a candidate for Adjuvant RT)

A quick Google for the words "left behind" in conjunction with "prostate cancer" shows that most authorities reckon there is a chance that some cancer cells will get left behind after surgery, especially if there is nerve-sparing surgery.
For many people targetting the SRT at the prostate bed seems to work to deal with the cells that have been left behind.

I have had and have still got a "strange" feeling in my butt, I notice especially when I sit on my bicycle saddle, and it has good days and bad, not sitting for too long helps. (But at present my rectum is not perfect anyway due to the side effects from RT - but it's better than a fortnight ago)

You may experience some side effects from your RT and the HT, and it may take a while fro them to appear as well. However mine are getting better . Indeed life is getting better - I can now report yet another night when I only had to get up once for a pee - which makes four in a row!

Alf
Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr 10 CT
28 Apr 10 start RT 66Gy
11 Jun 10 end RT
Tired
BMs weird
14 Sep 10 PSA <0.1
Erections OK

Robert H
New Member


Date Joined Nov 2010
Total Posts : 5
   Posted 11/12/2010 5:45 AM (GMT -6)   
Wow ! this is a Great Forum ! I enjoy communicating with you guys and get more comfort from this than talking to my own doctors. At least I feel that I am not alone and that I actually may get thru this. As I said before, with the Good Post Op Path Report I received, it was and has been a little nerve racking to know I still needed more treatment and then to have to go thru it. The treatment itself is not bad, it's just that I won't know how effective the RT was until maybe a month after it's over. The waiting to know is what I think is driving me nuts. The RT Oncologist said the RT stirs things up in the pelvic area and the PSA would likely be a little elevated during treatment. The Med Oncologist said the Hormone Therapy should be keeping the PSA in check while undergoing RT-I will possibly find out next week how well the Hormone shots are working. I get a Hormone shot ever 4 months for 1 year, so that is not so bad-no side effects yet-just hot flashes at times. THANKS AGAIN GUYS !

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 11/12/2010 6:18 AM (GMT -6)   
Did you rectal pain start before or after you started your radiation treatment?

Robert H
New Member


Date Joined Nov 2010
Total Posts : 5
   Posted 11/12/2010 7:05 AM (GMT -6)   
Hi,
 
The Rectal discomfort started before the RT began. I would not necessarly call it pain, just discomfort-kind of like something is irrated-hard to describe, but not a sharp pain or even a dull pain. I think this first started about 3 months after surgery-could have been a little sooner than that, but aound that time. It seems to gradually getting better, but very, very gradual improvement-it certainly is not getting worse. Thanks

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 11/12/2010 7:50 AM (GMT -6)   
Having a PSA test one month after RT finishes may not give the RT enough time to have its full effect so don't be disheartened if it still seems high. They didn't want to test my PSA post RT until three months had elapsed. (also you may see a drop in PSA from the HT as well, so one may mask the other until a few months have gone by.)

RT takes time to have the full effect because it works by messing with the DNA in the cancer cells so they stop replicating themselves properly and thus they die off, which takes a while; they do not simply get "burnt" up and killed by the rays during each session of treatment. (It's not the same as say when a laser gets used on a lady to burn off cells on her cervix)

Regarding your rectum have your tried any changes to your diet to increase fibre etc to help BMs, or perhaps also remove from your diet stuff that can make you gassy as gas seems to give me very strange sensations down there.

Alf

Robert H
New Member


Date Joined Nov 2010
Total Posts : 5
   Posted 11/12/2010 8:33 AM (GMT -6)   
I thought the RT Oncologist said 1 month, maybe he did say a couple of months-sounds about right. Maybe I need to eat more fiber and possibly take some warm baths for a while and see if the rectal sorness goes away.

Thanks

Rob

Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 665
   Posted 11/12/2010 8:57 PM (GMT -6)   
Robert - although I saw a PSA drop right away due to my SRT, my oncologist warned me that it can take up to 18 months to completely eliminate the cancer as indicated by a PSA test.

Also, regarding the rectal issue, my surgeon told me not to get a colonoscopy for 6 months post-op due to the rectal wall being thinned by the surgery. That would seem to indicate that you might have problems for that long.

Jeff
Gleason,3+4;PSA,7.9,Nerve-sparing RRP,03/2008(Age 48 then),confirmed 3+4 Gleason,pT2c, 60g, neg margins; perineural & lymphatic invasion present;3 lymph nodes removed,clear seminal vesicle invasion:absent;Gleason 4 was 5-10%; PSA <0.1 until Oct 09:0.1; retest <0.1; scans clear;monthly results from Jan 2010:0.2,0.2,0.17,0.17,0.24,0.31,0.29,0.41, IGRT SRT started 8/4/2010, PSA@5 weeks into SRT:0.17

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 11/14/2010 8:25 AM (GMT -6)   
There are times when I sit on a hard surface it feels like I'm pushing a hard stool up my rectum.
Before surgery my stools were normally soft and at times seemed to come out sideways leaving a mess. After surgery my stools are firm and never leave a mess on exiting. Seems to me I have a new rectum.
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19
PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 10/12/2010 DR Paul Kahn all nerves spared
Home 10/19/20
Cath out 10/22/2010
Prostate 56 gm. Gleason grade 3+4 = 7
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 18, 2018 7:29 PM (GMT -6)
There are a total of 2,973,021 posts in 326,055 threads.
View Active Threads


Who's Online
This forum has 160879 registered members. Please welcome our newest member, carolynecarolyne.
400 Guest(s), 12 Registered Member(s) are currently online.  Details
Froggy88, SmilingDaisies, SickSalamander, Donjr, opugirl, The Dude Abides, Mercy&Grace, Pratoman, IllinoisMom, Old Mike, CAdogsRus, WV Mike