22 months, thats brutal. I am 11 months post RRP nerves spared and I am totally incontinent plus totally impotent. By totally incontinent I mean I haven't peed one time during the day since my operation, it all dribbles out.
I went last month to Dr. Timothy Boone , incontinence specialist, at Methodist in Houston and the answer was I am done. He did a urodymanics which indicated that my bladder will not hold any pressure to speak of and cystoscopy showed there was no other problems that might be causing this condition. The cystoscpopy did show I had a very short sphincter. He didn't say it was the short sphincter that was the main cause but certainly it could be the reason. Whatever the reason does not matter much, I guess, as he said I needed the artificial sphincter put in. I am scheduled for that operation this jan. I am also getting the penile implant done at the same time. I was barley functional errection wise before the RRP and as I guessed, the RRP finshed me off.
I choose to go to a specialist for incontinence rather than my local uro or my RRP surgeon so that I would feel like the answer I got was final.
those depends and pads, i gave that up 6 months out and went to a condom style catheter and leg bag during the day and pads at night and I was much happier with this. I also was refered to a urinary physical therapist who worked on me for three months having me do all sorts of kegle and ab exericises and after three months the pelvic muscles were good and strong but no help at all for my condition.
I am REALLY sick of pads leg bags ect at 11 months, and 22, well that's brutal.
If were you, I think, I might still be hopeful if I had some control to work especially if you haven't done the phsyical therapy routine, 22 months?
the artificial sphincter, if by some miracle I become naturally continent after the sphincter is implanted then I could lock the device
open and not have to use the little pump to pee. I would be really happy if that happened but i am not going to be holding my breath waiting. I think my new pumping system will be permanet and i think it way be way better than my present situation.( if it works)
I am sorry to here of your condition and i hope you can get some relief.
ps, i just read more of your story on the viperguy, "worried as crap" thread and i guess the things i offered were plouged ground and maybe the AUS hopefully can be avoided in your case.
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent after 3 mo. PT
ED, pre-op severe, post op total , considering IPP
10/10 Dr Boone, Baylor recomended AUS
post op psa's 0.04,<0.1,<0.1
Post Edited (knotreel) : 11/12/2010 6:04:06 AM (GMT-7)