welcome Patient123

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English Alf
Veteran Member

Date Joined Oct 2009
Total Posts : 2218
   Posted 11/14/2010 12:38 PM (GMT -6)   
Elsewhere Patient123 posted this at the bottom of an old thread

"So far ok...

11/10 Now four weeks out.

Out of the hospital on the day following surgery. Johns Hopkins Urology - Outstanding Preop, OR, Post op, and Ward experiences!

Home with a miserable catheter, unwashed, itchy, for 10 days. Snuck into work once on day 5.
Catheter out post op day 10. Back to work Day 11. Quit the pads by day 13. Energy levels really getting back to normal by two weeks.

Mostly continent. Some days require more trips than others. Nights are great. Usually a little worse by the end of the day.

At four weeks - energy levels are great. I am very careful how I sit and how long I sit. ED - some hints that things will work. Taking a Viagra every other day. $18 a pill - give me a break....

Hoping for the best, still a little surprised to be a cancer patient.

When friends ask -- I say that I can hold it well except when laughing. Everyone giggles. ... and then I say "oops".

Again, I think I was fortunate to get the best possible care, and plan to take it from there. I appreciate reading everyone's experiences.

Welcome patient 123

Quitting pads by day 11 puts you right up there near the top of the performance league table regarding post-op bladder control! And hints that things will work is an excellent bonus.

Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr 10 CT
28 Apr 10 start RT 66Gy
11 Jun 10 end RT
BMs weird
14 Sep 10 PSA <0.1
Erections OK

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Date Joined Jan 2010
Total Posts : 7082
   Posted 11/14/2010 2:50 PM (GMT -6)   

Thanks for adding this - I answered on the other thread, so bases covered.
My IGRT journey -
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