Just met another brother from HW

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/18/2010 8:48 PM (GMT -6)   
Just had a nice dinner with one of our new brothers here at HW, he goes by the name Alegar.  We probably don't live five miles apart.
Had a great time getting to know each other, had a lot of common ground together.  In my opinion, its always been a treat for me to
me folks here at HW in person.  We even use the same Uro Practice, but different doctors.
 
David in SC

pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 11/18/2010 10:01 PM (GMT -6)   
That's really nice to hear. It's a small world. I'd love to meet someone I read on the forum some time.

Bob
Age 71, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Seven PSA tests undetectable, latest Aug 2, 2010
Pad free beginning Mar. 18, 2010!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/18/2010 10:56 PM (GMT -6)   
Not counting their wives, this was the 6th gentleman I have met from HW in person, feel privileged.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 11/19/2010 9:27 AM (GMT -6)   
David: I must agreee getting to meet with guys here have been just a benifit to me. Pa69 you have a chance on April 15. The GFMPH will be at my home. Hope to have people from across the country here in Cajun Country (Louisiana) We will gather on Friday and finish on Sunday. There is a bit of a twist form Worried Guys gathering last Oct. in Rochester. At this one my wife has secured a second location for the wives and plans some excursions for them as well.

I have to date met 12 different guys from HW. Thanks to all of you for being suchh great guys.

Cajun jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
Only issue at this time is ED

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/19/2010 11:14 AM (GMT -6)   
Ah, you got me beat Jeff. But then you travel a bunch, where I am mostly homebound at this time. I will mention your upcoming gig to Alegar and to SanCarlos. He is local to Alegar and I, in fact, they live in the same town. So there could be 3 of us from the Upstate of SC.

Is your wife ok if I decide to spring for a few therapy (escort) girls to help out for theraputic reasons only of course. Sure we could find a "service" in New Orleans easily. My treat.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Alegar
Regular Member


Date Joined Oct 2010
Total Posts : 91
   Posted 11/19/2010 11:29 AM (GMT -6)   
Purgatory:

The pleasure is mine, sir! It was great meeting you and getting to know you. I hope we will have many more opportunities to get together. Invite the wives?
Man...am I glad I found you guys!

Alex
Diagnosis:
July 1, '10
PSA 3.88
Gleason 3+3=6
2 out of 12 samples positive

Solution:
DaVinci Oct 1 '10, UNC Chapel Hill
Cath/JP Drain out Oct.16, '10

Personal Statistics:
Age: 54
Weight: 184 lbs.
Height: 6 feet

AIRBORNE ALL THE WAY!

Mitch128
Regular Member


Date Joined Aug 2010
Total Posts : 83
   Posted 11/19/2010 2:17 PM (GMT -6)   
 << ..... its always been a treat for me to me folks here at HW in person >>
 
 David,
 
I agree. If it wouldn't be an imposition (you've been through so much) I'd very much like to stop by at your convenience and say hello. I live about 8 miles east of Easley near the Southern Oaks Golf Course.
 
Give me a call when you have a chance - I'm the only Mitchiner in the Easley directory.
 
Hang in there wink
 
Mitch128

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 11/19/2010 2:21 PM (GMT -6)   
David considering your situation your way ahead of me. All the guys including myself made to trip to visit you with you personality.

You and I have met many of the same guys. So good seeing you here again.

Oh and about the escorts for the GFMPH. I have the Magic Juice if anyone wants a special visit the the girls. :)

Cajun Jeff

Alegar
Regular Member


Date Joined Oct 2010
Total Posts : 91
   Posted 11/19/2010 2:54 PM (GMT -6)   
Weird!

Mitch: I live across HWY 81 from the golf course! Okay...what's up with the Easley/Powdersville area? Are we in the Pca triangle?

I need a drink.
Diagnosis:
July 1, '10
PSA 3.88
Gleason 3+3=6
2 out of 12 samples positive

Solution:
DaVinci Oct 1 '10, UNC Chapel Hill
Cath/JP Drain out Oct.16, '10

Personal Statistics:
Age: 54
Weight: 184 lbs.
Height: 6 feet

AIRBORNE ALL THE WAY!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/19/2010 4:59 PM (GMT -6)   
Alex, hope we can hook up many times now that we have met.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Alegar
Regular Member


Date Joined Oct 2010
Total Posts : 91
   Posted 11/23/2010 10:30 AM (GMT -6)   
You bet, Dave. Maybe we can get the other fellows to join us as well?
Diagnosis:
July 1, '10
PSA 3.88
Gleason 3+3=6
2 out of 12 samples positive

Solution:
DaVinci Oct 1 '10, UNC Chapel Hill
Cath/JP Drain out Oct.16, '10

Personal Statistics:
Age: 54
Weight: 184 lbs.
Height: 6 feet

AIRBORNE ALL THE WAY!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/23/2010 10:57 AM (GMT -6)   
Wow, now there are 4 of us here on HW that live within 5-8 miles of each other?

We have Alegar, Sancarlos, and now Mitch, and myself of course.

We can have out own hookups anytime now, perhaps even a monthly dinner or lunch.

How's that sound, Upstate guys?

David not alone in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Sancarlos
Regular Member


Date Joined Feb 2010
Total Posts : 242
   Posted 11/23/2010 3:41 PM (GMT -6)   
David,

Sounds great. Count me in.

Sancarlos
Age 66, PC diagnosed 7/2009 at age 65
Stage: T2c, Gleason: 9 (4 + 5), 6 of 6 cores positive
Bone, CAT and MIR scans negative

Treatment: brachytherapy (103 palladium), 100 gy, 11/2009 + ADT3 (Lupron + Casodex+Avodart) + IMRT on Novalis, 45 gy, 3/2010.

PSA: 7/2009, At time of diagnosis -- 11.9
10/2009 -- 5.0
12/2009 -- 0.56
5/2010 -- 0.15
8/9/2010 -- 0.06
11/2010 -- 0.013

TTaylor
Regular Member


Date Joined Nov 2010
Total Posts : 102
   Posted 11/23/2010 4:32 PM (GMT -6)   
David
You are a GREAT inspiration to so many guys going thru this ordeal. I'm from Myrtle Beach SC and I notice you have several other guys from your area that correspond with you. If you guys ever decide to get together give me a shout. I have a son that lives in Anderson SC, and this is a great excuse for me to come up. Course I'm 67 and a bit older than you young bucks but we all have something in common and I would be proud to meet with you.
Stay well and blessed
Tom Taylor

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 11/23/2010 4:49 PM (GMT -6)   
David: A fellow member Plugedup. (Niel) called us and invited my wife Nd I to join them inississippi. We are visiting some of the sights for the next 2 days together.

Cajun Jeff

Post Edited (corvetteman3) : 11/23/2010 2:57:57 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/23/2010 5:10 PM (GMT -6)   
Jeff: I remember Neil, tell him hello.

Tom, even though you are from the Lowcountry, you would be most welcome to hook up with me or the others here in the Upstate. For a smaller state with not a huge population, we are starting to form our own regional group here on HW. I think its great.

I only live about 30 miles from Anderson. Let me know next time you know you are coming this way.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Sancarlos
Regular Member


Date Joined Feb 2010
Total Posts : 242
   Posted 11/23/2010 5:10 PM (GMT -6)   
Alegar said...
Weird!

Mitch: I live across HWY 81 from the golf course! Okay...what's up with the Easley/Powdersville area? Are we in the Pca triangle?

I need a drink.


Weird, even a bit on the scary side! I live very near you, off Three Bridges Road. In fact I went by the golf course on HWY 81 today on the way to Wren Middle School to pick up one of my grand daughters after school.

Or maybe it just means that there is a lot more PCa out there than any of us knew before we found out we have it?

Sancarlos
Age 66, PC diagnosed 7/2009 at age 65
Stage: T2c, Gleason: 9 (4 + 5), 6 of 6 cores positive
Bone, CAT and MIR scans negative

Treatment: brachytherapy (103 palladium), 100 gy, 11/2009 + ADT3 (Lupron + Casodex+Avodart) + IMRT on Novalis, 45 gy, 3/2010.

PSA: 7/2009, At time of diagnosis -- 11.9
10/2009 -- 5.0
12/2009 -- 0.56
5/2010 -- 0.15
8/9/2010 -- 0.06
11/2010 -- 0.013

Post Edited (Sancarlos) : 11/23/2010 3:13:16 PM (GMT-7)


Alegar
Regular Member


Date Joined Oct 2010
Total Posts : 91
   Posted 11/29/2010 12:07 PM (GMT -6)   
Hello, friends!

I hope my SC contingent had a wonderful Thanksgiving. YES! I'm in for get togethers with you fellers. Because of the holidays I will not be available on weekends (although weekdays will be good after the 20th of Dec.

SanCarlos: can't wait to meet you! We're probably a mile apart.
Tom: yes! come up when you can.

What do you all think we can do?
Diagnosis:
July 1, '10
PSA 3.88
Gleason 3+3=6
2 out of 12 samples positive

Solution:
DaVinci Oct 1 '10, UNC Chapel Hill
Cath/JP Drain out Oct.16, '10

Personal Statistics:
Age: 54
Weight: 184 lbs.
Height: 6 feet

AIRBORNE ALL THE WAY!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/29/2010 1:26 PM (GMT -6)   
I am free every weekday after 230 pm when my wife leave for work, so means all afternoons and evenings on weekdays are freetime for me.
I am up for most anything, with some or all or any of you. Getting kind of burned out at Ruby Tuesdays, need to find a different hangout. Know a super unique Mexican place on the Saluda Dam Road right after you cross by the dam.

If you dont have my phone number, email me, and will give it to you.

David

Perhaps we should start our own Upstate Support Group, with ourselves at first, and then expand to other folks.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 9:47 AM (GMT -6)
There are a total of 3,005,059 posts in 329,193 threads.
View Active Threads


Who's Online
This forum has 161760 registered members. Please welcome our newest member, Adrianna1023.
305 Guest(s), 8 Registered Member(s) are currently online.  Details
SoMuchFun, mattamx, leelee112233, C_G_K, RobLee, SharonZ, Anna7ella, Normal59