Has ANY of you had both a RP and RT without having permanent ED?

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BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 11/24/2010 7:46 AM (GMT -6)   
I see the various charts and stats... how each has a high rate of ED, and that BOTH are the highest. Makes sense. But has ANYONE beat the odds? If not, they might as well be blunt and say, if you jhave RP and RT, you will forever had ED?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/24/2010 8:20 AM (GMT -6)   
Bob,

I will be in the smaller group of exception. I had my open RP 2 years ago, and its now been 1 year since I finished my Salvage Radiation, and I have never had any ED at any point, and I have never used a pump, taken any ED pills, or ever done an injection. I am doing this on one set of nerves spared. I, nor my doctors, have any explanation for my good fortune in this area. Just thankful.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 11/24/2010 8:22 AM (GMT -6)   
Yes.

The simple answer is to say that yes I could get erections after surgery without any difficulty (the first one showed up before the catheter even came out)
I was reluctant to "use" an erection till about 6 weeks after surgery, but could more or else get one when I wanted to in subsequent weeks. A strange change was that it is easier for my wife to get things going than for me!

As for using it, well I had a big problem with urine leaking out or squirting out during lovemaking, regardless of the position, technique etc, though I did not squirt urine at orgasm. After about six months that had more or less disappeared enough for it not to be a problem.

I then had to have SRT, but that has neither made things better or worse, other than it making me too tired to want to try to do anything much.

There is more to it than meets the eye though. I'm not satisfied simply because I do not having ED. A sexlife and a satisfying one is about more than being able to get an erection. For, while the nerves etc that give me erections still seem to be working, the nerves that give me orgasms are not. and without an orgasm sex is very inadequate/unsatisfying/disappointing - even depressing, yet before surgery everyone consulted said that even with a flaccid penis orgasms would not be a problem. (No joy as yet from then medical profession about why this is the case for me, nor about what might help)

It is also worth noting that my penis was about 20% shorter due to it having been pulled into me somewhat by the removal of the prostate. My prostate was about one and a half inches across and I guess I lost about one inch of my erection. (This loss of length was more of a problem with a flaccid penis though as there was often hardly enough to get hold of to aim with when I needed a pee)

I believe the thinking regarding RT as a follow-up treatment to surgery is that it will "freeze" your side-effects wherever they were before your RT started, so if say you have ED and a bit of incontinence before starting RT that is the BEST you can hope to have in the future after RT has finished.

However, there are more than a few folk here who have been able to pump, medicate or inject themselves out of ED, so it is not a case of giving up hope, any more than I am giving up trying to have an orgasm. (I'm trying to be positive; I feel like I'm trying to get drunk on alcohol-free booze, so even though I'm not getting tipsy, it's still quenching my thirst - and my wife does okay!)

Alf
Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr 10 CT
28 Apr 10 start RT 66Gy
11 Jun 10 end RT
Tired
BMs weird
14 Sep 10 PSA <0.1
Erections OK

Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 11/24/2010 8:22 AM (GMT -6)   
I had RP in January of 2008.  I was regaining erections with Viagra about 1 year post-op (90%).  My PSA started to rise  about 18 months out and I opted for IMRT.  It has been almost three years now and I am about 70% with Viagra and 100% with the Bi-mix.  After three years, I don't think things will change any.  Everybody is different.  I have resigned myself to the new me. I accept it.  I am cancer free at this time.  Thats the most important thing to me.  Hope that helps.

bsjoplin
Regular Member


Date Joined Feb 2010
Total Posts : 308
   Posted 11/24/2010 9:12 AM (GMT -6)   
yet another scenario:
i was JUST STARTING to get abilities back when i began my SRT, approx 16 months after the RP.  it CONTINUED to improve during the couple months of RT, but shortly after the completion of radiation, it went away again, and i'm back now (at 23 months post-op) to almost no function.  am taking Cialis daily, and pump does a good job.  i'm not sure exactly how this is going to work out (i know in some cases there may be continued healing of the nerves), but it looks like the radiation is going to rob me of the previous progress, and leave me with not much function.   don't want to be too pessimistic, but that's what it's looking like right now
right now, am THANKFUL that at 57, i think i have knocked down the bad stuff and bought myself several years down the road. the other "icing on the cake", i'll take it,if it wants to appear.
wishing you all the best
bob
Age@dx:55
5/05 PSA:1.8
12/07 PSA:3.7
7/08 PSA:4.7
8/08 Biopsy#1:3 of 6 irreg
11/08 PSA:6.5
12/08 Biopsy#2:of 12,3 cancer,other 9 irreg;Gl:3+3=6
1/22/09 RRP
1/25/09 Released
1/28/09 Path: PCa on 10%, lymph & SV benign, Gl:3+4=7,stage T2c
2/13/09 PSA:0.1
6/09 PSA:0.1
10/09 PSA:0.1
2/10 PSA:0.3
4/10 PSA:0.4 Referred to RO
5/4/10 First RT
6/25/10 Final RT;ended up 36 treatments,64.8 Gy.
8/10 PSA:0.2
11/10 PSA: 0.1

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 11/24/2010 11:13 AM (GMT -6)   
I guess I'm also one of the lucky ones. I had surgery 18 months ago and had no trouble getting erections almost immediately after. I finished SRT 2 months ago and I can have the same quality of erection as before SRT. However, HT makes it a mute point.
Dx PCa Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4) - 8 cores, 4 positive, 30% of all 4 cores.
Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%, nerves spared, no negitive side effects of surgery.
PSA's < .01, .01, .07, .28, .50. HT 5/10. IMRT 9/10.
PSA's post HT .01, < .01

Ken S
Regular Member


Date Joined Nov 2006
Total Posts : 120
   Posted 11/24/2010 2:36 PM (GMT -6)   
Bob,

I also have a usable erection without any aids. As Alf mentioned, I was told that whatever function (both ED and continence) I had before IMRT that I would have that for the rest of my life. It's been 4 years since my RP and 3 1/2 years since my IMRT was completed and so far that has been the case. 1 pad a day and about an 80% erection without aids, my orgasms are just as intense as there were before that fateful day 4 years ago.

Ken
Age 54 (2006) PSA: 2005 - 3.2, 2006 - 3.7
Biopsy 8/06, Gleason 6 (3+3), T1c
RRP 11/3/06 Post-Op Biopsy, Gleason 6 (3+3), T2c, right apical margin positive
IMRT (37 Treatments) 4/23/07 - 6/14/07
PSA: 7/10 - 0.02

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/24/2010 2:41 PM (GMT -6)   
Bob,
Everything works here... This number will be higher than you think. But as time goes on a few will drop out of the club. But doing fine, sir...Going on 4 years post treatments...And let me add another kicker ~ post hormonal therapy as well. Although I was shut down during HT... While Cialis increases success rates, I don't have to have it to be successful.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Post Edited (TC-LasVegas) : 11/24/2010 1:58:36 PM (GMT-7)


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 11/24/2010 3:29 PM (GMT -6)   
I'm like 80-90% without meds. Enough to get by. And it seems to have improved a little over the past year.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) Jan-Mar 2007
PSA 9/2007 and thereafter <0.1
pcabefore50.blogspot.com
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