PC WILL COME BACK

New Topic Post Reply Printable Version
75 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 11/27/2010 6:38 PM (GMT -6)   
After reading all your input,it is clear that pc will come back sooner or later.
I think that we need to enjoy every day of our life. shocked

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/27/2010 8:14 PM (GMT -6)   
goldhorse,

for many guys, with low gleason and good primary treatments, they may indeed outlive it coming back. but for others, it won't be the case.
we still need to enjoy each day to the fullest, cancer or no cancer. keep hope, brother.

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 11/27/2010 8:21 PM (GMT -6)   
Could be that it never really leaves. We are just able to knock it down for periods of time.

But when you think about it, many diseases act in the same way. Heart attack victims are likely to have another heart attack, strokes, etc.

It is always a good idea whether we have PC or not aware of any malady to enjoy every day we are alive. Could be a picture of health and get hit by a bus tomorrow.

That just the way it is.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Pocketman
Regular Member


Date Joined Aug 2010
Total Posts : 121
   Posted 11/27/2010 8:40 PM (GMT -6)   
Almost the very day I had my da Vinci, a friend learned his had returned - again! He went through RP about 15 years ago. Hormone therapy 5-6 years ago. His options now are more limited.
Age 61, Diagnosed July 2010
PSA 04/09 - 2.5; 05/10 - 3.7; 07/10 - 4.7
DRE and Ultrasound - Negative
Size at biopsy - 32 grams
T1C, 3+3=6, 1 core of 12 60% positive
da Vinci 10/29/10
Post op biopsy indicated bilateral Gleason 6 tumors
Post op plumbing is 90% functional.
Minor ED - 80% naturally, 95% with Cialis

Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 11/27/2010 8:54 PM (GMT -6)   
I have chosen to deny cancer the food it needs to grow and thrive. I have chosen to starve the cancer cells if there are any floating around. I suggest reading 'The China Study'. We have given ourselves cancer by what we eat and how we live, especially by what we eat. The medical establishment is complicit in its denial of what is making us sick, if not irresponsible.
Age: 63
Gleason grade: 3+4=7, pT2c NX MX
Robotic RP: Sept. 15th, 2009
No lymphatic/vascular invasion, seminal vesicles, margins tumor free.
Pre surgery PSA: 4.1
Post surgery PSA's: .04, .03, .02, .05, .02
ED: Improvement slow but there are positive signs. No incontinent issues.
Surgery: Dr. Jim Hu. Dana-Farber/Brigham and Women's, Boston

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/27/2010 9:03 PM (GMT -6)   
Red,

Then how do you explain lifetime vegans and vegetarians getting prostate and other cancer? Food is not the whole cause, genetics and dna are major factors, as well as heriditary considerations.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 11/27/2010 9:11 PM (GMT -6)   
Cultures that avoid animal protein by necessity (poor countries) have little, if any PCa. I'm talking milk also, a very real threat to getting PCa. How many babies have lived without cows milk? This desease started way, way back in our lives, through no fault of anyone. Who new? So David, I doubt there are very many lifetime vegans anyplace, because as you know, vegans avoid all animal products, including milk, cheese, and even honey. Milk is poison to me now, as is most animal protein. (However, I cheat a little like on Thanksgiving.)

There are direct relationships between diet and cancer, and just about every disease there is for that matter We truly are what we eat. Genetics play a tiny role if any.
Age: 63
Gleason grade: 3+4=7, pT2c NX MX
Robotic RP: Sept. 15th, 2009
No lymphatic/vascular invasion, seminal vesicles, margins tumor free.
Pre surgery PSA: 4.1
Post surgery PSA's: .04, .03, .02, .05, .02
ED: Improvement slow but there are positive signs. No incontinent issues.
Surgery: Dr. Jim Hu. Dana-Farber/Brigham and Women's, Boston

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/27/2010 9:16 PM (GMT -6)   
Genetics play a major role, all 3 radiation oncologists and 2 medical oncologists I have worked with all state that without hesitation. Diet does play a role, can't deny that. As part of my rehab, I recently had dealings with an Oncology Dietician, 30 years of doing this, and she totally disagrees with eliminating any of the major food groups.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 11/27/2010 9:30 PM (GMT -6)   
I agree genetics might give one the predisposition for PCa, but if those cells are not nutured and fed by the foods we consume, then there would be no cancer. PCa cells need certain foods to survive, or we can choose to put into our bodies food that will help our immune system destroy those cells. Hence, no animal protein and plenty of fruits, veggies, and sauce for this guy.

I'll continue on my road. Good luck on yours.

BuiDoi
Regular Member


Date Joined Aug 2010
Total Posts : 234
   Posted 11/27/2010 10:41 PM (GMT -6)   
"We know not the time"

Only last weekend, I visited a "Closing Down" nursery for some specials.

I asked the YOUNG chap (35) , why closing, and he kinda delicately said "The boss has a problem"...
to which I said "Prostate Cancer" and he replied "Yes, but don't tell him I told you !"

Three days later I went in for some other bits and the young chap was absent, and when I asked the Boss, where he was, he said "Just dropped dead at the Gym , night before last".

I hope others will not mind the observation, but there seems to be a bias within the FORUM members..
There are those who have a problem, seek advice and treatment and then (naturally) move on because they no longer have a problem.
Then - there are those whose symptoms linger and provide a continued concern for them and their friends.

I continue to be amazed at the number of men who discover their PCa and are treated.
I only know a couple, for whom the treatment is considered on-going..

So it is likely unwise to think that a Dx of PCa, means that you automatically can expect a life of anxiety, because you see it so much, here on this forum..
I know a few G9's who have been given a clear bill-of-health !

"We truly are what we eat."

But genetics is VERY , very important, and it would be a foolish person who thought that past family history will not affect him, because they Eat the right food. How many doctors do you hear about dying of these same problems? They can't even recognise or Dx problems with their own bodies, until it's sometimes too late !

I had CANCER. My brother boasted how he ate the good foods, but when I got cancer he got tested. As soon as he said to the doc', 'the Bro has PCa', they did an immediate Bx and he also had a serious cancer.

nono I don't think that anyone can guarantee control over what ultimately affects them.
How do you account for 6yo's with days to live after discovering Liver-Cancer ?
.
.
Nov 2009 = First-PSA 5.3 @ 60yo - Asymptomatic - DRE-Non-Palpable
Jan-'10 = TRUS Bx DX - AdenoCar T1c - GS(3+3)=6 , 5 & 45% max., L-MidZone
May-'10 = RRP-Nrv-Spare
Post Op. GS(3+4)=7, 1.1cm3, Pos Margins, EPE (focal) Lateral Left
Margin-Involvement (extensive) Posterior , Grade3 x 8mm
+8week PSA<0.01, ED-85%, Incont-30%
+16W PSA<0.01, ED -85%, Cont -5%
+17W First 'DRY' day. ED -90%

Post Edited (BuiDoi) : 11/27/2010 9:47:47 PM (GMT-7)


Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 11/27/2010 11:00 PM (GMT -6)   
Great Post BuiDoi- Great to see some positive input !

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/27/2010 11:34 PM (GMT -6)   
what is a "closing down" nursery? never heard that before, what do you mean?

you must be blessed in your pc journey, buidoi, not everyone has the luxury of moving on, cured, healed, whatever you want to call it. Many here have gone from a primary treatment, to recurrance, to a seconary treatment, to recurrance again, and now are on non-curative treatments. So it is very much ongoing and a lifetime issue.

many are dealing with side effects of their primary treatments/secondary treatments including long term incontinence and/or ED, so again, it just doesnt go away for many men.

then you have our advanced cases, where the "anixiety" is going to be for the rest of their lives.

dont agree with the first part of your post, but we agree on the genetic part. all the good eating isn't going to change that part.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

BuiDoi
Regular Member


Date Joined Aug 2010
Total Posts : 234
   Posted 11/28/2010 12:20 AM (GMT -6)   
.
"Closing Down"- Shutting shop - Going out of business - Moving on and selling up Nursery (garden) supplies..
We call them "Plant Nurseries"


David - surely you must recognise that the greater number here are either starting their fight and bloody scared, or continuing their battle..

For a newbie to happen across the site, must leave a small foreboding that "This might be my lot"

I don't say it as a put down, or a criticism, but as a possible fact that those with the greatest to offer, have the most experience, and that is something to be respected, but not accepted as the ''Normal" progression of PCa.

Most of the acquaintances I have with PCa, consider that whilst they must be watchful, they are "Cured", in so far as the only known cancer is G O N E... from their bodies following RP. There might be an occasional dribble and likely no more.... yeah ,, Ummm -- Dancing, but who cares !

Otherwise we would accept Prof' Chapman's' contention that it is pointless even measuring PSA, or wasting money on Bx and Dx and RP's. and that we should just accept that we (who are touched by PCa) are all GOING TO DIE of PCa after a valiant fight, and frankly , that's total crap.

I have had the observation made to me "Why do you keep reading that Forum"
and they are right, I AM CURED, and I will take that feeling to the grave.

And whilst we previously spoke of GENETICS and DIET, lets really stress another thing -- ATTITUDE -- Even more important that the other two !

If we hang around here believing that all this is in store for ME, then there is a good possibility of that happening.

Cure requires attitude, because attitude affects stress and that affects one's immunity, and it is the Immune-System that will ultimately prove ME right.

If however we hang around here because we know what our feelings were when the ""C"" word was used, and that we know that WE ARE CURED and we might be able to assure others that it is the case, then that has to be good for ATTITUDE and our immune systems.

Our thoughts and prayers go with those on the Long March, but that is NOT the only course for PCa..

We ARE but Dust-Of-Life , but we are NOT here to be swept aside !
.
.
Nov 2009 = First-PSA 5.3 @ 60yo - Asymptomatic - DRE-Non-Palpable
Jan-'10 = TRUS Bx DX - AdenoCar T1c - GS(3+3)=6 , 5 & 45% max., L-MidZone
May-'10 = RRP-Nrv-Spare
Post Op. GS(3+4)=7, 1.1cm3, Pos Margins, EPE (focal) Lateral Left
Margin-Involvement (extensive) Posterior , Grade3 x 8mm
+8week PSA<0.01, ED-85%, Incont-30%
+16W PSA<0.01, ED -85%, Cont -5%
+17W First 'DRY' day. ED -90%

Post Edited (BuiDoi) : 11/27/2010 11:32:28 PM (GMT-7)


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 11/28/2010 2:26 AM (GMT -6)   
Not wishing to hurt anyone's feelings but much of this diet stuff is absolute nonsense. Let's take milk -------- one of the longest lived peoples from the mountains of Georgia in the Caucaus actually drink a lot of milk and fermented milk at that (Kefir). It is actually claimed to be very beneficial to the immune system.

www.independent.com.mt/news.asp?newsitemid=115826

Of course a high fat diet is harmful but so is anything taken to excess. As humans (and many other species) we crave fat.........it is highly nutritious, rich in energy and gives a lot of foods their delicious taste. Remember, nature gave us incisors for a very precise purpose ------in line with the other carnivores and omnivores.

Most cancer is probably hereditary (although genes may need to be triggered), much is probably virus caused. i.e. different viruses from measles to papillomavirus can infect us and damage the DNA of some of our cells

www.freep.com/article/20101127/FEATURES08/11270367/HPV-s-role-in-cancers-is-not-completely-understood

Fortunately or unfortunately life is highly complex and as the highest form of life we are the most complex of all with probably the the greatest propensity for things to go wrong. And as with all very complicated systems, sometimes s*it just happens.
Bill

Post Edited (BillyMac) : 11/28/2010 1:53:57 AM (GMT-7)


BuiDoi
Regular Member


Date Joined Aug 2010
Total Posts : 234
   Posted 11/28/2010 2:43 AM (GMT -6)   
Great points, Billy Mac..

I have heard about the benefits of Fermented Milk and even the Milk knockers, speak well of it.. As for MILK - I love it !

The Anti-Milk folk seem to talk like it's bad for 60-70% of people, and then it is going to be in degrees for all of them. "They say" it's the lactose, and as the gut is so vital for our immune system, if you upset the gut , then you upset the immune system, and that is what buggar's us up..

Sh.t DOES happen - and that is life !
Neither money nor education, nor attitude or will, diet or parents, .... .. . nothing will make anything certain..

Just enjoy what we have today ! Enjoy what has been given to us !
Life is beautiful !
.
.
Nov 2009 = First-PSA 5.3 @ 60yo - Asymptomatic - DRE-Non-Palpable
Jan-'10 = TRUS Bx DX - AdenoCar T1c - GS(3+3)=6 , 5 & 45% max., L-MidZone
May-'10 = RRP-Nrv-Spare
Post Op. GS(3+4)=7, 1.1cm3, Pos Margins, EPE (focal) Lateral Left
Margin-Involvement (extensive) Posterior , Grade3 x 8mm
+8week PSA<0.01, ED-85%, Incont-30%
+16W PSA<0.01, ED -85%, Cont -5%
+17W First 'DRY' day. ED -90%

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 11/28/2010 3:40 AM (GMT -6)   
Whether PCa does come back depends on how old you are and also relevant is how bad it is when or if it does come back. (Having been diagnosed at 49, I'd be surprised if I remain cancer free if I live till I'm 95 like my Dad did!)

Another way of understanding where we are post treatment is to understand fully what the concept of remission means. It does not mean cured, it means under control or showing no symptoms.

As for what lifestyle choices mean that some of us live longer than others (Which is what this boils down to, be the cause of death heart prostate stroke or another cancer) A long term study in Holland reported this week.
As yet the findings don't seem to be available in English so I will do a quick summary:

To find out if there is any reason why some people life a long time and other don't. Leiden University Medical Centre has been studying 450 families where there is longevity (Definition of longevity= when two or more siblings are alive when both are over 91, in a number of of the cases there were 4 or more such individuals in a family ). This study is the first of it's kind in the world.
The findings suggest that they are all of average height, average posture etc and do not lead healthier than average life styles.
Yet they have lower rates of 30% lower morbidity (chance of dying) at all generations, eg lower risk of cardiac problems and diabetes.
Crucially the partners of family members do not show these signs of improved health suggesting that it is all down to something genetic and NOT lifestyle. (The subjects even have things like better skin than there partners)
One of the points made was also that the single biggest way to break the pattern was to be a smoker, or heavy drinker.


Like David I subscribe to moderation in everything, a balanced diet and no excesses in any area.

Alf

Post Edited (English Alf) : 11/28/2010 1:37:24 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/28/2010 8:14 AM (GMT -6)   
Billy Mac = thanks for your comments in particular, you too, Alf.

BuiDoi - looks like we share a major philosphy difference as much as anything else, and will simply agree to disagree. Some of what you wrote I would interpert as "blowing smoke up someone's a**" or just whimsical thinking. You are right, lots of new men/women come here with a fresh PC dx and are scared to death. They walk in here to get hope, courage, a sense of direction, and I can only speak for the past 2 years or so I have been here, the folks do a pretty good job of taking them in, answering their questions, and helping them along the way.

They shouldn't be sheltered from the negative side of PC or its effects, as it is a reality for many people. We don't like doctors that use general phrases like "you are cured" or "I guarranty this or that". That is misleading and not helpful to the patient in any way, and when things go wrong, and boy, do they go wrong at times, it leaves the patient in a worse mental state then before.

The best combo is reality mixed with a good dose of emphathy and sympathy when calleld for. The best support is to be there for any of our brothers and sisters here, to respect their treatment choices, to not to try to get them to doubt their medical team, and to be there to help them through all the tough spots along the way.

Attitude plays a role in all medical ailments to an extent, but all the wishing in the world and Polly Anna thinking isn't go to make anyone's cancer slow down or disapear. The attitude you need, is the attitude that there is always hope, and when you see a brother in a bad way with their cancer - still fighting hard, and not giving up, that is the kind of encouragement that will transfer and help others.

My best advice on the diet thing is the simplicity of what I have been taught: A heart healthy diet, i.e. Mederteranian type or similar, and all other things in moderation. If you drink a lot, drink a lot less, if you smoke, well if you smoke, quit smoking, will do wonders for the rest of your health.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 814
   Posted 11/28/2010 8:25 AM (GMT -6)   
Goldhorse,
 
I think you and I are getting freaked out by all of the late recurrences we are reading about here.  In fact we know nothing of the details of the particular cases.   We have a couple of things going for us.  Most of these late reccurence cases were people who were Dx before PSA testing and they had to have more advanced cancer.  The Gleason grading system was revised in 2005.  Making it much harder to become a Gleason 6.   Some G6 cases today, I was told by Epstein at J.H. are more like a G4 and G5 cases before 2005.  If you research the data on G4 and G5 practically no chance of dying in 20 years without treatment. Fact is nobody knows what PCa will do in anyone.  All I know is the worst study I found had only one G6 death out of 3756 people with a run length of up to 22 years.  Who knows if the person that died would have even been a G6 today.
 
I'm hoping Provenge will improve in the next 15 years and work even better on younger people.

Post Edited (ChrisR) : 11/28/2010 7:29:43 AM (GMT-7)


PA_grandma
Veteran Member


Date Joined Nov 2010
Total Posts : 3651
   Posted 11/28/2010 9:05 AM (GMT -6)   
Gentlemen,
I'm the caregiver for a 79 yr old newbie (stage 4 Prostate Gleason (4+5)9 as well as stage 4 Hodgkin's) and have read this post with great interest....keep going .
~ Joyce

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 11/28/2010 9:17 AM (GMT -6)   

Thanks Chrisr,you are right.I just want to help people with pc,but I need to be in the right state of mind before I continue to do that.I believe you put me back in the right track;after 66 months of 0.04,my doc tells me that recurence is very unlikly and I need to belive that and my faith in God.

                                                                                                                                 Thanks tongue

 


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 11/28/2010 9:37 AM (GMT -6)   
David,
On Friday night on a TV programme on the BBC there was a detailed explanation about blowing smoke up someone's a*s! The people on the panel could hardly believe it.
I found this explanation about it myself.

The Tobacco Smoke Enema (1750's-1810's) was used to infuse tobacco smoke into a patient's rectum for various medical purposes, primarily to resuscitation of drowning victims. A rectal tube inserted into the anus was connected to a fumigator and bellows that forced the smoke into the rectum. The warmth of the smoke was thought to promote respiration, but doubts about the credibility of tobacco enemas led to the popular phrase "blow smoke up one's ass."

Search on "tobacco smoke enema" for illustrations of the apparatus.

It was a funny programme and they also had a laugh about when it was that they switched from Analogue Rectal Examinations to Digital Rectal Examinations, as bizarrely, a DRE is the only proven cure for Hiccups/Hiccoughs. So who knows, maybe the Rectum does have something to do with how we breathe. (I know that after my surgery my sinuses were unblocked for the first time in 40 years!)

Alf

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7197
   Posted 11/28/2010 9:43 AM (GMT -6)   
What a strange thread.
 
One guy here deems himself CURED after having surgery in May 2010.
 
Another is convinced that specific dietary choices will totally cure PC while other choices will enflame it.
 
It sure must be nice to be so sure, despite no definitive supportive results.
 
Thank goodness people here are honest and report what IS, not what they would LIKE IT to be.
 
If we can't get the whole range of information here, then this site would be useless.
 
We need a lot of support, but not phoney support.
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. 9/21/10--0.06

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 814
   Posted 11/28/2010 9:53 AM (GMT -6)   
Goldhorse,
 
When you read this article you need to believe we have a very strong chance of no recurrence.
 
 
Epstein uses the word "curable."  Their stats are 99.6% of patients with OC G6 up to 15 years later did not even experience BCR.  Some, not all of the patients had followup 22 years out.  That is a huge number.  For the ones that did nobody died of PCa or even developed detecable systemtic desease.  No metastisis was found.  Some of the 4 out of 1000 had a rise to a very low PSA and it remained stable after that.  I know of a guy on Yana.net that was G6 and his PSA went to .2 and stopped.  This is 10 years later.  There is no 20 or 30 year data yet which is what you and I need  to see.  But that does not exist yet.  I find it hard to believe that Epstien, probably the most highly respected pathologist, would make such a bold statement using the word "curable" unless he was absolutly sure.

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1096
   Posted 11/28/2010 10:20 AM (GMT -6)   
I think Compiler has it right here.  I am skeptical of anyone who is "absolutely certain" of anything they cannot prove.  My guess:  genetics is important; diet is generally very important for health and probably has some relevance for prostate cancer. 
 

Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 310
   Posted 11/28/2010 10:52 AM (GMT -6)   
What a VERY strange thread on this Thanksgiving weekend:

I'll limit my comments to two and pass by some otherwise tempting low-hanging fruit (e.g., "genetics and dna are major factors, as well as heriditary [sic] considerations"):

1. The people who participate on this board are not even close to being a scientific cross-sample of all men who are diagnosed with prostate cancer. Most men are treated and then move on, eventually dying of something else. True, many have permanent side-effects from their treatment, and it is debatable whether many of those men actually needed to be treated in the first place, but that is a different issue and I don't want to go there this morning.

2. ChrisR raises a very, very good point that many here either don't see or won't see because it produces too much cognitive dissonance - the PSA grading system has changed in the last several years and therefore many of us have Gleason scores that would have been significantly lower a few years ago. [For example, I have been told that my 4 + 3 Gleason score in 2008 would probably have been a 3 + 4 or 3 + 3 score a few years earlier.] In the context of long-term recurrence/survival studies, this causes a serious apples-to-oranges problem (on top of everything else).

Be happy! It's Thanksgiving!

Zen9
New Topic Post Reply Printable Version
75 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Monday, April 23, 2018 12:00 AM (GMT -6)
There are a total of 2,954,463 posts in 324,123 threads.
View Active Threads


Who's Online
This forum has 162163 registered members. Please welcome our newest member, Kburch.
214 Guest(s), 4 Registered Member(s) are currently online.  Details
Abhirraai, KYLEb23, Sheeks175, NotQuiteAntonio