If you live in the NJ, NY, or CT area please come in

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

formypops
New Member


Date Joined Nov 2010
Total Posts : 12
   Posted 11/28/2010 10:07 AM (GMT -6)   
Hello. My 62 year old father was just diagnosed with PC. His Gleason is a 7 (4+3) in 60% 3+3 20% in lower right quad. Upper right is 3+3 20% and 3+4 20%.  He is T2 and PSA was in the 7's I believe. I know it was under 10 for sure. During DRE Dr did feel one suspicious area. He has not had any CT or bone scans yet as this was just diagnosed. Should we request them immediately?
 
Since we are located in Northern NJ, i was wondering who else was from the area and what experiences they have had with doctors in this area. We are going for opinions at Memorial Sloan Kettering but were unsure who to choose. We also saw that Dr. Ketan Badani from Colombia, Dr. David Samadi from Mt. Sinai, Dr. Tewari from NY Pres and Dr Samir Taneja from NYU are some of the more known surgeons in NY. Anyone ever use them?
What about Patrick Walsh at JOhns Hopkins? Anyone use him? My mother has read his book this weekend. Is it worth going for a consult or even having him be the surgeon?
My father is still investigating options. Surgery looks better-nerve sparing if they consider him candidate because then he can follow with radiation if needed however the side effects are scary. We read it is all about the surgeon so that is why I wanted some local stories of experiences if possible. Also if you did the radiation route how did you choose who did it and what type of rays were used, etc.
Sorry for all the questions but really looking for some names and local experiences. It is hard to find honest reviews even though I know everyone is starting at a different point.
Thanks in advance!
 

Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 11/28/2010 11:02 AM (GMT -6)   
Not sure where your dad lives - but if traveling to Philly is a possibility I highy recommend Dr David Lee at Penn Presbyterian (U OF P).

There are folks here that have used some of the doctors you mentioned in NY so Im sure that they will be along to give you some feedback on their experiences. This is a great place with many kind and caring people.

Best of luck to your family -

Ray
Diagnosed 9/09 at age 54
PSA 6/09 1.3
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
Surgery 1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10
Post OP Pathology Report Gleason score upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
POST OP PSA 4/10,8/10,11/10 <0.1
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day,6months 99% dry
ED - yes but seeing some improvements

Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 11/28/2010 11:23 AM (GMT -6)   
If you decide to interview a radiation oncologist, I strongly recommend Dr. Timothy Chen at St. Clare's in Dover and Denville.

formypops
New Member


Date Joined Nov 2010
Total Posts : 12
   Posted 11/28/2010 11:32 AM (GMT -6)   
Thanks Ray! Phili is about 3 hours away but do-abe for surgery purposes but not radiation. Will look into it.

Gordy-Did you opt to use Dr Chen over MSK? If he chooses radiation, we were looking into MSK Basking Ridge location since it is about 45 min away, so we felt that was reasonable. What was your experience like?

And general question for everyone-how do you post the bio stats so it populates every time you post?

Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 11/28/2010 12:01 PM (GMT -6)   
Formypops- My total experience with MSK in Basking Ridge was a phone call to the oncologist who was suggested. After chatting, she asked me to fax her my previous reports, which I did. That was about a year and a half ago. I'm still waiting to hear from her.

As for Dr. Chen, unfortunately both my wife and I are his patients. He never ceases to amaze us with his knowledge, not only re: radiation matters but all medical matters. He was recently highlighted on the front page of the Star Ledger and on ABC channel 7. St. Clare's had a woman patient with a lung tumor so large and so positioned that it couldn't be removed surgically. Dr. Chen treated her with HDR brachytherapy - a special kind of seeding (the first time that has ever been tried) and reduced the tumor enough so that it could be surgically removed. On top of all that, he's the nicest guy you will ever meet. And, no, I don't get a kick-back for patients I send his way.

BTW- when Dr. Chen treated me he was in Morristown.

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1096
   Posted 11/28/2010 12:14 PM (GMT -6)   
Ideas at MSK: Peter Scardino (if you can get an appointment) -- a surgeon but more than that a true prostate cancer expert. For radiation, Michael Zelefsky. Living in the NY area -- where there are so many excellent doctors -- its hard for me to believe there's any need to travel.
Age 46.  Father died of p ca. 
My psa starting age 40: 1.4, 1.3, 1.43, 1.74, 1.7, 1.5, 1.5
 

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 11/28/2010 2:36 PM (GMT -6)   
The signature function is a negative default, ie- you must check the Include signature box each time to make it appear, otherwise it will not show.. I think it maybe will show each time if you use the Quick Reply, but haven't tried it.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh
ED continues: Bimix .30cc & Trimix .15cc PRN

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 11/28/2010 2:40 PM (GMT -6)   
James,

I think the quick reply shows it once per thread.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 11/28/2010 2:43 PM (GMT -6)   
Thanks for the info, kind sir. I tried a couple Quick Reply posts after this post, which I have deleted, and they put in my signature each time I posted.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh
ED continues: Bimix .30cc & Trimix .15cc PRN

Post Edited (James C.) : 11/28/2010 1:46:42 PM (GMT-7)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 11/28/2010 2:47 PM (GMT -6)   
Formypops, welcome to HW, sorry you have to be here.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh
ED continues: Bimix .30cc & Trimix .15cc PRN

NY-Sooner
Regular Member


Date Joined Sep 2009
Total Posts : 463
   Posted 11/29/2010 9:51 AM (GMT -6)   
If you you live in northen NJ, then I might recommend you check the surgeon I used in Rochester NY which is only 4 hours from you.  His name is Dr Jean Joseph from the University of Rochester Strong Memorial Hospital in Rochester, NY.  He has close to 2000 surgeries by now, and was one of the first in the country to do robotic surgery. 
 
I had my surgery three years ago and I had an excellent outcome, no ED issues what so ever and no incontinence issues. 
 
When I was shopping around, cost was a big factor for me.   I was looking at the surgeons in NYC, but the total cost there would have been around $50,000 plus.   In Rochester , my total cost hospital and surgeon was only $21,000.  Also the living expenses at a hotel was cheap, about $70 a day vs $200 plus I would have had to pay in NYC.
 
Age 56, Biopsy 6/2007 - PSA 4.5, 2 of 12 with  <5% cancer Gleason 6
Surgery 9/2007 Strong Memorial,  Rochester  NY with Dr. Jean Joseph (1300 plus surgeries)
 Path - Negative margins, cancer in 20% examined tissue, Gleason 6
 Post Op - No ED issues, full erections without drugs,  used 5-7 pads a day for 3 months. Now dry except for stress leaks now and then.
 All post op psa's <.04
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 3:04 AM (GMT -6)
There are a total of 2,974,031 posts in 326,235 threads.
View Active Threads


Who's Online
This forum has 161223 registered members. Please welcome our newest member, otismacie.
265 Guest(s), 2 Registered Member(s) are currently online.  Details
alunke82, KarloVen