Today was my two-months post surgery check up with my Uro Surgeon. He is pleased with my healing process so far. Weight limit raised from 5 to 10 lbs for now. A couple of times when I accidently lifted something much heavier, it hurt me for days after.
He thinks that I am as surgically healed as I am going to be from the Ileal Conduit Surgery in September. I will always have to be careful on the side where the urostomy stoma is located (right side) for the rest of my life. The stoma has no nerve endings so you have to be careful not to hurt it or make it bleed, as you would never feel it.
The output from the stoma has been great from the start. The "device" or wafer/bag that covers it is working well, the product we are using will last 6-8 days without leaking, then you change it out for sanitary reason. I am slowly learning how to change out one myself, but it is very hard to do by yourself.
Still getting those phantom urges to urinate through my bladder/penis almost daily, multiple times a day. Even puzzles my doctor, same urgency many of your feel, you would swear you were going to burst your bladder, but in my case, bladder completely disconnected from any input source and probably all shriveled up by now. Just a weird sensation, and at times, can hurt for a few minutes. Hoping it will resolve itself over time.
He's still ok with me putting off my PSA until Feb. So when I see him on Feb. 28 for my 90 day post surgery check up, we will do the PSA, which at that point will be 6 months from my last one. It will be what it will be.
Physical therapy is still going on. I go 2 days a week right now for the 1st 6 weeks, then 3 times a week after that. There is no specific end in sight, they will have me go as long as it takes. I still have trouble standing or walking more than 10 minutes or so at the time, my back will just give out and the pain in my inner hips is overwhelming if I push too hard.
Gained back 10 of the 41 lbs I lost quickly after surgery, and most of it appears to be in re-gained muscle mass which I desperately needed after this ordeal. Being careful not to add back in "junk food" weight, still not eating any.
Amazed totally, that despite all I have been through in the past 2 years, still not a trace of ED. All systems go, anytime on demand, still consider myself totally blessed in that department. Feel like I won the No-ED lottery in the PC world.
Just a slow and steady recovery, I knew that from the start. I will deal with my PSA in the future, nothing I can about it right now, and no, I am not having any anxiety about not knowing. That part is nice, its like taking a vacation from it.
David in SC
Post Edited (Purgatory) : 11/29/2010 6:03:05 PM (GMT-7)