My surgery sched for Jan, 03 2011

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

prusa
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 12/2/2010 11:44 PM (GMT -6)   
Hi, I'm new here to this forum, I've been diagnosed in October with Prostate cancer. age 53, Feb 2010 PSA 6.3, Sept. 2010 PSA 6.15 (going down?), Prostate size approx 23 g. Gleason score 3+4 in 7 out of 12 biopsy cores (my urologist said 11 out of 12 biopsies had cancer at 1st. visit after biopsy, then on next visit he said 10 out of 12 had cancer, I don't trust this doctor... I found 7 out of 12 had cancer when I obtained a copy of the biopsy report). DaVinci surgery scheduled (by another Doctor, not the one that told me the wrong biopsy results) I'm wandering about the PSA result prior to the surgery though, will it be lower than the Sept. 2010??? Anyway, when I've learned about the Prostate cancer from my urologist, I felt like a death sentence. I'm trying to cope with this but it's not easy... and my wife is not helping much..I'm praying a lot and it helps me going for me and my children... and my friend who went through this over a year ago supports me in my battle...which I'm Very Thankful for.
I'm praying for a good outcome of the surgery every day...I'd like to thank to all members posting on this site, for the vast amount of support and Information I was able to find here.
God Bless each and every one of you

Post Edited (prusa) : 12/6/2010 10:50:13 AM (GMT-7)


F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3996
   Posted 12/3/2010 12:27 AM (GMT -6)   
>> I'm wandering about the PSA result prior to the surgery though, will it be lower than the Sept. 2010???,,
 
it's certainly possible.  my first PSA was 6.8 and a month later it was 6.1.  i am also a gleason 7 (3+4) with 12 of 12 cores positive.  my prostate was 24g so our numbers were very similar tho our treatment paths aren't.  i wish the best for you.
ed
age: 55
PSA on 12/09: 6.8
no symptoms, no prostate enlargement
12/12 cores positive....gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10

Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 12/3/2010 12:28 AM (GMT -6)   
Welcome.  You've found a good place to learn, ask questions ... from those of us who've traveled the same highway you find yourself on right now.B
 
No matter how confident we are before the biopsy results, once the presence of cancer is confirmed and treatment options are outlined ... all the worst thoughts enter our mind.  Will we survive?  What will the future hold?  How will we cope with the substantial changes to our lifestyles?  Nothing will be like now ... after this point.
 
When I found this web forum I just read, read and continued to read the entire archive of discussions ... and I learned so very much.  I learned there was more than doom and gloom ahead.  There is such a wealth of information here.  Not every discussion or answer applied to my circumstances, but there is enough archived here to apply to everyone.  To help everyone who looks.
 
For me the most important thing to do was to make certain I had a team of medical professionals in whom I had complete confidence.  From what I've read in the past 2.5 years, I'm probably one of the few guys who has had, from the first minute of the process, who I've trusted.  My daVinci procedure went without a hitch.  I recovered quickly from the surgery.  No complications.  I know I'm a lucky guy.
 
Life isn't the same now.  I enjoy it as much.  Almost.  I'm very happy to be alive, to have had the cancer removed.  I'm still incontinent (a little, not a lot).  Erectile disfunction is still an issue.  Sex isn't the same.  It's an even greater challenge for me because I don't have (live with) a loving partner with whom I can work through that particular problem.  But I value my life more now, happy to be cancer free.  Life is always about trade-offs.  Healthy or sick.
 
If I had one piece of advice to offer you it would be that you should not let this pre-op, the operation and then the post-op time periods too dominantly control your life and thoughts.  Don't get too stressed-out with this.  Place yourself in the hands of the best professionals you can and let them worry for you.  Let them do the 'heavy lifting.' Try to stay as positive as you can.  For most of us ... things are better after the surgery than before.
 
Best wishes for a successful procedure and speedy recovery ... and for a long and productive life.
 
 
Age: 61 (58 at diagnosis - June, 2008)
April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior
June '08 had biopsy, 2 days later told results positive but in less than 1% of sample (Gleason's 3+3=6)
Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days
Dr. recommended robotic removal using da Vinci; Surgery 9/10/08
Northwestern Memorial Hospital, Chicago, IL; Dr. Robert Nadler, Urologist/Surgeon
Post-Op Gleason's: 3+3, Tertiary 4; Margins: Free ; Bladder & Urethral: Free
Seminal vesicles: Not involved; Lymphatic/Vascular Invasion: Not involved
Tumor: T2c; location: Bilateral; Volume: 20%; Catheter: Removed 12-days after surgery
Incontinent: Yes (1 to 2 light (woman's style) pad per day)
ED: Combination of Cialis and MUSE (alprostadil) once weekly: started 9-27-08
Returned to work 9-29-08 (18-19 days post-op)
PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0; 3/10: 0.0; 9/10: 0.0

fulltlt
Regular Member


Date Joined Nov 2010
Total Posts : 264
   Posted 12/3/2010 7:12 AM (GMT -6)   
Welcome prusa,

I know the feelings. Just curious, did you check into radiation therapy at all?
age 57 2/2010
PSA 8.2 2/2010
biopsy 2/2010 - 2 of 8 left & 2 of 8 right positive, Gleason 3+4=7
attended support group - advised to get a second opinion
second opinion on pathology from John Hopkins 4+4=8
PSA 15 4/2010 just before IMRT began
5 weeks IMRT 4/2010-6/2010 at Copley Hospital in Aurora, IL
91 implants of palladium 103 7/2010 at Chicago Prostate Center, Westmont, IL
PSA 3.97 10/2010

prusa
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 12/3/2010 7:34 AM (GMT -6)   
Thank you all for your replies and your valuable advice. I did consider radiation, implants open and DaVinci surgeries. My original urologist suggested he'd perform open surgery but it wouldn't be a nerve sparing so I went to another Doctor in Boston who specializes in DaVinci and I got better prognosis regarding my nerves. They did not recommend radiation because too much tumor in the gland. I had CT scan and bone scan, both negative so this gave me hope of better surviving this disease once removed.
My best wishes to all of you and God Bless

fulltlt
Regular Member


Date Joined Nov 2010
Total Posts : 264
   Posted 12/3/2010 7:47 AM (GMT -6)   
Maybe you should get a second opinion on the pathology report from Dr. Jonathan Epstein at John Hopkins. I would think seed implants would still be an option but that's just me.
age 57 2/2010
PSA 8.2 2/2010
biopsy 2/2010 - 2 of 8 left & 2 of 8 right positive, Gleason 3+4=7
attended support group - advised to get a second opinion
second opinion on pathology from John Hopkins 4+4=8
PSA 15 4/2010 just before IMRT began
5 weeks IMRT 4/2010-6/2010 at Copley Hospital in Aurora, IL
91 implants of palladium 103 7/2010 at Chicago Prostate Center, Westmont, IL
PSA 3.97 10/2010

Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 12/3/2010 9:09 AM (GMT -6)   
Prusa, it looks like you have done your research, weighed your options carefully, and have come to a decision to have robotic surgery. My advice is to not look back and consider other options at this point because it'll just drive you nuts. Your decision is the right one for you and I am sure the doctor in Boston will do everything he can to save your life, make you continent, and save your nerve bundles that you so very much desire. Don't second guess yourself at this point.

I like what Mavica suggests. Try not to worry so much, let your doctor do that, and put it all in God's very firm hands.

peace.
Age: 63
Gleason grade: 3+4=7, pT2c NX MX
Robotic RP: Sept. 15th, 2009
No lymphatic/vascular invasion, seminal vesicles, margins tumor free.
Pre surgery PSA: 4.1
Post surgery PSA's: .04, .03, .02, .05, .02
ED: Improvement slow but there are positive signs. No incontinent issues.
Surgery: Dr. Jim Hu. Dana-Farber/Brigham and Women's, Boston

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/3/2010 9:41 AM (GMT -6)   
Good luck in your upcoming surgery, may it accomplish all goals.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

TTaylor
Regular Member


Date Joined Nov 2010
Total Posts : 102
   Posted 12/3/2010 9:46 AM (GMT -6)   
Prusa
It is hard to add what the previous respondents have already said, but rest assurred you have knowledgeable and caring guys on your side. You will receive a world of joy from this web site. Take their advise because they have already walked in your shoes and they truly mean the very best for you. It really does get better! Knowledge is power and it allows you to put things in better perspective. I would recommend the book "Surviving Prostate Cancer" by Dr Patrick Walsh. It answers all the questions and will help you with your journey. This is not the end of the world by any means. As a matter of fact my life has gotten better and my faith is stronger than at any time in my life. If there is one positive thing that will come out of this it is the fact that you will come in touch with yourself like you never have before and that is not all bad. Keep your head up high and join all of us in this journey. You are among friends.
Stay well and blessed
TTaylor
Robotic prostatectomy 10/26/2010, due for HT and RT in Janury 0f 2011. Gleason Score 4+4=8, Margin envolvement was present with perineural invasion, glandular and stromal hyperplasia present,pT3 pNO and no evidence of metastatic adenocarcinoma.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 12/3/2010 10:16 AM (GMT -6)   
Prusa, welcome to HW, sorry you have to be here. One of the main things we try to do here is support in any way we can. The guys have discussed the options available for treatment, with some suggestions. If you have studied carefully, with full knowledge of the surgical results that may occur, then continue on your plan and don't second gues or look back.

One thing I would like to ask and point out to others that has slipped by so far. You mention, in passing seemingly and without any details

"and my wife is not helping much". Is this a major concern for you? Are you feeling that she is not supporting you or that she is giving you reasons to second guess your decisions? While taking the risk of prying, what did you mean by this, if I may ask? We're here to help, offer a shoulder or make some suggestions, based on our experiences. Where are you emotionally with this statement?
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, next in Feb.
ED-total-Bimix 30cc

Post Edited (James C.) : 12/3/2010 8:39:59 AM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/3/2010 11:08 AM (GMT -6)   
It didn't really slip by me, James, I didn't know if it were polite to ask outright to a new person. I am curious too, as I know how much we married men value our wives support through this process. Speaking for myself, I am ever thankful for the level of care and support I have recevied on the homefront.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Highwayman
Regular Member


Date Joined Sep 2010
Total Posts : 148
   Posted 12/3/2010 12:24 PM (GMT -6)   
Prusa,
Welcome to the support online group. Good luck with your surgury. As the others have said it sounds like you have a good handle on this. As well as can be expected, Hey, you just found out you have Cancer.
Please post questions and observations it helps others.
Mike
Age 48 w/diagnosed
10/06 PSA 3.0
11/06 PSA FREE %13.2
10/07 PSA 3.4
12/07 Biopsy-neg
1/09 PSA 4.6
6/09 psa 5.8
2/10 psa 8.7
7/10 PSA 10.8
8/2010 3rd biopsy GG 3+3=6, one of eight cores -2%
Lap 10/22/10 Dr. Troxel
Path- Neg Margins, Gleason 6, Nerves spared, 85 gm
Cath out Nov 2, Dec 2nd 2 pads/day

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 12/3/2010 3:01 PM (GMT -6)   
Dear Prusa:
 
As others have said...welcome to HW...sorry you have to be here but I think you will find it full of helpful and supportive folks.
 
Normally once a patient has chosen his treatment I would just say "good luck", wish him well and not be so presumptuous as to suggest looking at other options.  So, please forgive me if my suggestion is too forward.  But, from reading your posts it is not clear to me that you have fully done your homework...maybe you have, but it's just not clear.  It seems that you have talked to a couple of urologists who may be just fine but please remember that they are surgeons and are likely to have a bias towards surgery.  So, I have two suggestions:
 
1.  Go to see a radiation oncologist and/or a prostate oncologist.  You should have the benefit of their expertise as you make this decision.  If you still want surgery after these discussions...great...but at least you will be an educated and informed patient.
 
2.  Read 3 books:  "Guide to Surviving Prostate Cancer" by Walsh, "A Primer on Prostate Cancer" by Strum and "Invasion of the Prostate Snatchers" by Blum and Scholz.  You may have seen a recent thread on this forum wherein this last book is somewhat controversial among some members here but, IMHO, it provides some real food for thought that individuals should contemplate before deciding upon a treatment.
 
You get one chance to do this right...it is a big deal and potentially life changing.  The side effects and quality of life issues can be very onerous.  So please do yourself a favor and make sure you have looked at all of the alternatives before you jump.
 
Best of luck,
 
Tudpock (Jim)(
Age 62 (64 now), G 3 + 4 = 7, T1C, PSA 4.2, 2/16 cancerous, 27cc. Brachytherapy 12/9/08. 73 Iodine-125 seeds. Procedure went great, catheter out before I went home, only minor discomfort. Everything continues to function normally as of 9/10/10. 6 month PSA 1.4, 1 year PSA at 1.0. My docs are "delighted"! My journey:
http://www.healingwell.com/community/default.aspx?f=35&m=1305643

prusa
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 12/6/2010 10:26 AM (GMT -6)   
Thank you all for your supportive response. When I posted my first post I didn't expect this much of a response from all of you. As probably most or all of you battling this illness, we have mood swings. I was on the downside when I posted, since then thanks to all your support and honest conversation with my wife, she's as depressed as I am at times, and it's not easy for her either. I see now how much supportive she is which I'm very grateful for.
I'll do a quick research on the implants and will try to get a second opinion on this treatment ASAP, I'm not sure if I'd be a good candidate for this treatment though.
It's great to have so many supportive friends,
Thank You All and I wish You Everything Best

Post Edited (prusa) : 12/6/2010 8:51:08 AM (GMT-7)


clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 12/6/2010 11:11 AM (GMT -6)   
Good luck with your treatment, PRUSA.  I sense that you've already discovered that a PCa diagnosis affects both the husband and the wife.  Sometimes we men tend to forget that.  Many wives post regularly here, and we see their love for their husbands, their degree of caring, their worry, their generosity, and occasionally their concern for what their married life might be like (or is) after treatment.  A lot of wives say that after the cancer diagnosis and treatment they find their husbands to be more caring, more loving, more appreciative of them and of life in general, and that the sex life after treatment can be just as enjoyable as it was before, or even more so, though it may be different.  That's pretty much how it's worked out for me so far.  Maybe some of our women members will add a comment either to corroborate what I've just said, or to tell me I'm full of baloney.  Please keep us informed.

Pocketman
Regular Member


Date Joined Aug 2010
Total Posts : 121
   Posted 12/6/2010 12:59 PM (GMT -6)   
prusa - We're sorry you are joining our club. There are good people here to share you thoughts and concerns with. They have been very helpful to me. While PCa is a life changing disease, it isn't necessarily "devastating."

I had da Vinci performed October 29, and am recovery quite well. My strength and stamina are getting better daily. While, I have some side effects, such as minor ED and occasional afternoon leakage, I'm seeing improvement in these areas as well. My stream is better ;o) and I no longer have a cancerous organ in my body.

You will learn that many of us experience some things alike in a general fashion, hardly any two men are alike when it comes to recovery. Please stay in touch and do not get discouraged. Prayer is good. Helped me a lot.

If interested, I posted my surgey experience:
http://www.healingwell.com/community/default.aspx?f=35&m=1947453
Age 61, Diagnosed July 2010
PSA 04/09 - 2.5; 05/10 - 3.7; 07/10 - 4.7
DRE and Ultrasound - Negative
Size at biopsy - 32 grams
T1C, 3+3=6, 1 core of 12 60% positive
da Vinci 10/29/10
Post op biopsy indicated bilateral Gleason 6 tumors
Continent 90%
Minor ED - 80% naturally, 95% with Cialis

Post Edited (Pocketman) : 12/6/2010 11:03:13 AM (GMT-7)


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 12/6/2010 1:41 PM (GMT -6)   
Prusa, I am so happy that you came to this forum. It's much like a family, in that many times we squabble over silly things but we're there for each when needed.

A PCa diagnosis is a shock often times to both the guy and his wife. Your lovely wife is mostly likely as shocked and depressed as you are, but once the dust settles and you have your surgery, life will slowly get back to normal. Like Clocknut above mentioned, often times couples become even closer and more caring and loving after this major bump in the road. Like Pocketman said, prayer is good, and it helped me a lot as well. Amen to that.

Please ask anything, because the people here know a lot and are very willing to 'pay it forward'.

Let's here from some of the women on the board pertaining to Pursa's initial post in this thread.
Age: 63
Gleason grade: 3+4=7, pT2c NX MX
Robotic RP: Sept. 15th, 2009
No lymphatic/vascular invasion, seminal vesicles, margins tumor free.
Pre surgery PSA: 4.1
Post surgery PSA's: .04, .03, .02, .05, .02
ED: Improvement slow but there are positive signs. No incontinent issues.
Surgery: Dr. Jim Hu. Dana-Farber/Brigham and Women's, Boston
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 8:34 PM (GMT -6)
There are a total of 3,005,939 posts in 329,286 threads.
View Active Threads


Who's Online
This forum has 161811 registered members. Please welcome our newest member, Clifton Winstead.
273 Guest(s), 10 Registered Member(s) are currently online.  Details
SoMuchFun, bluelyme, HeartsinPain, pombear, Hoagie, hambiscuit, Lynnwood, Ultimo_G, bw1963, F8