Bladder Spasms - Again

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MarkMyWords
Regular Member


Date Joined Dec 2010
Total Posts : 55
   Posted 12/6/2010 8:33 PM (GMT -6)   
I had surgery on Nov 8th, catheter removed on Nov18th. I had bladder spasms on / of for a week and then constant on Nov 26th. Catheter was reintroduced on Nov 27th and is supposed to be removed on Dec 8th. On Saturday I started having spasms again - but only when I had a bowel movement. They were much less severe and lasted only a few minutes. Is the reduction in severity due to the catheter being in? I am really anxious about having the catheter removed while I am still having symptoms of spasms. I do not want to go through that hell again.

Anyone have similar issues?

Mark

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/6/2010 9:05 PM (GMT -6)   
Have you gotten any medications for bladder spasms ? There is some good medication that I found helped post surgery.

I would try that before I tried another catheter.

Good luck !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Arch
Regular Member


Date Joined Jun 2010
Total Posts : 192
   Posted 12/6/2010 10:09 PM (GMT -6)   
Mark,
Mark,
 
I also had spasms, not sure if they were in the bladder or not, it felt like my entire penis would cramp from tip all the way up to the bladder. The only time I was free from them was for the first 3-4 hours in the morning, most excruiating in the evening. They almost went away if I laid down. My uro said it was normal for some people but would not prescibe anything, he said take tylenol.
 
After 6 weeks they just stopped, I also started to feel well at the same time as all the pain I had associated with sitting on that tender area also went away. For me it was a matter of grinding through it however I know several friends with prostate PCa and none of them suffered from this.
 
Hope it helps knowing you're not the only one to suffer through this. For me it was the toughest part of the recovery. I'm now 6 months out from open surgery and feel as though nothing ever happened, other than I still use 1-2 pads a day.
 
Be strong, it will get better.
 
r
 
 
age 56
PSA 5.5
Biopsy, both lobes PCa
Gleason 3/4=7
open RP May 18, 2010
Pathology: 15% involved, lymph nodes and v. d. clear, margins clear
June 3-10 10-12 pads/day
2 months 8 pads/day
Aug 1, 2010 5-6 pads/day
Aug 20, 2010 3-5 pads per day
Aug 16, 3 month PSA: undetectable
Sept 22, 2 pads a day
Oct 12, PSA 0.03
ED OK with no drugs Dec 2010

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 12/7/2010 8:36 AM (GMT -6)   
Mark:  My husband had severe ones while catheterized in the hospital.  He was sent home with a scrip for phenazopyridine 100mg tablets which he was to take 3xday if the spasms continued.  He used them a couple of days while home, but the pain subsided and finally completely disappeared after the catheter was removed 8 or 9 days later.  They turned his urine orange color, which was good to know ahead of time.  Good luck, and be comfortable knowing that they will disappear. 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/7/2010 10:17 AM (GMT -6)   
I suffered with constant bladder spasms over the course of 1 1/2 years with 21 catheters, the only med that helped was Ditropan, a cheap generic script. I would take from 2-4x a day depending on the severity of the spams.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Alegar
Regular Member


Date Joined Oct 2010
Total Posts : 91
   Posted 12/7/2010 10:53 AM (GMT -6)   
Ditropan and pain meds.

Sorry you are still going through this, Mark.
Diagnosis:
July 1, '10
PSA 3.88
Gleason 3+3=6
2 out of 12 samples positive

Solution:
DaVinci Oct 1 '10, UNC Chapel Hill
Cath/JP Drain out Oct.16, '10

Personal Statistics:
Age: 54
Weight: 184 lbs.
Height: 6 feet

AIRBORNE ALL THE WAY!

MarkMyWords
Regular Member


Date Joined Dec 2010
Total Posts : 55
   Posted 12/7/2010 11:53 AM (GMT -6)   
Thank you all - tomorrow is D day for the Catheter. Mixed emotions about getting it out. Great for being mobile / comfortable again, but if it is lessening the severity of the spasms, then not looking forward to what may come when it's gone.

I appreciate the encouragement. =)
Father diagnosed in April 2010, 38 year old brother diagnosed in June 2010 and I was diagnosed in Sept 2010.
Age 45
Jul 2010 - PSA 10.1
Aug 2010 - Biopsy - 12 of 12 cores positive - Gleason 7 (3+4 on the right, 4+3 on the left)
Sept 2010 - CAT and Bone scans negative.
Nov 2010 - da vinci RP with negative margins. nerve bundles were not spared. negative lymph nodes. Pathology Stage pT3c.

MarkMyWords
Regular Member


Date Joined Dec 2010
Total Posts : 55
   Posted 12/7/2010 3:48 PM (GMT -6)   
Hi questionsaboutit -

I knew about caffiene, but didn't know about fruits and juices. Not that I have had a lot, but I did have an occasional apple or orange.

The catheter was put back in because the spasms were so bad (1st round) that I developed a tear or hole in my bladder. The spasms then pushed the "fluid" into my abdomen. The only way to lessen the spasms and allow the bladder to repair, they had to put the cath back in for 12 days. Not a fan of the cath by any means - but it was a huge relief from the spasms. I was doing good with the cath until Friday and suddenly I have having small spasms again. They are less severe and less frequent, but I am concerned that once the cath is out, they will increase in intensity and frequency. I am a nervous wreck about getting it out tomorrow. =)

Mark
Father diagnosed in April 2010, 38 year old brother diagnosed in June 2010 and I was diagnosed in Sept 2010.
Age 45
Jul 2010 - PSA 10.1
Aug 2010 - Biopsy - 12 of 12 cores positive - Gleason 7 (3+4 on the right, 4+3 on the left)
Sept 2010 - CAT and Bone scans negative.
Nov 2010 - da vinci RP with negative margins. nerve bundles were not spared. negative lymph nodes. Pathology Stage pT3c.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/7/2010 3:55 PM (GMT -6)   
Mark,

Your spasms situation is odd. I only had bladder spasms, because I was with catheters for so long. I never had one during the short periods that I wasn't on a catheter. I was on both foley (through the penis) and mostl on suprapubic (exited below my waist)

The spasms were much worse for me during the almost one year post salvage radiation period I went through before my latest op, as there was so much radiation damage to the bladder and bladder neck.

The ditropan helped, but didnt eliminate the spasms, but when I didnt use it at all, things got much worse.

Hope you get some relief soon.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

MarkMyWords
Regular Member


Date Joined Dec 2010
Total Posts : 55
   Posted 12/8/2010 8:37 PM (GMT -6)   
Catheter is out! 1 Ditropan and no spasms for the first 8 hours. Hopefully this is a good sign. =)

Alegar
Regular Member


Date Joined Oct 2010
Total Posts : 91
   Posted 12/9/2010 10:48 AM (GMT -6)   
Great to hear of your recovery, Mark!!!

When I was emptying out my bladder and wanted to prevent the spasms, what seemed to help was taking my hands and pushing down against my bladder. Unorthodox, I know....but it worked long enough to allow the spasms to diminish.
Diagnosis:
July 1, '10
PSA 3.88
Gleason 3+3=6
2 out of 12 samples positive

Solution:
DaVinci Oct 1 '10, UNC Chapel Hill
Cath/JP Drain out Oct.16, '10

Personal Statistics:
Age: 54
Weight: 184 lbs.
Height: 6 feet

AIRBORNE ALL THE WAY!
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