PAIN FREE BEFORE HT BUT NOW I HAVE SOME DISCOMFORT !!

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leeanglo
Regular Member


Date Joined Dec 2010
Total Posts : 191
   Posted 12/8/2010 9:23 AM (GMT -6)   
HI GUYS , i would like a little help here please.i have mets in my spine,pelvis and nodes up into my higher abdomen.I was perfectly fine with no symptons untill i started on the zoladex shots.i was told about tumour flair and did take codex as instructed by urologist.I was also told that i may get some bone pain at first but it would soon feel better.Its now 7 weeks into ht therapy and i have a continual hot throbbing ache in the base of my spine.Has anyone had similar experiences and if so does the situation get better for awhile or is it a down hill slope from hereon.I would very much like to here your experiences but would also wish that none of us had ever had them.

mycroft
Regular Member


Date Joined Oct 2010
Total Posts : 54
   Posted 12/15/2010 5:23 PM (GMT -6)   
A urologist is no more than a surgeon.

He has done his job. For a uro to be involved in treatment of a man with mets is, shall we say, highly unusual.

Now is the time to replace him with a genuine cancer expert, a medical oncologist; preferably one who is well-experienced in treatment of prostate cancer.
Dx 2004 at 67 yoa: Extensive Gleason 9 + Gleason 8.

Uro wanted to do cryotherapy, which I would have declined had I known anything. It failed, except I was rendered totally impotent; the only thing that worked as advertised.

IMRT + Lupron.

Studied PCa extensively.

Fired rad onc, who refused to read Dr. Strum's evaluation of my case.

Hired med onc. Have been on IADT since 2006.

leeanglo
Regular Member


Date Joined Dec 2010
Total Posts : 191
   Posted 12/16/2010 11:19 AM (GMT -6)   
Hello Mycroft,i have only been diagnosed for approx 3 months and have only ever seen my urologist and not an oncologist.When he had seen my isotope and magnetic scans he advised me that after long discussions with a radiologist that the best course of treatment was zoladex injections every 12 weeks for the long term future.It seems here in the UK we have less control over the desease with u docs and radiologists making all of the calls.Although i am aware that there is no cure for metasised desease i am wondering why a surgeon would not want to remove the source of the desease and just take away the prostate.I wonder if further bone and node mets can be s**** from a cancerous prostate even after zoladex is being used ?.To me i would think it sensible to remove the source but i am advised that there is no point.
                                              regards Lee.
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