That's another $ 64,000.00 question. I asked the same question when I arrived on the scene. While I have a little better picture as to why, the answer doesn't satisfy me. There is no central database other than the retrospective statistics that SEER keeps at the National Cancer Institute... A database that has only kept data since 1994, and has no requirements of doctors that mandates reporting. We have the 20+ years disease with 99% of studies ending at 10 years and they are mainly retrospective studies that are quite susceptible to bias search criteria, no database, and no one interested in starting one.
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas
Blog : www.caringbridge.org/visit/tonycrispino