My unique history

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

will1
New Member


Date Joined Dec 2010
Total Posts : 15
   Posted 12/10/2010 4:28 PM (GMT -6)   
I have a unique history that I would like to share.  I have been going to Mayo Clinic for an annual physical for a lot of years.  My twin brother had prostate cancer. Tthe doctor said my prostate felt enlarged.  I asked him to do a biopsy, but he said not necessary.  The following year, they did a bioposy, and found gleason 9, and in my lymph nodes, with a psa of only2.3.
 
Mayo did surgery, and took out my prostate and testicles out.  This was Sep 4, 1094 -- 16 years ago.  I have never had a rise in my psa -- still less than .01.  I have been very aggressive in my treatment plan.  My twin brother, also gleason 9, but only as far as his semilnal vessles.  But he passed awa6 about 6 years ago.  He was not as aggressive in his treatment plan.
 
So the point I would like to make, is to encouage those with a high gleason, and see no hope.  Just don't give up, and keep living your life the best you can.  Things will never be the same, but you can make the best of it, and keep on keeping on.
 
The best to you,
 
Will1
Aged, gleason 9, psa prior to surgery 2.3. Took prostate and testies out at Mayo Clinic, Sep 4, 1994. Gleason 9, in lymph nodes. I have been very aggressive in my treatment plan. I have never had a rise in psa, 16 years out. Still less than .01. My twin brother, also gleason 9, passed away 6 years ago with prostate cancer. He was not very aggressive in his treatment plan.

Will H

Highwayman
Regular Member


Date Joined Sep 2010
Total Posts : 148
   Posted 12/10/2010 4:54 PM (GMT -6)   
Will,
welcome to the forum. Sounds like you have been there and done that. 16 years is an acomplishment. You gave up much but you are alive to inspire those who are staring an agressive cancer in the face. Thanks for sharing.
Mike
Age 48 w/diagnosed
10/06 PSA 3.0
11/06 PSA FREE %13.2
10/07 PSA 3.4
12/07 Biopsy-neg
1/09 PSA 4.6
6/09 psa 5.8
2/10 psa 8.7
7/10 PSA 10.8
8/2010 3rd biopsy GG 3+3=6, one of eight cores -2%
Lap 10/22/10 Dr. Troxel
Path- Neg Margins, Gleason 6, Nerves spared, 85 gm
Cath out Nov 2, Dec 2nd 2 pads/day

will1
New Member


Date Joined Dec 2010
Total Posts : 15
   Posted 12/10/2010 6:22 PM (GMT -6)   
Mike: Go to topic: Jerry L invited me to join
There is more information on my treatment plan.

Will
Aged, gleason 9, psa prior to surgery 2.3. Took prostate and testies out at Mayo Clinic, Sep 4, 1994. Gleason 9, in lymph nodes. I have been very aggressive in my treatment plan. I have never had a rise in psa, 16 years out. Still less than .01. My twin brother, also gleason 9, passed away 6 years ago with prostate cancer. He was not very aggressive in his treatment plan.

Will H

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/10/2010 6:56 PM (GMT -6)   
sorry bout your brother, but glad you are doing so well 16 years later, espec. as a gleason 9. an amazing story.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

TTaylor
Regular Member


Date Joined Nov 2010
Total Posts : 102
   Posted 12/10/2010 7:22 PM (GMT -6)   
Will
Thanks for tagging along. You are an inspiration to all of us. Keep us posted on your marvelous recovery.
Stay well and blessed
TTaylor
Age 67. Robotic prostatectomy 10/26/2010, due for HT and RT in Janury 0f 2011. Eight of 12 lobes positive. Gleason Score 4+4=8, Margin envolvement was present with adipose tissue invasion and perineural invasion, glandular and stromal hyperplasia present,pT3 pNO and no evidence of metastatic adenocarcinoma.

Baptista
Regular Member


Date Joined Aug 2010
Total Posts : 84
   Posted 12/11/2010 6:28 AM (GMT -6)   
Hi Will1,
Thanks for sharing your story. Many of us and the G9s newebies in this board will like to know of your news. Keep posting please.
I wish you a continuous good journey.
Baptista
Age: 50 at Dx on May/2000; PSA=22.4;
6x cores biopsy positive; Gleason score (2+3=5)
RP in Aug/2000, PSA=24.2
Negative S-vesicles & lymph node (9); capsular penetration
Voluminous Adenocarcinoma, well-differentiated, Gs (3+2=5); pT3apN0
Post-op lowest PSA=0.18 on Oct/2000; Classified as Micro Metastasis
Jan/2001 PSA=0.26 Biochemical recurrence
AS (Watchful W.) until PSA=3.80 on Oct/2006; MRI & Bone scan negative
Nov/2006 SRT (3D IMRT; 68Gy / 37 fractions)
Feb/2008 lowest nPSA=0.05
May/2009 PSA=0.26 Biochemical recurrence
Oct/2010 PSA=0.95 (doubling at 9.6 months)
Nov/2010 ADT Cyproterone 100mg/day + Eligard 45mg 6-month depot
Asymptomatic, never incontinent, ED since RP

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 12/11/2010 8:32 PM (GMT -6)   

Will, thanks for your post,and welcome.I am sorry for your brother.

many people that has been cancer free for many years for one reason or other do not bother to post

and we only most of the time get the news of many recurance early after surgery of treament.

you are the fiveth person I know with so many year cancer free.I hope I keep cancer free and also

be an encouragement for my brothers.once againg thanks very much from all brothers and sisters. yeah

 

 



DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 

Post Edited (gold horse) : 12/11/2010 6:36:26 PM (GMT-7)


Barry's daughter
Regular Member


Date Joined Nov 2010
Total Posts : 34
   Posted 12/12/2010 3:07 AM (GMT -6)   
Will
 
Thanks for posting your story. My dad has recently been diagnosed and he too is G9. So nice to hear positive outcomes. My dad is very positive an just had 2nd lot of HT injections. So far so good, we are just taking each day as it comes but you have brightened our day and given us new hope! Thank you
 
Lisa x
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 8:10 PM (GMT -6)
There are a total of 3,005,594 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161784 registered members. Please welcome our newest member, Thunderdaytona.
259 Guest(s), 9 Registered Member(s) are currently online.  Details
SoMuchFun, Mind body spirit, acarined, Kent M., Fegyduck7, Notime4lyme, Michael_T, FLBeachgal, Roadranger82