I do not know if you have had the opportunity to meet and talk to another member here and well known advocate David Emerson. He was diagnosed at the age of 42 with a PSA of 271. He has ridden your roller coaster now for almost 6 years. He uses the screen name of David E(FLHW) here at HealingWell. If you have met him then you know the power of a positive attitude and huge heart. If you have not, here is his webpage:prostatecancerat42.blogspot.com
He is very accessible and very versed in protocols you have yet to try. If you would like his email address send me a message and I will get it to you. I know other stories and people that have travelled your road ahead and I will help in any way I can to get you resources.
Hang in there. There is still very much to be hopeful about
Peace to you and all around you!
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas
Blog : www.caringbridge.org/visit/tonycrispino