First Zap Job Today..

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Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 12/16/2010 9:26 PM (GMT -6)   
Well I went under the Varian Trilogy Rapid-Arc IGRT machine today for the first treatment... 20 minutes in and out...This monstrous contraption swings around you, almost silently, no clicks, hums or buzzes....No sensation at all...Thank you, see you tomorrow morning....39 more to go...

Been on HT now for 3 weeks, zero effects from that..So I'm waiting for that second shoe to drop, and I'm sure it will...What a way to spend the Holidays..
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
" 61: 5.2
" 64: 7.5, DRE "Abnormal"
" 65: 8.5, " normal", biopsy, 12 core, negative...
" 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
" 67 4.5 DRE "normal"
" 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT, Dec

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/16/2010 10:16 PM (GMT -6)   
Good luck, as you start the double wammy, RT and HT at the same time, can't imagine that.

Hope the end results give you the desired knockout punch.

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1152
   Posted 12/16/2010 10:33 PM (GMT -6)   
Hi Fairwind,

All the best for the radiation and the HT.
Tough that you have to do them simultaneously.

Regards,
An
Husband's age: 52. Sydney Australia.
Family history: Mat. grandfather died of PC at 72. Mat. uncle died of PC at 60. He has hereditary PC.
PSA: Aug07 - 2.5|Feb08 - 1.7|Oct09 - 3.67 (free PSA 27%)|Feb10 - 4.03 (free PSA 31%) |Jun10 - 2.69. DRE normal.
Biopsy 28Apr10: negative for a diagnosis of PC however 3 focal ASAPs “atypical, suspicious but not diagnostic” for PC. Review of biopsy by experienced pathologist, 1/12 core: 10% 3+3 (left transitional), 1/12 core: ASAP (left apex)
Nerve sparing RP, 20Aug10 with Dr Stricker. Post-op path: 3+4 (ISUP 2005). Neg (margins, seminal vesicles, extraprostatic extension). Multifocal, with main involvement in the fibro-muscular zone.
Post RP PSA,
Lab 1: Sep10 – 0.02|Nov10 – 0.03
Lab 2: Nov 10 - 0.01

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 1163
   Posted 12/16/2010 10:38 PM (GMT -6)   
Good luck with your treatment, Fairwind. Hope you knock the hell out of the beast. Sounds like you're going after it with both barrels.
Age 55
PSA: 8/09 2.69 -- 7/10 4.00 -- 8/10 4.11
--------------------------------------------------
Biopsy 8/10
Three of 14 cores positive: 10%, 60% & 80%
Stage T1C; Gleason 6
---------------------------------------------------------------
open radical prostatectomy at Cleveland Clinic 11/2/10
Post-surgical pathology: Gleason 7 (3+4)
Three positive margins; Stage T2c(+)
12/7/10 PSA: <.03

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3993
   Posted 12/16/2010 10:42 PM (GMT -6)   
i had my second shot of lupron a couple of weeks after starting IGRT and i just had BT six weeks before!  i'm talking triple whammy but i survived and finally starting to feel better even tho i am still testosteroneless cool .
 
ed
 
 
age: 55
PSA on 12/09: 6.8
no symptoms, no prostate enlargement
12/12 cores positive....gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 12/17/2010 12:51 AM (GMT -6)   
The Trifecta, Surgery, Hormones, Radiation all within 3 months time....I got THIS Christmas covered...I wonder where I'll be NEXT Christmas..Writing you guys happy Christmas cards I hope...

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3993
   Posted 12/17/2010 12:55 AM (GMT -6)   
i'll be posting from Maui in a few days and returning home before the new year cool .  i hear you tho fairwind.  for awhile there i couldn't even buy a pair of socks but i am slowly coming back to life and i hope we are both around for many years to come.  short term i just hope 2011 is a better year ...
 
ed
age: 55
PSA on 12/09: 6.8
no symptoms, no prostate enlargement
12/12 cores positive....gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10

fulltlt
Regular Member


Date Joined Nov 2010
Total Posts : 264
   Posted 12/17/2010 10:00 AM (GMT -6)   
Fairwind said...
Well I went under the Varian Trilogy Rapid-Arc IGRT machine today for the first treatment... 20 minutes in and out...This monstrous contraption swings around you, almost silently, no clicks, hums or buzzes....No sensation at all...Thank you, see you tomorrow morning....39 more to go...

Been on HT now for 3 weeks, zero effects from that..So I'm waiting for that second shoe to drop, and I'm sure it will...What a way to spend the Holidays..


I had 5 weeks of the same thing. It is painless. After a few treatments I did start to feel the fatigue set in. Towards the end of my treatments the fatigue factor was definitely hitting me. Eventually you may get wet farts and loose bowels. Other than that no major problems with it. I had one time where the machines arm stopped about 1/3 of the way through the treatment. Everything was silent for 15 minutes. Then it started back up again. When I came out they told me the computer had locked up and had to be rebooted. Since I work in the computer field that didn't give me a good feeling about the reliability of it. Although it does have a lot of safety features built in so it was a case of it was stuck in the off mode and not stuck in the on mode. That would have been bad.
age 57 2/2010
PSA 8.2 2/2010
biopsy 2/2010 - 2 of 8 left & 2 of 8 right positive, Gleason 3+4=7
attended support group - advised to get a second opinion
second opinion on pathology from Johns Hopkins 4+4=8
PSA 15 4/2010
5 weeks IMRT 4/2010-6/2010 at Copley Hospital in Aurora, IL
91 palladium 103 seeds 7/2010 at Chicago Prostate Center, Westmont, IL
PSA 3.97 10/2010
no ED or incontinence

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/17/2010 10:52 AM (GMT -6)   
Prediction for you as I consulted the highest authority (Cheech and Chong)! You will become 'Fairlywinded' (laugh intended), after maybe 2-4 weeks the effects of both should show up at your door as fatigue and lethargicness. So, don't provoke anyone into a bar fight....you would lose to a 5th grader, usually on LHRH we turn into a sobbing wuzzies(later)...as one of the possible side effects...that may be much later..so just a heads up on this future Twilight Zone effect of drug therapy and nuking. I was there on occasions, this reality makes Alice in Wonderland look you are living there. Look out for the chessboard and someone telling you where to go, let alone the mushrooms (LOL).

The good news is that...yes...you can do this and get through it and likely have decent results and the effects can diminish, especially radiation effects. Off cycle you can eventually have normalcy, Tony C. can fill you in on his experience. Everything you have read becomes more real when you walk the walk.

Now you can add "Nuked" to your resume on PCa, along with the Phd. (piled high on drugs) with Lupron.....LOL.....I got heavy nuked back in 2002 (Neutron and Photon ray bombs with two different machines....as primary treatment, along with ADT3 (grenades, bazookas, flame throwers). My way of saying F.U. to PCa as best I could, seems the battle was held at bay a good while thus far. You can enlist into the PCa-Limbo Land Warriors Legion should this endeavor fail you, the arsenal in this battle is increasing and special Ops may make surprise attacks with much successes. We also have night vision against this enemy.
Best of new year(s) to you mi amigo and living lavida loca.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Old Sailor
Regular Member


Date Joined Aug 2009
Total Posts : 209
   Posted 12/17/2010 11:16 AM (GMT -6)   

Fairwind, drink a LOT of water before you have your treatments so when you get off the table, you need to hit the head immediately.  Also, do not force yourself to defecate but wait until you really have to go. Take stool softeners (4-5 a day) and metamucil. You willl be fine.

Had my first Lupron shot 3 weeks ago today and being the pessimist that I am,  waiting for all the side effects - have had none yet, amen. Rad Onc at Mayo radiated my breasts so I would not get the "man boobs" which some guys get with hormone therapy.  It was a simple procedure, 10 minutes for two days, nothing like the prostate bed radiation.

Had first PSA 17 days after starting Lupron and it went from 1.2 to .96 which is probably a good start.

Your brother 9 the Old Sailor


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 12/17/2010 12:21 PM (GMT -6)   
Fairwind,
You are getting the whole enchalada just before Xmas. I hope you don't have any unpleasant reactions from the double wammy.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18 months) undetectable
Latest PSA test (21 months) .005

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 487
   Posted 12/17/2010 12:46 PM (GMT -6)   
Fairwind; I wish you the very best with your treatments. Although I do not know you personally, I can tell from your many posts that you are a strong man with a will to survive. My wife went through breast cancer treatments years ago, and I heard many times that the strong willed patients were much more likely to achieve a cure than others.
You certainly fit into that category, and I predict that your treatments will be successful.

And I understand the pain, frustration, and just plain hassle of enduring the treatments and their side effects, but I just know that you will overcome all of this, and be an even stronger person for it.

I am now a little past midpoint of my first lupron injection. I'm on the four month plan, and the next injection will be mid February. Probably the worst side effect for me (so far) has been the hot flashes. I've had a few really down days, but life has been really busy and full of late. I'm now day three from implant surgery, which is another story by itself.

I do hope that 2011 will be a much calmer and more productive year for my wife and I. It seems that since May, we have been totally focused on my PCa, surgery, treatments, and side effects. It's truly been a wild and crazy year...some good, some not so good.

Take care brother, and keep up the fight

k
Age 57 at Dx
5/09 PSA 2.26
6/2010 PSA 3.07 FPSA 18% DRE +
Biopsy, 7 of 18+, >60%, 4+5=9
7/21/2010 - RRP
Nodes neg, Ves neg
tumor contained, still 4+5=9
pni ext.
9/3, 2010 PSA - 0.04
9/3/2010, I'm 99% continent
10/14/10, PSA still 0.04, and lupron #1, now 99.9% continent
Total ED, 3 caverject failed
10/20/10 OD'd .5cc trimix, after 3hrs, neo synephrine shot
tried .15 & .17 cc neg, next .2

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 12/17/2010 8:59 PM (GMT -6)   
Hey, thanks everyone..Sailor, my instructions were: At 8:30am clear your bowel if at all possible, bladder too..Then drink two 8 ounce glasses of water (16 ounces total), hop in the car and be in your johnny in the waiting room at 9am sharp...We will be waiting for you..

The initial set-up was under those conditions and they want that maintained as much as possible. How it works...The Varian machine first makes a "pass" (rotates around you) taking a low-power CAT scan of the target area..Then any targeting corrections are made after the scan is analyzed..You can feel the table shift a tiny amount..Targeting accuracy is 1mm. Then the machine makes it's second pass, stopping momentarily along the way when it hits you with the beam... I was walking out to my car at 9:20..
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
" 61: 5.2
" 64: 7.5, DRE "Abnormal"
" 65: 8.5, " normal", biopsy, 12 core, negative...
" 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
" 67 4.5 DRE "normal"
" 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT, Dec

Old Sailor
Regular Member


Date Joined Aug 2009
Total Posts : 209
   Posted 12/17/2010 9:09 PM (GMT -6)   
Fair, sounds like you have a good plan.  Hope you have very few problems with the SRT like I did.  I exercised every day and went to work and did not curtail any activities.  Glad Mayo was close by because getting to and from treatments was the most annoying aspect.  I'll keep you in my thoughts and prayers.   The Old Sailor

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3887
   Posted 12/18/2010 8:43 AM (GMT -6)   
Fairwind, you will do well.

On Monday I have my Last IMRT as I completed number 24 last night. I also had two HDR Brachytherapy procedures on the 6 and 13 of December. I had my first six month Eligard shot in early October and I am on a daily dose of Jalyn. Thus I am getting it three ways.

The IMRT session is exactly as you have described and you do want your bladder full and your rectum empty. That way there is less radiation to those sensitive areas. I have had minimal side effects from the radiation. I have not detected any energy loss or urinary changes. I have noticed that I have more frequent bowel movements, 3 or 4 a day, and they come on much more quickly, what my rad-onc calls "rectal urgency" and it is not to be ignored. I have not been loose, gassey, bloated, or constipated.....just more often.

The Eligard has given me hot flashes usually when I am at rest or driving. It also gave me eruptive psoriasis (guttate) on my legs. I understand this is rare and really hasn't bothered me....just looks awfull.

As I started all this I took on the Snuffy Meyers diet, supplements, and exercise. I have lost 15 pounds and I think the diet has helped offset any energy loss.

The HDR sessions did have some side effects, but I haven't missed work. I am quite swollen from the latest procedure and there is bruising in the nether region that gives me a rather strange mixed race appearance genitally....you can figure that out.

By the way, my wife is also in radiation as she is being treated for breast cancer for the second time in 15 years. She had a double massectomy, four rounds of chemo, and has completed 17 of 25 IMRTs. I have been through nothing like she has. As a result of all the rads, we dont't need lights or heat with all the radiation and just sit in the dark and watch each other glow!!!!

You will do well.

God bless and Merry Christmas to all.

pogmothoin
Regular Member


Date Joined May 2010
Total Posts : 84
   Posted 12/18/2010 10:18 AM (GMT -6)   
I'm right there with you, Fairwind. I just finished my third week of the RapidArc, with Lupron and Casodex starting together a couple weeks before that. I'm not exactly a bundle of energy, and having more frequent trips to the bathroom. The RO gave me some Uroatrel a couple days ago to help deal with the sometimes overly-frequent urination, but I'm a little wary since it says ED drugs can potentiate the hypotensive effects.

I'm fortunate in that I get off work each day at 2:30 and stop by for my treatments on my way home (hospital is only a few blocks out of the way) at 3:00, then home. To my surprise I can also get cell phone reception in the room by placing my phone across the room closer to the door and wearing my bluetooth on the table, so I'm generally talking to my girlfriend during the treatment. I don't talk much during the treatment itself, but it's nice to have her "there" with me.
 
BTW, I got my first post-Lupron PSA test back this week at <0.10. That looks fantastic since my one prior to that was 2.2. I also asked for them to test my vitamin D levels (at my girlfriend's suggestion) and i came in low; 30-100 is normal and i'm at 25. Guess I'd better get consistent with taking the vit D suppliment I have sitting on the shelf.
Age at diagnosis 5/10: 49
PSA: 5/08 1.6, 5/10 4.7
Initial GS 7 (4+3)
Biopsy: 14 out of 15 positive, up to 95%
Bone scan and CT clear
RRP on 7/20/10 by Dr William Catalona at Northwestern
about 40% nerve-sparing on each side, with bilateral nerve graft performed
Final GS 7 (4+3) with a tertiary amount (less than 5%) showing at 5
PSA 8/23/10 1.59, confirmed 8/26/10 1.7

Post Edited (pogmothoin) : 12/18/2010 8:23:36 AM (GMT-7)


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 12/21/2010 7:36 PM (GMT -6)   
Howdy:
 
I'm starting to catch up on these posts, having been gone for a week.
 
I suspect I'll be following in your footsteps. One problem I do have of late is constipation. That can be a problem with radiation, I fear. OTOH, maybe the radiation will help with the constipation.
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .
Biopsy 11/30/09. Gleason 4+3. Stage: T1C. Current Age: 64
Surgery: Dr. Menon @Ford Hospital, 1/26/10.
Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- in progress. First post-op PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. 9/21/10--0.06

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3887
   Posted 12/21/2010 8:29 PM (GMT -6)   
Today is the first day without radiation. I finished yesterday under a full moon! I think that will make the last zap more effective.

Funny though.....I have had no negative side effects and all day long I have been thinking...wouldn't another week done a bit more good. I am glad to be done but can't help thinking a few more sessions might help seal the deal.

Is this some sort of perverse separation anxiety?

Post Edited (JNF) : 12/21/2010 6:33:40 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/21/2010 9:41 PM (GMT -6)   
JNF, glad you are done with the radiation, hope the side effects stay away from you, though sometimes they do develop later after the fact. Especially hope its totally effective for you.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 12/21/2010 11:11 PM (GMT -6)   
I think pushing the dose up to higher and higher levels has been tried with beam radiation. I might be wrong, but I think it was the VA that tried it with disastrous results..The "side effects" quickly become overwhelming..80 gray is about the upper limit for PC with beam radiation..They can get the total dose up to 150 Gr. when they combine seeds with beam RT...The seeds do far less damage to surrounding tissue than the Beam Machine does..The combined treatment seems to be very effective..
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