In one week, will be exactly 3 months ago that I underwent major surgery for the Urostomy. I swear, it feels more like 6 months or more. It's been a slow, exacting recovery. Makes the 7 previous surgeries seem easy in contrast, including my
open RP 25 months ago. It been a heck of a 2 years, collectively.
Still in Physical Therapy Outpatient. I go twice a week, but as of the first of the year, will be going 3 times a week. They still won't predict an end date, as my progress is much slower than either they or myself would like. With the stoma still healing, ba
there are lots of things I still can't do. So it kind of makes my exercises and stuff uneven.
After 3 months, I can barely lay on my left side for short periods of time, then it hurts too much. No chance of me lying on my right side where the stoma is located. So, and I hate this part, I still have to sleep lying flat on my back, something I have never done prior to this surgery. I have to hook up a standard night catheter bag (lots of practice with that) to the bottom of the valve on the bag and wafer that is attached to the stoma. At least I never have to get up at night to pee, but it eliminates any chance of changing position once I lay down to sleep.
In the morning, I close the valve, disconnect the big bag, and clean and drain it. This will be my routine for life. The bag I wear, I end up emptying at least once an hour for every hour I am up. If you let it get too full, it will try to lift the wafer off your skin, and that's not a good thing, as you can spring a leak.
Still have pain, post surgery, but nothing that getting off my feet and taking Advil won't take care of. Still haven't touched a single script pain pill in over 2 months. As far as pain in my ex-bladder/bladder neck - pretty well non-existing. I still have the somewhat painful phantom urgency pains, I swear I am going to explode, but there is no chance as nothing can enter or exit my bladder. Totally disconnected.
Still dealing with the hip pain I described in another thread. If it keeps up, will deal with it when I see my dr again in Feb. Still taking a medical and PSA break at this time.
Still limited to lifting no more than 10 lbs, but that is hard to abide at times. If I walk more than 10 minutes or so at the time, or stand up about the same length, still getting deep back aches, but that is still related to the surgery.
My mind is ready to go to town, but my body hasn't caught up yet. Still hoping to make the LA HW Get-Together, but can't make any promises.
Doing the best I can, and hoping, despite not taking that last PSA test, that the number isn't creeping upward unawares to me. I am curious, but not curious enough to break my testing break. It will still be there in February.
David in SC