PSA / Bone scan - Trust issue

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Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3057
   Posted 12/19/2010 11:28 AM (GMT -6)   
After surgery last year I was in a lot of pain on my right side. A rather large bruise marked the spot and I think that was my most painful part of recovery. I couldn't sleep on that side for a long time. Over time the bruise went away and the "pain" went away, but not entirely. Sometimes, depending how I sat, the pain would shift to the other side, but it generally is on the one side. At 6 months out it was doing a number mentally so I had a bone scan done. It was clear.

Fast forward 6 more months to now. Still hurts, not really bad, but I notice it and yet again--driving me crazy. I know that it is unlikely to be pc with undetectable, but I'm used to being the exception to many of the rules.

If I knew that it wasn't related, I would get on with my life. It is not debilitating. But, it always reminds me of pc.

- I'm having trust issues with my PSA and bone scan results...any words of wisdom?

- I'm also wondering if I should go down the bone scan (again) or MRI road with my family doctor (my other doctors seem to just dismiss it)

- On top of all this is a thought to go on HT now regardless..

Thanks
Nov. 2009 Dx at Age 44
Dec. 2009 DaVinci Robotic Surgery
Jan. 2010 T3b, Gleason 9
Feb. 2010 Adjuvant Radiation

PSA History:
-----------------
Nov. 2009 4.30
Feb. 2010 <.05
May 2010 <.05
Aug. 2010 <.05
Nov. 2010 <.05

Post Edited (Jerry L.) : 12/19/2010 11:24:25 AM (GMT-7)


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 12/19/2010 12:05 PM (GMT -6)   
Jerry,
I am 18 months out from surgery and 9 months post SRT and I have pains all over the place some days. Stomach, back, legs arms, headaches. Anyone with PCa would have that thought in the back of their mind about mets. I can live with the pain, as it is not as bad as it once was, but new pains show up about every month. Right now I dont even let my dentist take xrays as no more radiation for me at least for awhile. I didnt see your stats so really cant comment about HT. My 8 month post SRT was .27 so that might be in my future as well. Right now I am in no hurry for anymore tx. But hope all of this is just a false alarm for you, but like I said we have those thoughts that come with pain. Enjoy the holidays my friend.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA .2

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/19/2010 12:22 PM (GMT -6)   
Jerry, your stats would help solicit some opinions here. Not really seeing or remembering your numbers.

Michael: When is your next PSA scheduled? You had the same amount of radiation as I did, surprised that your number isn't lower ater 7 months as well.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3748
   Posted 12/19/2010 2:55 PM (GMT -6)   
With a PSA of .05, I think you are wasting your money on bone scans and MRI's..

Maybe you should go back and talk with your surgeon..Maybe review the notes they took during your surgery..What caused that big bruise? Did the surgeon run into problems or some unusual situation that could be causing the lingering pain? Most DaVinci surgeries are pretty much pain-free...
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
" 61: 5.2
" 64: 7.5, DRE "Abnormal"
" 65: 8.5, " normal", biopsy, 12 core, negative...
" 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
" 67 4.5 DRE "normal"
" 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT, Dec

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 12/19/2010 3:16 PM (GMT -6)   
After an encounter with prostate cancer any ache or pain will make you think of the possibility of mets causing the pain. But almost without exception, mets go hand in hand with an elevated PSA. Once we get over that 50 mark random aches and pains seem sadly to somewhat be the norm.
Bill

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3057
   Posted 12/19/2010 3:55 PM (GMT -6)   
Sometimes I wonder if it was mets at time of surgery and with the way they position patients that it was easily bruised.

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2667
   Posted 12/19/2010 4:10 PM (GMT -6)   
I had a bit of bruising.  Actually, my wife noticed it and pointed it out to me.  She's and R. N. and wasn't surprised to see bruising after this type of surgery.  It faded quickly.  At times, I couldn't roll over onto my left side without feeling pain, and at other times it was my right side.  I eventually came to the conclusion that it was gas pains.  The surgeon had released a number of intestinal adhesions, and the digestive system seemed to be getting the kinks out of the bowels. 
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