I have kind of a different problem

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p_elliott
Regular Member


Date Joined Nov 2010
Total Posts : 143
   Posted 12/21/2010 12:22 PM (GMT -6)   
I had the robotic surgery October 12, 2010 everything went very well no nerve damage. The cancer was contained in the prostate and I have had my first blood test that came back 0.00 all good for me. I am have some bladder control problems some lite to moderate  leakage during the day. I leak more at night and I have had a few nights where I have woke up with wet PJ's, not fun.  Here's my dilemma I was lucky I could get erections back right away (after the 2 week or so) but I can't have orgasms. I enjoy the sensations of sex and then it's just like OK I guess I'm done with no bells and whistles. I know I'm never going to ejaculate again but I would like to have the sensation of an orgasm. Has anybody else gone through this? If so did you come out of it no pun intended. Thanks for you input inavance.

BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 12/21/2010 12:36 PM (GMT -6)   
For the most part, I cant get erections, but I can have orgasms.

BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 12/21/2010 12:37 PM (GMT -6)   
It's as if i've got no shred of dignity left to even type that sentence.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 12/21/2010 12:41 PM (GMT -6)   
First welcome to the Forum, thanks for sharing your story. I read that orgasm is 90% mental and 10% physical. I think most guys go thru a period when they have a little 'difficulty', some with getting an erection and some with having trouble climaxing. I suspect there's a lot more who have the second that would admit it. I would suggest that the first step to take would be to retrain your brain. Things are probably all mixed up now, both in the brain and the nerves that provide sensation. We also can lose out edge or confidence, and even equate ejaculation to orgasm capability. Most ED docs would tell you to begin a steady and regular course of masterbution . Do it daily, if possible, use vibrators, hands, helpful spouse, with lots of lube , whatever works to get things going again. Once you have one, you will find they are different feeling. More spread out, more internal, and usually much more intense, you know the toe curling kinds. Good luck. let us know if you have any success. tongue
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, next in Jan & Feb.
ED-total-Bimix 30cc

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 12/21/2010 12:44 PM (GMT -6)   
Bob, ditto for me also. After 3 plus years here and the discussion we have had, I find myself amazed at what I can now talk about and not even realize how that sounds, compared to myself 5 years ago. turn Shreds of dignity is a good way to describe our loss. At least we can maintain some anon. here.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, next in Jan & Feb.
ED-total-Bimix 30cc

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 12/21/2010 3:00 PM (GMT -6)   
That is a different problem. I can have orgasms but no erection, I leak 100% day time and very little at night. My problems seem to fit the usual profile but on the bad end of the curve. Yours being backwards to norm sounds like James may have a point about not being all physical. That might be easier to fix than the entirely physical issues. You didn't mention any physical therapy, you might want to look into that, in case you don't know, there is PT for unirary isses that mostly involve doing kegel exercises.
But on the other hand, your recovery from surgery has not been long compared to the norm, as I understand the "norm". I think more time to let things repair themselves and all this might be gone. To have errections and stay dry during the day is great, I think you will end up being one of the lucky ones.
Oh, told you you might have emotional issues and didn't even say hello. so hello! sorry some people might consider that as rude, and I guess it is. Anyway, I think you are doing great and take what you have as a gift and good luck and stick arround here, there is lots to learn from these guys.
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent after 3 mo. PT
ED, pre-op severe, post op total
10/10 Dr Boone, Baylor recomended AUS
AUS and IPP scheduled 1/11/11
post op psa's 0.04,<0.1,<0.1,0.01@12 mo.

bayou jackal
Regular Member


Date Joined Oct 2010
Total Posts : 38
   Posted 12/21/2010 4:32 PM (GMT -6)   
 Is it not true that the ejaculate is mostly produced by the prostate? Is it not also true that most experience retrograde ejaculations after  surgery?
PSA 3/14/02 1.89
PSA 12/03/02 2.63 (50% increase)
Biopsy 12/30/02 POSITIVE Gleason 4+3
Surgery February 2003
PSA 3/17/03 0.00
A total of 16 PSAs between then and today
PSA 12/12/10 0.00 Approaching eight years after radical open prostatectomy
Life is good!!

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 12/21/2010 4:42 PM (GMT -6)   
The way I understand, the sperm is blocked off from getting to the prostate, an internal vasectomy. The ejaculate itself is a mixure of several chemicals to maintain the life of the sperm. Since the sperm is gone and the prostate is gone, there is no liquid left. Well, let me rephrase that. Some men still have their Cowper's gland. Some surgeons leave it. It's the gland that produces the clear pre-ejaculate lubrication, you know the one that shows first when we are stimulated. It's total is probably slight, but still detectable. As far as providing a sensation during the dry ejaculation, I don't think it plays a role.

As to what a dry ejaculation and orgasm feels like, to me it feels pretty similar to the old days. It is more intense and seems to come from more inside than before. The feeling of pleasure we get is still muscle contractions internally, just without the flow of ejaculate for them to force out. I think that's how that works.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, next in Jan & Feb.
ED-total-Bimix 30cc

bsjoplin
Regular Member


Date Joined Feb 2010
Total Posts : 308
   Posted 12/21/2010 5:09 PM (GMT -6)   
as i understand it, the prostate contributes about 30% of the liquid in the semen.  the biggest portion is contributed by the seminal vesicles (sp?).  but since the vesicles are so intimately connected to the prostate, when the urologist takes the prostate, he takes these out also, for pathology to check for invasion of any cancer. so you've lost all the liquid generators except the pre-ejaculate, which in most cases is also nothing.  there are several guys who lose the ability to hold back urine during the orgasm experience, but i'll let somebody else expound on that one...
anyway, sounds like you're in pretty good shape, and i would guess with a little time should be back in business...[speaking with all my authority as an electrical engineer!]
keep us posted!
bob
 
Age@dx:55
5/05 PSA:1.8
12/07 PSA:3.7
7/08 PSA:4.7
8/08 Biopsy#1:3 of 6 irreg
11/08 PSA:6.5
12/08 Biopsy#2:of 12,3 cancer,other 9 irreg;Gl:3+3=6
1/22/09 RRP
1/25/09 Released
1/28/09 Path: PCa on 10%, lymph & SV benign, Gl:3+4=7,stage T2c
2/13/09 PSA:0.1
6/09 PSA:0.1
10/09 PSA:0.1
2/10 PSA:0.3
4/10 PSA:0.4 Referred to RO
5/4/10 First RT
6/25/10 Final RT;ended up 36 treatments,64.8 Gy.
8/10 PSA:0.2
11/10 PSA: 0.1

Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 12/21/2010 5:12 PM (GMT -6)   
(any vestiges of dignity checked at the door...)

I'm able to get useful erections with Levitra. I don't have any regular incontinence, but have had some trouble with incontinence at the point of orgasm. I find myself 'clenching' during sex due to concern about leakage at orgasm and have found that that delays or inhibits orgasm. I have to actively and conciously relax to get there. Not all bad, of course, as I can last as long as wanted or needed, but it is disruptive to have to be conciously involved during the act to get results. Not sure if this may bear on your issue or not, but thought I'd share in case.  I will also say that these results took considerable time to achieve.
age 52
RALP 10/08
One nerve spared
Gleason 7
Pre op PSA 8.2 -- first PSA ever taken on age 50 physical
Post op PSA's <0.01
Most recent PSA 0.02 (12/10)

walleye
New Member


Date Joined Dec 2010
Total Posts : 7
   Posted 12/21/2010 7:10 PM (GMT -6)   
Never had prostate cancer. My ED is because of heart disease. Heart attack at 52 years old. Low testosterone took shot.
I quit smoking 5 days before heart attack. Tried viagra,shots the whole ED course of Tx. AMS 700 implanted in Feb.09. Implant was too small because of scar tissue.
It kept collapsing with penetration. 2nd implant installed Feb.10. 2nd is a coloplast titan otr. Works real well. I am keeping a close eye on my psa levels. Had Thermo-dilation of prostate because of BHP. 3 years ago. If ihad it to do all over again I'd have went with the IPP right from the git go.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/21/2010 7:30 PM (GMT -6)   
I agree with JamesC description. Since my open Surgery, orgasms have been much deeper felt and last much longer, very intense but dry. I am in the fortunate few club and did not suffer any ED after surgery. I also have a working Cowper's Gland, and it makes the "tip" moist before the climax, as in the old days. Sometimes, at the point of now return, this tiny amount of fluid almost feels like a mini ejaculation.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10
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