Adverse Affects of 1st line treatments for PC

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John T
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Date Joined Nov 2008
Total Posts : 4226
   Posted 12/22/2010 12:28 PM (GMT -6)   
 
Spanish study looks at adverse affects of treatments at 3 years for surgery, ERBT and seeding.
Basic conclusion is that the adverse affects of all treatments are understated by doctors advising their patients.
JT

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 12/22/2010 2:54 PM (GMT -6)   
Not surprising at all.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18 months) undetectable
Latest PSA test (21 months) .005

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/22/2010 3:09 PM (GMT -6)   
I completely believe that instantly.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/22/2010 3:45 PM (GMT -6)   
I agree with this article. I think just about anyone you talk to about their treatment option is going to do a lot of sugar coating. As it is, honesty is probably bad for business.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Post Edited (TC-LasVegas) : 12/22/2010 4:50:20 PM (GMT-7)


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 12/22/2010 5:48 PM (GMT -6)   
No doubt about it!

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3742
   Posted 12/22/2010 7:31 PM (GMT -6)   
"What both studies show, however, is that there is a high level of long-term effects associated with the various invasive treatments widely applied for the first-line treatment of localized disease, and that these effects may well be more common than individual physicians tend to suggest when speaking with their patients. "

No truer words were ever spoken....
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
" 61: 5.2
" 64: 7.5, DRE "Abnormal"
" 65: 8.5, " normal", biopsy, 12 core, negative...
" 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
" 67 4.5 DRE "normal"
" 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT, Dec

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3746
   Posted 12/22/2010 9:01 PM (GMT -6)   
My experience has been different and hopefully better than most. I was right upfront with my urologist and rad-onc regarding treatment and side effects. I told them if they aren't straight with me they are fired. They are not to sugar coat, downplay, or hide things from me. They laid everything out in great detail and with a lot of diagrams. They explained side effects and I have not experienced anything as bad as they told me to expect.

When my urologist told me about surgery and cyro he esentially said that surgery would likely leave me incontinent and impotent and that cryo definately would. He also suggested against both in my situation. My rad-onc told me to expect symptons similar to irritable bowel syndrome and suggested I reduce the leafy greens and roughage. I did neither and have not had any bowel problems. Both my docs are right at age 40, very straightforward, friendly and interested in me as a person, and absolutely no nonsense.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6948
   Posted 12/22/2010 9:21 PM (GMT -6)   
JNF,
 
To a degree, you may be more normal than you realize. I did record all my sessions with the various doctors, and realized later in listening to them again that they did tell me more than I heard. My theory is that we are in such shock and disbelief that we miss a lot of what was said, and miss opportunities to ask key questions.
 
On the other hand, I am not surprised that doctors fail to dive into the bad and worst-case descriptions. How many of us have read the document that comes with a sample of Cialis? Pretty gruesome stuff, if you are a 2% guy.

April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 12/23/2010 10:01 AM (GMT -6)   
My 2 Uros both just touched on the two big side effects - ED and incontinence, and didn't mention the possibility of all the other things that happen less frequently.

Plus, in discussing ED, when I was given percentages of patients who don't have ED after recovery, they didn't tell me how they redefined ED (cannot have natural erection, adequate for intercourse, at least once a month. The medical definition of ED and the practical, understood definition had a big gap.

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean
PSA tested on 7/15/10: Zero Club membership card issued (trial membership with 90 day renewal)
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