This sucks part 2........

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volv9300
New Member


Date Joined Dec 2010
Total Posts : 15
   Posted 12/27/2010 2:48 PM (GMT -6)   
After receiving many posts I have decided to do a quasi journal here in the hopes of reviving my attitude. Just something to do rather than sit a round and think. No need to reply or even read this. Just my attempt for sanity. So here we go.

Cancelled my appointment with the oncologist. Can't do anything about it for 2 months anyway so for now ignorance is bliss.

Got my Path results today and here they are. Gleason score is 9 poorly differentiated. Margains uninvolved, Lymph-vascular involvement..present seminal vesicle invasion present. I have always scored high when doing testing!

Random thoughts..........

Wife and son are here for me and don't mind my diaper and pads. This is a plus. I hate pads enough for all of us.

My attitude cant be any worse right now and can only go up.

I don't even take vacations so this down time has been a curse. It's cold windy and a fence blew down at my farm and I can't fix it.

Won't be able to do my job for weeks, and will be challenging as I own my own auto detail shop and it is very physical work. I may only work on cars with a leather or vinyl interior with current incontinence issue!

I can't stand tv.

I have good dogs, all rescues and all different.

Wouldn't wish this on anyone ever.

It's true.....better to be pissed off than pissed on!

Bye

BobCape
Regular Member


Date Joined Jun 2010
Total Posts : 416
   Posted 12/27/2010 3:39 PM (GMT -6)   
Volv.
I know, it's f'd up man. I know.

I had my 1st rad session today, and others here talking about bubble farts or something being a possible result.

Waiting for customs to let my ER pill get through since the legally require insurance dont cover this "recrational" drug, even as the surgeon who sliced me up says I need it.

I only have to carry a few diapers around, in case.. because I worked my arse off trying to regain control. Now radiation is likely to set everything back.. just in case it helps me live a little longer. I was taught to stay away from radiation.

Tough to keep stuff off your mind when every friggen turn is another nightmare. I know.

BUT THEN AGAIN! YOU SAID IT BEST "Wife and son are here for me". They gotta be worth trying trying trying as best you can! YOU NEED TO BE THERE FOR YOUR WIFE AND SON!

I'm Praying for you too!

If they dont like me saying that let em kick me out.

Auburn1965
New Member


Date Joined Dec 2010
Total Posts : 6
   Posted 12/27/2010 4:03 PM (GMT -6)   
Hey Volv,
I read a guys story on another forum where he attributes his "continence restoration" to all the bending up and down he did while re-modeling a bathroom post-surgery.
So, put on double diapers and start detailing those cars! (Volvos? I assume)
That is hard work and a side benefit might just be less dripping after detailing a few dozen SUVs.
But, what do I know --I 'm a newbie too.
What state are you in? I've got a 2004 Volvo XC-90 with leather seats & a non-factory Urine Aroma already built in / I'll drive over & help with that fence. :-)
Michael F. Age 67
Dx Aug 2010
PSA went from 3 (previous 3 years) to 5.2 on annual exam. Velocity over 2 :-(
DRE pos 1 lobe
Biopsy -Bostwick Labs -6 of 12 cores Positive
1 core 2% Gleason 8
4 cores 3+4=7
1 core 3+3=6
Non-nerve sparing RALP with wide margins- Oct 2010
Post-Op Path down-graded? Different local Lab
Gleason 7 4+3 20% Tumor
Margins & nodes Clear

Skate
Regular Member


Date Joined Oct 2010
Total Posts : 424
   Posted 12/27/2010 4:30 PM (GMT -6)   
Hi Volv:
 
To start,  I have a 2008 Volvo C30 which I absolutely love.  Got it right after my LRP in March of 08.  Started radiation in September 2009 for three months. In November of  this year I began Hormone Therapy (three month injections of zoladex here in Canada).  Each treatment has it's drawbacks and... setbacks,  but it certainly hasn't changed my life because I choose not to allow that to happen.  Some things are just different but they definitely beat the other option of sitting around waiting for things to worsen.  I believe exercise, proper rest and diet have worked for me.  These have kept my attitude positive and I also feel that is key to quicker recovery.  Sure,  I get really down at times but then I kick myself in the a--  a few times and I'm almost good as new.  Keep thinking positive thoughts and do something rather than sitting around feeling sorry for yourself, as occasionally I catch myself doing.  I've been through a lot of this "stuff" already  and am sure there will be more yet to come. I'm waiting for the side effects of HT to set in if any are lurking down the road.  So..."Pad up" and get out there and start detailing those cars.  They need you if weather is anything like here in Canada right now.
 
Jack 

Age 59 at Dx
01/08 PSA 4.17 with node on prostate(doubled in a year)
03/08 RP - PSA 0.0 for one year
Total ED / pump / pills no effect
09/09 RT PSA .14 / 36 treatments
Total ED / pump / pills no effect
08/10 PSA .6
10/10 PSA 1.67
08/11/10 PSA 3.44 HT recommended asap
16/11/10 Casodex for four weeks
30/11/10 First injection Zoladex

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 12/27/2010 4:34 PM (GMT -6)   
Hey Volv,

If you're within one pee pad distance of my place in Western NY, I'll help with the fence, too. You supply the post hole digger and the Pom juice and I'll do the rest.
But decide quick. I've got 14 days before my surgery then I'll be out for the count for 6 weeks.

Jeff

You'll soon find that "support" comes in many forms.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 12/27/2010 5:28 PM (GMT -6)   
Volvo,

Hopefully you.will reach point in your recovery that you will discover that laying around being pissed off and on, really gets you nowhere. As bad as it may seem, we don't have to look very far to find folks with a whole lot worse situations than us.

For one we have had a lot of good years to enjoy, and most likely will have a few more, at least statistically it says so. Think of those who were born with birth issues that have never had the opportunity to run, see ,or hear, or do the things we have done. I find for myself that it makes me feel a little less put out.

Think of those who don't have a wife or family to help them through these times. That really would suck.

Think of those in third world countries who don't have the access to health care that we do, and first of all don't live much beyond 40, and if they did would just die of PC, never knowing they had it, just dying a slow painful death.

Just read more of the posts hereof guys who are going through some really tough trials, at young ages. Read the post about Willie.

Don't get me wrong, I'm not saying it doesn't suck. But you've still got a lot of living to do. Go work on your cars. Take someone with you, and go fix the fence. Supervise.

I am a Gleason 9. Many guys onn here are Gleason 8 or 9. Life does go on. It took me 8 months to stop leaking. I wore a clamp for a couple of months so that I could climb up on cranes and equipment and repair them. We just do what we have to do.

Don't let this SOB get you down. It ain't over til it's over. Make sure you tell those you love that you do. Take another sniff at the roses. Watch the sunsets a little longer. Enjoy life. Life is good, every last second of it.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Highwayman
Regular Member


Date Joined Sep 2010
Total Posts : 148
   Posted 12/27/2010 5:56 PM (GMT -6)   
Volv,
darn right, bad test to score high on. Bet you didn't study.
Sorry to hear about the fence. It is frustrating. First week after my surgury my roof leaked and the company that intalled it (50 year warranty) went belly up last year.
Good place as any to rant. Many of us have simmilar issues and we do care.
take care
Mike
Age 48 w/diagnosed
10/06 PSA 3.0
11/06 PSA FREE %13.2
10/07 PSA 3.4
12/07 Biopsy-neg
1/09 PSA 4.6
6/09 psa 5.8
2/10 psa 8.7
7/10 PSA 10.8
8/2010 3rd biopsy GG 3+3=6, one of eight cores -2%
Lap 10/22/10 Dr. Troxel
Path- Neg Margins, Gleason 6, Nerves spared, 85 gm
Cath out Nov 2, Dec 2nd 2 pads/day

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 12/27/2010 6:08 PM (GMT -6)   
Volv,
Chill out for a while and just think of recovering from the surgery. I highly recommend walking or any other kind of exercise. Avoid caffeine, acidic drink and spicy foods and do pelvic floor exercises. continence will come back with time. It took me 4 months before I stop wearing a pad. Try to tackle one problem at a time, there are many on this forum who have had similar pathology reports who are fighting back. Good luck.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18 months) undetectable
Latest PSA test (21 months) .005

Julietinthewoods
Regular Member


Date Joined Sep 2010
Total Posts : 309
   Posted 12/27/2010 6:11 PM (GMT -6)   
Plus, you still have your sense of humor!

I wish you well, Volvo.

Juliet

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 12/28/2010 8:42 PM (GMT -6)   
Hi Volv,
Sorry about your luck. It does suck but we play the hand we are dealt. I was 42 at the time of my dx. Psa over 3200.00. Glad you found us though. I am torn really. I never had the chance at a cure. Surgery was not an option. Sorry your peeing in your pants. I wish I had at least had the opportunity to give surgery a chance. They told me it was a death sentence. They gave me a year. I am 47 now and I have fired 3 different doctors. I have metastasies in my bones lungs and lymph system. I dont wet my pants. I never have. My little guy doest work without meds but the meds do work. I wish I had other options but dude now is not the time to be a cowboy. You will do whatever it takes to be there for your family as long as possible. Get right with yourself and get your head on straight. It may suck to wet yourself and need a diaper but I pray to God ever day that I live long enough to need a diaper. Todd

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 12/28/2010 9:13 PM (GMT -6)   
^^^
Todd, You're Our Hero!

I'd be honored to send you diapers. Hopefully by next month I won't need them any more. Jeff

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 12/28/2010 10:11 PM (GMT -6)   
I second that comment "Todd, You are Our Hero"

Thanks for posting.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 12/29/2010 12:05 AM (GMT -6)   
Todd,

Wow, and wow. Truer words were spoken. Continue to wish you the best, but hopefully you can skip the wetting your pants part.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01
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