Overwhelmed -- Gleason 9

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Concerned4You
Regular Member


Date Joined Dec 2010
Total Posts : 94
   Posted 12/30/2010 7:30 PM (GMT -6)   
Okay- so he has been diagnosed with prostate cancer--- and not only were we shocked since he found out at a routine physical but now we have to worry it may have spread to the bones?
 
Any advice/comforting thoughts/anything --- would help -- here is the background.
 
Prostate checked at a routine physical 5 years ago -- normal
Prostate checked recently -- PSA 9.7
Biopsy reveals cancer in every sample (11 of 14 cores --- whatever that means??)
Gleason Rating 4+5=9 (doctor says every sample showed cancer and is concerned as it is aggressive)
Bone Scan showed "three potential spots"  -- -what does this mean?
Awaiting results of CT scan...
 
Next doctors appointment after the holidays....
 
Has anyone else found out they had (or their loved one) prostate cancer of a Gleason Rating of 9 ---- we are concerned as he had not had his prostate checked in 5 years and now are told this is the aggressive type....
 
Doctors reccommendation is surgery and possible radiation --------------
 

In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 12/30/2010 7:41 PM (GMT -6)   
Welcome--you will receive many responses from all the great guys here. You will find support, experience and lots of caring.
(Bear's stats) Age 49
8-4-09 Family Practioner for back pain PSA 4.9
8-20-09 Consult with urologist PSA 4.89
9-2-09 Biopsy 3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed Path report cancer contained neg. margins
2-22-10 PSA 0.01 !!
3,6,9 month
and 1 year post surgery PSA 0.01
12-2010

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 12/30/2010 7:50 PM (GMT -6)   
Welcome to Healing well and sorry you have to be here. The biopsy result is not what any one wants. I had 2 cores out 12 one with with Gleason and one with Gleason 9. The bone scan shows metastasis so that eliminates some of the treatment options. You need to check with a good prostate oncologist to see what is the best way to go. In all likely hood he will be put on Hormone therapy which is the standard for this kind of situation. There are many men who survived a long time with similar situation. One recommendation is to send the biopsy slide to John Hopkins to confirm the report. Good luck.

Sancarlos
Regular Member


Date Joined Feb 2010
Total Posts : 242
   Posted 12/30/2010 7:58 PM (GMT -6)   
I was equally shocked in July 2009 to find that not only did I have PCa but that it was Gleason 9 and in 6 of 6 cores sampled.

My urologist also recommended surgery but after conducting my own research and looking at the odds that the PCa would not be confined to the prostate itself I decided that better treatment would be seeds followed by IMRT, and also hormone therapy for a couple of years.

It is important to understand that if the cancer is not confined to the prostate surgery will do nothing but weaken the body and make any subsequent radiation harder on the body, and with a Gleason 9.7 and the number of core samples you need to understand that there is a fair chance that the PCa is already out of the prostate capsule. The question you need to ask is, why bother with the surgery if you are going to have to also do radiation later? That makes no sense to me at all.

I would suggest that you try to make an appointment with a medical oncologist who specializes in PCa. I think you will get a better take on the options for treatment from someone with no bias either toward radiation or surgery.

There is always hope for men with Gleason 9. At 1.5 years after diagnosis I am doing very well, though my risk for the future remains high, and will always be there because of the possibility of micromets that can not be detected at this time.

Sancarlos
Age 66, PC diagnosed 7/2009 at age 65
Stage: T2c, Gleason: 9 (4 + 5), 6 of 6 cores positive
Bone, CAT and MIR scans negative

Treatment: brachytherapy (103 palladium), 100 gy, 11/2009 + ADT3 (Lupron + Casodex+Avodart) + IMRT on Novalis, 45 gy, 3/2010.

PSA: 7/2009, At time of diagnosis -- 11.9
10/2009 -- 5.0
12/2009 -- 0.56
5/2010 -- 0.15
8/9/2010 -- 0.06
11/2010 -- 0.013

Post Edited (Sancarlos) : 12/30/2010 6:01:34 PM (GMT-7)


Concerned4You
Regular Member


Date Joined Dec 2010
Total Posts : 94
   Posted 12/30/2010 8:23 PM (GMT -6)   
Hello All:

Thanks for the replies and words of encouragement. I guess I should clarify we have not received "official" word on the bone scan. The lab sent him a copy which said there were 3 potential spots (it didn't eloborate on potential spots of what). We are wondering if they could be arthritis or something else? It did say all else looked like normal bone aging.

He is convinced (at this point) that he will have surgery as the doctor has reccommened it. However, once the bone scan and CT results are revealed I'm not sure if the doctor will recommend the same treatment?

This is all pretty new as positive diagnosis just came last week.

proscapt
Veteran Member


Date Joined Aug 2010
Total Posts : 644
   Posted 12/30/2010 9:22 PM (GMT -6)   
Sorry to hear of this difficult news.

The bone scan is to look for signs that the cancer might already have metastasized (spread). If it has, hormone therapy rather than surgery would be the appropriate treatment. There are a lot of things that could cause "spots" on the scan other than cancer. So don't jump to any conclusions until you get the official results and have a chance to talk to the doctor. They are still **potential** and not confirmed at this point. There are many possible explanations.

Do not rush into surgery without knowing more and getting another opinion. There is a tendency for doctors to recommend the treatment that they themselves provide, even if it is not the idea approach. I encourage you to read Patrick Walsh's guide to Surviving Prostate Cancer. I second the advice given above to have your slides read at Hopkins or some other leading cancer center. Please feel free to come back here and post all your questions and concerns.

Good luck...

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/30/2010 9:42 PM (GMT -6)   
I too was diagnosed with a Gleason 9. There is no sugar coating it, it is a nasty diagnosis, but, it is not an automatic death sentence either. With a PSA less than 10, you apparently have caught it a little early.

I would recommend a second or third opinion, not so much for e diagnosis, but the treatment plan. If you live close to a major cancer center like Mayo, or Johns Hopkins, etc, I would go there. I definitely would consult a radiation oncologist before I had surgery.

It will be important to determine if the PC has escaped the prostate capsule. A color doppler ultrasound is a very useful test to have, but they are not readily available in many cities. IF it is felt that the PC has escaped, then it may be prudent to advance to radiation and hormone therapy. Surgery is brutal on the side effects, and most likely will not cure the cancer if it has escaped. The radiation has a better reach into the surrounding area.

Above all, take time to learn. Read some books that are listed in the top of this forum, do some research on the Internet, talk to people, learn all you can. The worst thing you can do is rush to a treatment choice. You have time.

Stay with us, ask all the questions you want. Let us know how it is going. We do care.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Post Edited (goodlife) : 12/30/2010 8:01:28 PM (GMT-7)


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 12/30/2010 9:46 PM (GMT -6)   
Welcome to HW. The scan might show something other than mets, so I would not jump to the conclusion at this point. While his PSA is high it is not out of the park high. My Gleason was 7 after biopsy and upgraded to 8 after surgery. The others have given you some good feedback and I would support second and third opionions. You are asking some good questions and the more informed you are the better you will feel about your choice. Hope that his scan is negative for mets and keep us posted as possible.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA .2

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3781
   Posted 12/30/2010 11:06 PM (GMT -6)   
The bone scan, at this point, is not very reliable..Many other factors can give false positive readings..

Recent studies have shown that surgery, even in cases where metastasis may have occurred, is still worthwhile unless the doctors are CERTAIN the cancer has spread widely..Cases like ours are called "High-Risk" and radiation and hormone therapy following surgery are almost guaranteed..

High-risk patients have had excellent results with a combination treatment of seeds and beam radiation..Not possible with all patients, it's worth looking into...I also recommend reading the books mentioned to get a far better background. To answer your original question, Gleason 4+5=9 is indeed aggressive, dangerous cancer. It needs aggressive treatment to cure it or at least keep it in check...
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
" 61: 5.2
" 64: 7.5, DRE "Abnormal"
" 65: 8.5, " normal", biopsy, 12 core, negative...
" 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
" 67 4.5 DRE "normal"
" 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RRP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT, Dec

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/31/2010 12:03 AM (GMT -6)   
Another warm welcome to Healing Well. I'm sorry for the reason for you to join, but there are many here, as you have seen, to lend support and caring.

It is wise to get second and third opinions whenever faced with these kind of serious decisions. Your current doctor should support your other inquiries.

My two cents worth of advice is to take each individual recommendation as it comes.

For example, your current doctor has recommended surgery. Find out why he/she recommends this option in your husband's particular case among other options. Ask about the likely success of each treatment. The same would go for those who recommend other options when you make further inquiries. Take all of it in so you and hubby can make your very own decision that is right for you.

All the best,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Post RP Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; 6/'10 <0.01;Latest PSA 12/'10 <0.04

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/31/2010 4:36 AM (GMT -6)   
Concerned

Welcome to HW. There is a wealth of info and support here.

You mentioned: "The lab sent him a copy which said there were 3 potential spots (it didn't elaborate on potential spots of what). We are wondering if they could be arthritis or something else? It did say all else looked like normal bone aging."
My scan came back positive too - in my shoulder. I had been shooting my shotgun at some pesky squirrels a few days before the scan and that was where I rested the butt stock.
After speaking with the doc and going over the results he decided to do a retest. I had to drink that dye again - yuk. It came back negative. Whew.
The darn squirrels had their revenge.

The scan can show positive at the site of previous or current injuries. Your doc will discuss each location with you. Any serious physical activity will do it too.

This is not a good situation to be in. But, you are not the first nor will you be the last. There are lots of guys here in a similar position. They will jump right in and help you out. Good Luck to you both.
Jeff
------------
Age 56 at DX, PSA 23 , G7, Biopsy 7/12.
DaVinci 7/2009. All follow-up PSAs <0.01.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/31/2010 9:10 AM (GMT -6)   
Plenty of unknowns in the PCa and less than perfect science surrounds us completely. The possible good news is you might fair better than it seems. I had terrible stats and total urinary blockage caused from PCa in early 2002. Hit it hard with protocols early on and so far coming up on year 9 now and so far (knock on wood) has exceeded my expectations for living and still doing well (thus far). See my stats below, note the 12/12 cores all 75-95% and psa, and Gleason scores....I probably shouldn't be here.

Another example of fairly good response with serious PCa is TruemanSeaman, psa 4212 and lousy prognosis...lived 10 yrs. using some righteous doctors and protocols. His story is posted at www.yananow.net

www.yananow.net/Mentors/TruemanS.htm       (other mentors stories there too)
 
Dr. Fred Lee's story is incredible, diagnosed 27 yrs., ago, failed cure 2 yrs. later, still living at age 80, been living 25 yrs. with non-cureable PCa. (weblink available too)
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Post Edited (zufus) : 12/31/2010 7:15:24 AM (GMT-7)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/31/2010 11:38 AM (GMT -6)   
Welcome to HW, sorry you have to be here. A tough diagnosis but lots of options are open to you, so don't get discouraged..
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RRP, Path: pT2c, 110 gms., all clear except:
Probable microscopic involvement of the left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09- Uh-Oh, next in Jan & Feb.
ED-total-Bimix 30cc

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 697
   Posted 12/31/2010 12:35 PM (GMT -6)   
In my case I had PSA and DR every year.  Then got slammed with a PSA of 15 on finasteride (which means you have to double it), Gleason 9. Had robotic prostatectomy this past September and went to .06 PSA three weeks later, .03 six weeks, and 0.00 at 12 weeks. 
 
The important thing, as many have said on this thread, is to do your homework. You and your husband must work as your own advocates. Talk to people and monitor or post on this forum.  I have found that when you post a subject you will get a miraid of answers. There is a great deal of experience on this forum and that is what you need to help you and your husband make an informed decision.  The only question that is silly is the one you did not ask.  
 
 
 

John T
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Date Joined Nov 2008
Total Posts : 4235
   Posted 12/31/2010 1:02 PM (GMT -6)   
A couple of things you might want to look at before choosing surgery is an MRIS which can show if any of the tumor has escaped the capsul and a PAP test. PAP is one of the best indicators that the PC has excaped the prostate. Also a 2nd opinion on the slides with a ploidy analysis to determine varients.
If there is any indication from these tests along with the bone and CT scans that the cancer may not be contained then surgery will just be a debulking procedure that won't result in a cure. With a Gleason 9 and extensive core involvement the chances are very high that the cancer is elsewhere in your system and you should take a very hard look at starting Hormone therapy. A combination radiation and seeds can also work as a debulking procedure. As someone already mentioned radiation is most likely somehere in your future anyway, so you have to look very closely at the need of having surgery along with the other treatments.
JT
65 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, no side affects and psa .1 at 1.5 years.

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 697
   Posted 12/31/2010 2:11 PM (GMT -6)   
What helped me, and I am sure many will not agree, was the fact that once you have radiation, hormone therapy, etc. it is difficult to have a succesful prostatectomy.  As I mentioned my Gleason was 9 PSA up around 30.  In all probability it had got into the system.  If I was able to push a rewind button I would probably have done what John T suggested in the way of additional tests.
 
 

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/31/2010 2:13 PM (GMT -6)   
More reply stuff: get a copy of your actual pathology report yours by law in the USA, demand a copy from docs office, period. Then look at it carefully and post info herein for more inputs. The spots thing, means possible 'hot spots' areas that could be cancer tumor areas...not always easily defined I might add. The cores, samples taken 14 total and 11 of those found with PCa...should have various volumes %%% shown and might have different Gleason scores, but your combined score is apparently a 9 our of 10 point scale. John T gave you info about further tests that can be worthwhile, Pyrilinks D is another test that some onco-docs use.

My stats were worse than yours and Dr. Menon refused to do surgery on me...at the time I didn't know just how high a risk patient I was back then. He is a righteous guy, another surgeon said curative and ready to sign me up that day...he got fired immediately too. I got 6 more opinions before making huge decisions and it was worth it and insurance paid it all.
Good luck to you.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 12/31/2010 4:22 PM (GMT -6)   
Wellcome to the group. I know that you will find information here that will help in dealing with the road ahead.
ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent after 3 mo. PT
ED, pre-op severe, post op total
10/10 Dr Boone, Baylor recomended AUS
AUS and IPP scheduled 1/11/11
post op psa's 0.04,<0.1,<0.1,0.01@12 mo.

cyrus1
New Member


Date Joined Dec 2010
Total Posts : 17
   Posted 12/31/2010 8:04 PM (GMT -6)   
I just got on this website today.63 yrs old, gleason 8 positive 90 per cent on 10 biopsiys. have 5 more radiartion treatmrnts left out of 44 and have done 4 one month shots of lupron. Want to get off lupron asap, all sideeffects getting to me . Doctors want up to two years of this but I can immagine. How dangerous is doing only 6 or eight months and what is another alternative if anyone has thoughts. Thanks freaked out and steepless from sweats and hot flashes

sv
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 12/31/2010 8:58 PM (GMT -6)   
Last September I too was a Gleason 9 and after careful research determined that getting that beast out of my body asap was critical. A recent convert of integrated medicine, we immediately took out of our diet all sugar, dairy products, red meat and switched to a completely organic diet of fresh fruits and vegetables with delicious meals of wild caught cold water fish, chicken and eggs. We also loaded up on cooked tomatoes for licapene and a variety of other antioxidants like green tea and blue berries. What actually worked? We don't know but we do know that we ate like my life depended on it. And so it did.

Added to that was a rock solid belief that when disaster strikes us, we are given the tools to prevail...the choice is ours--to stand and fight or lay down and die. Which will you choose?

Next was finding the best surgeon in our area because a DaVinci robot meant nothing to us in the hands of someone without at least a few thousand surgeries under his belt. We chose Dr. Mark Kawachi at City of Hope near Los Angeles. During the five weeks between diagnosis and surgery, via meditation and super positive attitudes, we convinced our bodies, souls and minds that the beast was in fact, in remission.

The morning of surgery, as I shook hands with Kawachi while nurses were busy plugging needles and tubes into my nether regions, I looked him in the eye and said that as far as we were concerned my cancer was in remission and that I was only going along with this to humor him. The staff was further surprised when I added that my post surgical biopsy would reveal a lowered Gleason score.

Eight days later when they removed my catheter, not only was I water tight but three nights later we had sex with a 3/4 erection compliments of vitamin V. Best of all...post biopsy Gleason went down, not to an 8 but a 7! All margins and lymph nodes were clear and completely organ confined. First lab test was with Bostwick and the second was City of Hope so an error was nearly impossible.

Your bone scan showing suspicious blobs? Forget about them until something is conclusive and then, even if there is a problem, your fight is far from over. It is just beginning. But I say to you my brother in our battle with this hideous monster, THINK POSITIVE AND DON'T YOU EVER DARE GIVE UP!

Concerned4You
Regular Member


Date Joined Dec 2010
Total Posts : 94
   Posted 1/1/2011 11:38 AM (GMT -6)   

Thanks all... here are the stats from the biopsy report.

Overall Gleason Score: 4+5=9, 30% of biopsied tissue, 11 of 14 cores positive, Site specific findings: 4+4=8, 3+4=7, 3+4=7, 4+5=9, 3+4=7, 4+4=8

Comment: Two different morphologies are present with a high grade carcinoma present in the biopsies of the base.

Bone Scan Lab Report: "Abnormal three potential spots of osseous metastases" <-- note docotors appointment next week to go over results of CT scan, Bone Scan

 


volv9300
New Member


Date Joined Dec 2010
Total Posts : 15
   Posted 1/1/2011 1:04 PM (GMT -6)   
Hey there I have a post op gleason of 9. Have gone through depression, thought all of this sucks and found that I have lymph vascular involvement and seminal vesicle involvement. All from a healthy strong guy with 0 symptoms. Hell I hadn't even had a cavity in 25 years!!! Now I am incontinent, have complete ed as it has not moved since the morning of surgery. Now I have radiation and perhaps(Hormone therapy havnt decided on this part). Look, many go through a time when it is scary and the quality of life post treatment comes into question. You must gather your inner strength and decide how you want to proceed. You may need help. This site is helpful, family is very helpful and friends also can be a support. This is a desease and even though I currently have 0 bladder control and can't get it up, I'm telling you that I will be alive years from now and am still every once of a man than before this mess was laid on my lap. Be worried, be scared, wonder if you can still be a man. Then move forward with all the confidence you had pre diagnosis, and kick it's ass!!! Volv

daveshan
Regular Member


Date Joined Jan 2010
Total Posts : 363
   Posted 1/1/2011 1:15 PM (GMT -6)   
As of today I'm 10 months out from my open surgery, I was initially a G-9 but later reduced to an 8 (4+4 with tertiary 5) It's scary as heck and my initial prognosis wasn't great but I've had undetectable tests so far with another one due around the 20th, and things are dry and working, so far so good.

You won't know what the future brings 'till it gets here, please keep a positive attitude for both yourself and him, it does wonders.

I won't give advice on what direction to take but I will say talk to all the Dr's you can and do lots of research. Don't let any one Dr railroad you into any procedure 'till you are comfortable it's the right one.

Best of luck
Dave in Durango CO
Diagnosed 12-09 age 55
07-06 PSA 2.5
01-08 PSA 5.5 (PCP did not tell me of increase or schedule follow-up!!!!)
09-09 PSA 6.5 Sent for consult with Urologist
11-09 Consult, scheduled for biopsy, found out about PSA from '08 (yes I was pissed)
12-09 Biopsy, initial Gleason 9 (4+5) later reduced to 8 with tertiary 5, ain't much but I'll take it.
01-10 Bone Scan, "appears negative"
03-01-10 RRP in Durango CO by Dr Sejal Quale and Dr Shandra Wilson, no naked eye evidence of spread, Vesicles and lymph nodes taken for microscopic exam.

03-16-10 Removal of cath' and pathology results of samples.
Multifocal carcinoma with areas of Gleason pattern 3, 4 and 5, Overall Gleason grade 4+4 with tertiary 5, Bilateral involving 21% of left lobe, 3% of right lobe, Invasion of left Seminal vesicle, Tumor focally present at left resection margin, 9 lymph nodes removed all negative, Tumor staging pT3b NO MX

04-23-10 PSA <0.04....... 06-07-10 PSA <0.04..... 08-03-10 <0.04
05-03-10 1 week without pads
06-28-10 ;-)

TTaylor
Regular Member


Date Joined Nov 2010
Total Posts : 102
   Posted 1/1/2011 6:20 PM (GMT -6)   
You are among the best of friends. Sorry you have to be here, but know these are some of the finest and most knowledgeable guys and gals on earth. I would recommened reading "Surviving Prostate Cancer" by Dr. Patrick Walsh. This book really does put many things into perspective. Please keep us informed on your journey, and we wish for you and your family the brightest of tomorrows. Happy New Year.
TTaylor
Age 67. Robotic prostatectomy 10/26/2010, due for RT in Janury 0f 2011. Eight of 12 lobes positive. Gleason Score 4+4=8, Margin envolvement was present with adipose tissue invasion and perineural invasion, glandular and stromal hyperplasia present,pT3 pNO and no evidence of metastatic adenocarcinoma. 1st psa after surgery Nov. 24, 2010 was .3
HT started Nov. 24, 2010.

alf203
Regular Member


Date Joined Jun 2010
Total Posts : 52
   Posted 1/1/2011 7:28 PM (GMT -6)   
welcome; what you need to know is that you have time for a 2nd -3rd opinion, you need to find a doctor that you can talk to and ask question  and find out all of the treatment and there sideffect so you can make your decision on what treatment is good for you.  good luck  alf
AL - 49 Feb 09 dx PSA 118 Gleason score 5-4=9 cores 11-12-100% Stage T4m Cat Scan -mri -Bone scan/ caner spread - spine/lung/liver. Treatmen; casadex + trellstar 3 months PSA droped to .054- pulled off casadex .8/09 PSA 7.43 12/09 PSA 11.65 started lupron/ new drug tak700 1/10 PSA 7.81 -2/10 4.95 4/10 3.34 7/10 [4.02] 8/10 4.4 now upgraded to [T4M1C ] 10/10 psa 5.81 - 12/10 psa 7.47
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