Just wanted to give an update on my AUS that was activated right before Thanksgiving.
That night (Thanksgiving eve) I went to bed without a bed pad/depends for the first time since I had my Bladder removed due to Bladder Cancer. Though I wore a thick pad, I felt it would be ok. And it was. I bought a Timex and set it for four hours (which I still do today) I get up once or twice a night to void just in case of leakage. I do not have a urination urge since I have a Neo-bladder.
My timer goes off every four hours as a reminder to head to the bathroom. If I am walking by the bathroom, and I see I have one hour left, I go anyway and just reset the timer.
I have practiced some things, what several of you have told me to try.
1. Standing at the urinal and do it standing using one hand without having to drop your pants or feel like you have to sit on the throne.
- I have learned just to pull up my shorts from below and then I have total access to the pump and can pee just like everyone else.. I just unzip, never have to unbutton.
2. Squeezing the pump just enough to partially activate without fully opening up the device.
-I do that almost all the time now. Since I have a neo-bladder (made from the small intestines) I do not have a muscle to force out the urine. However, when I press the pump, it unloads right then and there. When the stream lessens, I pump again once or twice. I can tell when the bladder is empty because the stream just stops. I do not have a sensation at all. I suppose my experiance is somewhat different than yours.
I am REALLY HAPPY with the AUS. I could not wear shorts, had a condum cath and leg bag on 24/7. I have started to run again. Did 2 miles this morning (my wife beat me!!)
I want to thank you guys for talking me through it. I mentioned to a fellow female Bladder Cancer lady that is having issues also and told her to read our blogs on this subject. Not many in the BC world, but a few would benefit from you guys and your experiance.
( I will have another surgery in Feb at Methodist Hospital in Houston) My neo-bladder has developed for some time several fistulas that have been removed but came back. They head for my abdomum and I have another one that hit the surface.