A good friend of mine writes articles for the Miami Herald. He is a surgeon near Miami and wanted to write about
the InfoLink just after he and Mike Scott started it. The article compared this finding of the Scythian King to how he must have been treated for his growing illness to how we might do it today. Here is the article from Arnon Krongrad:tinyurl.com/alq82v
I responded Arnon's paper with the following:
Great article, Arnon...
The internet has been a great source of information on prostate cancer for me and Ruthie. From the initial moments my urologist said “C” I was a bit dazed and confused. BTW my dx urologist gave me all the pathology stuff and medical records and told me “Take these with you, you are likely to turn to the web and ask questions, this will help you”. After four days of research (and a bone scan) I was much more settled in and understanding of my disease though I had a ways to go. Within two weeks I knew what I wanted to do and who I wanted to do it. When I showed up at the City of Hope for the first time, Dr. Wilson confirmed a second opinion, asked me question after question for which I fired back answers indicating that I “was well informed” and ready to proceed. I am smart enough to look past much of the useless information and get usable information. After nearly two years I am well equipped to continue my healing. But, I fall in the general population. Do we have a ways to go with online counseling and discussion? Yes. Like you said we are on Health 2.0. Eventually, we will have Health XP and Health Vista and it’s already here to stay. You can see me as a study patient, but I see myself as patient and an advocate who speaks from the heart
openly. I like Health 2.0.
But I do have food for thought. The Scythian king’s demise was like so many today with late stage prostate cancer. The difference, in his case, between Soothsayer 1.0 and Health 2.0 appears still to be completely undetermined. We have found early detection to be a real aid in fighting this disease. But we have also still find late detection to be almost always a quality of life game versus a mystic cure.
The time you and Mike have given is very nice and it brings me peace knowing that a doctor wants to interact in the way you do in the Front of the Mask. To me it’s great networking. And that’s not a bad thing. See you at Happy Hour.
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas
Blog : www.caringbridge.org/visit/tonycrispino
Post Edited (TC-LasVegas) : 1/4/2011 4:48:25 PM (GMT-7)