Have you crossed over to the Twilight Zone areas of PCa?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/4/2011 1:48 PM (GMT -6)   
 
You can study this stuff literally forever and yet it may not give you personally the answers you are seeking, to know how is this going to effect me and/or when...etc.  Kbota recently posted the exact feeling of this living in limbo land and not knowing-ness.  Then say you add specialized drug therapies and how they may or may not work on a given patient or yourself...it gets more wild and fiction like than you can believe.  Now some of you don't have to cross this dimension of sight, sound and threshold of the Twilight Zone as you are are looking cured or have good looking total control. Even then don't turn you back on PCa or get to cocky (LOL-now there's the right word?)   This comes with lots of small print and no guarantees.  You will see abstracts contradict themselves or heavily biased or agendad and seldom done the way we patients would suggest...go figure...why ask us! 
 
 When you combine all aspects of PCa: diagnosis, psa, biopsies, pathology, nomograms, scans, protocols, various therapies....they all have there own issues of non-perfection and definitiveness.  Thus, it makes science fiction look just about equal or as much full of reality...thus the Twilight Zone...I think we should include it in our PCa vocabulary (LOL) along with 'Limbo Land'  (not knowing where you stand with psa changes or responses and duration of waitings).  Soon enough some new guy will join and his handle name will be Rod Serling or Twilight-Zoner or Limbo-Land, etc.    Considered that prophecy (lol). cool
 
Well maybe since there is a zero club and elsewhere a mile high club (lol), maybe we should start the Twilight Zone Club for those of us whom are held suspended in time with the unknowns of PCa.  Of course I wouldn't join club that would have me as a member (LOL!!!) smilewinkgrin
 
I do believe that 'Youth is Wasted on the Young'  (W.C. Fields)
 
 Oh I printed this off from another reply and now cannot delete it herein, so learn about this proceedure.

Cooled ThermoTherapy™/TUMT™ reduces BPH symptoms, preserves sexual function, and provides durable results using the Targis® system or the Prostatron® system. Treatment can be completed within 30 minutes, usually does not require anesthesia, and is performed in a physician's office or an outpatient setting.

In this treatment, a specially designed antenna inside a catheter is inserted into the prostate through the urethra. This antenna is used to direct microwave energy into the prostate to heat and destroy enlarged tissue. During the procedure, cool water is circulated through the catheter to minimize patient discomfort, protect adjacent urethral tissues from excessive temperatures, and reduce the risk for serious side effects.

Medication is often administered to reduce discomfort and help patients relax during the procedure. Many patients are able to read, watch television, or listen to music during treatment and some may experience the following:

  • Bladder spasms
  • Pressure in the rectum
  • Sensation of needing to empty the bladder or have a bowel movement
  • Warm or burning sensation in the abdomen or penis

Article Continues Below



Read more: BPH Thermal Treatments - Benign Prostatic Hyperplasia (BPH)/Enlarged Prostate - Urology Channel http://www.urologychannel.com/prostate/bph/treatment_therm.shtml#ixzz1ABWRQJCK

Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/4/2011 1:54 PM (GMT -6)   
zufus, that sounds like a terrible procedure. especially after spending a year and a half on 21 caths.. no way i could consent to that method.

agree with you on the twilight zone part, thats why it bothers me at times to see some get so dogmatic on certain pc related issues. too many variables, too many exceptions to the rules. never easy to decide anything.

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/4/2011 2:09 PM (GMT -6)   
Purg that was a reply to the guy you replied to whom was getting this therapy treatment, why not use drugs to eliminate BPH, myself would avoid invasive proceedures have perhaps more risks and you could always do that secondly if it were that big of an issue...but maybe I don't know enough about his BPH...so should not have an opinion and thus neutral.

Yeah you should pass out just at seeing a photo of a catheter (lol), I probably would after what you have been through.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/4/2011 2:17 PM (GMT -6)   
Hi zufus. With all due respect (I've offered my respect to you several times recently, haven't I? smilewinkgrin ), may I say that simply don't see the "twilight zone" perspective that you do.

I think that one reason may be that I don't look for, or expect, a guarantee from any medical procedure.

I understand the phenomena of naturally occuring variation.

I understand that statistics from medical studies describe trends in large (or sometimes small) numbers of people, and that statistics cannot be used to predict what will actually happen to an individual.

I understand that nomograms tell us about the general outcomes populations with similarly characterized cases, not specifically who will end up with what outcome.

To me. none of this is "twilight zone"...it's just science and nature.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/5/2011 9:09 AM (GMT -6)   
Casey~ no problems I am making it a metaphor and having a little fun with it, even though this is serious business.  I am making light of it alittle, PCa studied to intensely and empirically would drive most people off the deep end as one never seems to find precise enough answers...or definitives (even when you look cured...you don't know for a fact yet). 
 
Thus you live in a kind of science fiction scenario of the unknowns.  Some of our other brothers seem to be traveling into the zone, via what they are discussing and the paranoia associated with the unknowns can be overlwhelming for many, maybe not all. Just read many of the discussions on the forum for a doseage of that reality. 
 
Hey it's great people see things differently, otherwise we would all be robotic like and wouldn't need any discussions (lol).  Would be boring as $#*& in that world.   Anyway carry on, you have some decent information that you share.  yeah

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/5/2011 10:19 AM (GMT -6)   
OK, zufus, that's cool...I get it.

And probably our "regulars" get it, too.

Newcomers who visit here in the depths of their initial confusion...maybe not so much.

Anyhow, thanks for taking my response in the spirit in which it was intended. Too many people needlessly go off the deep end and such! ("and such" is my favorite zufus-ism; when bored, I've taken to counting the "and such's" in some of your more lengthy replies. Just kidding, of course, and such.)
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 3:01 AM (GMT -6)
There are a total of 3,005,360 posts in 329,224 threads.
View Active Threads


Who's Online
This forum has 161774 registered members. Please welcome our newest member, Audreyli.
226 Guest(s), 5 Registered Member(s) are currently online.  Details
Chask, bluelyme, Gemlin, Saipan Paradise, Daf