9000 posts for Purgatory

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An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1152
   Posted 1/6/2011 2:10 AM (GMT -6)   
Dear David,
 
Congratulations for reaching this landmark of 9000 posts - a landmark that only a few will ever get to.
Although some of this has had to do with your complex medical issues relating to PCa, many many of these posts are to support and welcome people to this site. There are not many places in the the internet that are as warm and caring and responsive and like a family as this site and you are certainly a person that contributes tremendously to make it so.
 
Thank you!
 
Regards,
An

creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 1/6/2011 3:10 AM (GMT -6)   
Ditto to An's message - thanks David for your posts of wisdom (and often a good dose of common sense which I appreciate). Three cheers for you happening on this end of the earth, as you are (probably) sleeping by now your end. Lana

Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 1/6/2011 4:54 AM (GMT -6)   
Good idea Lana-

Hip Hip - Hooray, Hip Hip Hooray, Hip Hip Hooray...........Well Done David.

.....................Kev

Post Edited (NotHard) : 1/6/2011 2:59:51 AM (GMT-7)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/6/2011 10:01 AM (GMT -6)   
Yeah, congrats on the milestone. Any bets on when 10,000 is achieved?
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 1/6/2011 10:13 AM (GMT -6)   
Congrats, David. That's an amazing contribution.
Age 65
Dx in June 2010.
PSA gradually rising for 3 years to 6.2
Biopsy confirmed cancer in 6 of 12 cores, all on left side
Gleason 7 (3 + 4)
Bone scan, CT scan, rib x-rays negative.
DaVinci 8/20/10
Negative margins; negative seminal vesicles
5 brothers, ages 52-67 ; I'm the only one with PCa
Continence OK after 7 weeks. ED continues.
PSA 1/3/10: 0.01

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 1/6/2011 10:42 AM (GMT -6)   
** Intended to be funny **
 
9000 posts - now get a life.

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 1/6/2011 10:51 AM (GMT -6)   
One of the amazing things about David's posts is that many of them were welcoming and/or supportive and written at times when David could barely stand the pain he was going through himself.  David has provided a caring shoulder for lots of folks who have come and gone from HW and I'm glad that An took the time to notice his contributions.
 
Now, as for James' bet, I don't want any part of that.  I think James took all our money on the "When will David be back?" lottery so I think James has inside information!  Or maybe he controls the counter!
 
In all seriousness, David, thanks for the time you take and the concern you feel for your fellow PCa patients and their families.
 
Best regards from your friend,
 
Tudpock (Jim)
Age 62 (64 now), G 3 + 4 = 7, T1C, PSA 4.2, 2/16 cancerous, 27cc. Brachytherapy 12/9/08. 73 Iodine-125 seeds. Procedure went great, catheter out before I went home, only minor discomfort. Everything continues to function normally as of 12/8/10. PSA: 6 mo 1.4, 1 yr. 1.0, 2 yr. .8. My docs are "delighted"! My journey:
http://www.healingwell.com/community/default.aspx?f=35&m=1305643&g=1305643#m1305643

TTaylor
Regular Member


Date Joined Nov 2010
Total Posts : 102
   Posted 1/6/2011 12:19 PM (GMT -6)   
Many thanks for your support on HW and congrats for the 9000 posts. We are proud to have a cornerstone like you on our team.
TTaylor
Age 67. Robotic prostatectomy 10/26/2010, due for RT in Janury 0f 2011. Eight of 12 lobes positive. Gleason Score 4+4=8, Margin envolvement was present with adipose tissue invasion and perineural invasion, glandular and stromal hyperplasia present,pT3 pNO and no evidence of metastatic adenocarcinoma. 1st psa after surgery Nov. 24, 2010 was .3
HT started Nov. 24, 2010.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/6/2011 12:54 PM (GMT -6)   
An, thanks for noticing. I was up late last night and didn't realize I crossed the next mark. And thanks guys/gals, I am not aiming for a record and there is no reward to posting a lot. I do my own thing here, I have taken a lot of support from here and I have given a lot of support here, so I figure it all works out in the end.

Some don't know, that I was a moderator for a brief period here, not long after joining, but I resigned for health and personal reasons. For me to be me, I have to be able to say what I am thinking from the heart. I try to be neutral, but can't always and still be true to myself.

I consider myself just another smuck with PC, and I happen to like to write, its how I best express myselfe. I am awkward on the phone.

We are a group effort here, doesnt matter to me, if someone posts 10 times a year, or ends up like me, we all contribute in all own way. And we couldn't do what we do, or say what we say, without the generous contribution of the site's owner, Peter. So the few times the few forumn rules have to be enforced by our moderators, we shouldn't be too upset, as we have so much latitude as it is.

This place means the world to me, literally. To me, the spirit of brotherhood and sisterhood here, is real.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

bsjoplin
Regular Member


Date Joined Feb 2010
Total Posts : 308
   Posted 1/6/2011 2:16 PM (GMT -6)   
Thanks, David, for who you  are and what you accomplish in your special way....Keep it up (so to speak)!
bob

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 1/6/2011 2:55 PM (GMT -6)   
David, I echo many of the above comments. Your caring and support has shown through countless numbers of times. You were one of the very first to welcome me here almost a year and a half ago.

Your words of support took me through some really dark and stormy days.

Thank you my brother,

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/6/2011 5:11 PM (GMT -6)   
bob, i am one of the lucky ones, the keeping it up part is a non issue with me, least something works right.

sonny, you been a great friend from day one, and our two visits so far in person has only cemented that
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 1/6/2011 5:15 PM (GMT -6)   
Way to go smuck. You are one of the first to welcome someone, even if can't answer there questions it's nice to be greeted.
 
 
Neal

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/6/2011 7:39 PM (GMT -6)   
Neal, there are plenty of PC questions that I have no experience with. You never see me answering ED or Incontinence issues. Its all a learning process. All I know is surgery and radiation stuff on the PC end. I don't like to pretend to know what I don't know.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 347
   Posted 1/6/2011 7:46 PM (GMT -6)   
I didn't mean that you answer questions that you don't have an answer for. I was trying to say it's just nice that someone greets you when you first join here. I don't have answers for most of the questions.
 
Neal

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/6/2011 7:55 PM (GMT -6)   
I was just being honest, Neal. The older I become, the more I realize what I don't know, despite all my life experience.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7082
   Posted 1/6/2011 11:27 PM (GMT -6)   
Recognizing the tone of "get a life"  :-)  
I'll add my response given when the tone isn't a joke (too many of my young friends an co-workers don't understand that they will be on this road someday) - "That's why I met Mr. DaVinci! To not die from Prostate Cancer. Isn't that getting a life?".
 
David has been there most every day, and was my "coach" through radiation. Must have accounted for a few hundred of those posts right there smilewinkgrin

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 1/7/2011 12:08 AM (GMT -6)   
I have a feeling I42 and Fairwind will be my coaches soon, thru SRT
 
Mel

lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 686
   Posted 1/7/2011 12:11 AM (GMT -6)   
 
The internet is a strange animal. idea   It provides interesting opportunities.  How else could one man COMMUNICATE with hundreds of friends 11 times a day for more than 800 + days?  What a record...
 
Did I get that right? yeah

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 1/7/2011 12:26 AM (GMT -6)   
David, the word I want to send you isn't "congratulations," it's "thanks." Good times, bad times, you speak with a caring honesty that makes it impossible for me not to click on any "Purgatory" thread.

I'm not looking forward to your 10,000th ---- I'm looking forward to 18,000 and beyond.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/7/2011 12:43 AM (GMT -6)   
Well, after all he is da man yeah Always a welcome to all and the forum is a better place for his much appreciated presence. 10,000 beckons.
Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/7/2011 2:05 AM (GMT -6)   
I was surprised when I saw that this thread had been started by someone. I hadn't thought of doing it, I knew I was closing in on the 9k mark, but didn't noticed the exact post that took me over the line. I am not saying that we are the only group here on HW, but I have had some dealings with other maladies here, and not all groups are as open, honest, friendly, and welcoming as we are as a group. Nor do they get the level of responses that we produce. It is a group effort, regardless of any particular number of posts. If nothing else, I like to think of it being a number we can all share to make our Prostate cancer stand out strongly, in support of our cause. Didn't realize until recent, that I am the 9th top poster out of 92,000 plus members, that really shocked me. Never set out to do that.

Have you all noticed that even since New Years, how many new members we have picked up? I am happy to welcome them all into to our family, but it brings sadness to my heart, that it truly is an endless line of men, or wives/daughters of men trailing in here, with no end in sight. The long term future has to get better for men, there has to be better research, better procedures, better meds, etc. It may not help most of us in this generation of PC patients, but gosh, if my sons ever came down with it, and I pray they don't, I can only hope they face a better future in dealing with, or my grand son's generation too.

Thanks, lifeguyd, I think you got the math part down pretty good! Sheldon, you have always been a good friend here, love hearing from you. And Billy Mac, sure would love to meet you in the flesh. My mother was going on the other night, about what criminals and barbarians the Oz folks are (remember she a London girl), I just laughed, and said I had many a good Oz mate on the group. Just the way she grew up, she still thinks of it as a Convict state I suppose. What the heck, she's almost 84.

We, as a group, just need to keep on going, keep on trying, and keep on helping the newly dx - we all know their fears and troubles when they come aboard. The day we get cold to that fact, is the day we might as well close up shop.

Thanks one and all,

David in SC

Post Edited (Purgatory) : 1/7/2011 12:09:00 AM (GMT-7)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 1/7/2011 7:22 AM (GMT -6)   
Hi David,
Sorry I am a little late to the party.

You were one of the first people to greet me when I joined. At the time I had a catheter that was causing me all sorts of trouble. I couldn't wait for the day when it would be removed. 10 days seemed like forever to wait. Then I read your specs and was shocked to realize yours was in for many months and you were still sane, positive, and caring. I figured if you could be that way, I could be too.

Thank you for the inspiration.

Jeff

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 1/7/2011 7:22 AM (GMT -6)   
Hi David,
Sorry I am a little late to the party.

You were one of the first people to greet me when I joined. At the time I had a catheter that was causing me all sorts of trouble. I couldn't wait for the day when it would be removed. 10 days seemed like forever to wait. Then I read your specs and was shocked to realize yours was in for many months and you were still sane, positive, and caring. I figured if you could be that way, I could be too.

Thank you for the inspiration.
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 3+4=7, 3+3=6. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%. 8/9/10 Now at 0.24 still 90%
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. "There must be another issue."
5/22/10 10 months: 2 pads per day, 190 ml/day Scope on June 15 "Short sphincter"
7/15/2010 one year: 2 pads per day. 140 ml/day, dry in bed.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04
1/14 6 months - 0.05 (Siemens Centaur)
4/14 9 months - 0.04 (Siemens Centaur) and <0.01 (Roche ECLIA).
7/12 1 year - 0.03 (Siemens Centaur, direct chemilum); <0.01 (Roche Cobas 601 ECLIA)

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/7/2011 8:21 AM (GMT -6)   
David:
On behalf of the lurkers and myself, simply put - THANK YOU -
hugs,
BRONSON
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