Interesting stats re: role of online support groups

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Julietinthewoods
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Date Joined Sep 2010
Total Posts : 309
   Posted 1/6/2011 11:52 AM (GMT -6)   
I thought some of you might find an article from Urotoday interesting. It is dated January 5, 2011 and concerns a study done of the largest online prostate cancer support group in Germany. The threads examined in the study pertained to posters newly diagnosed, and the conclusions were as follows:

"Threads were most commonly started to ask for therapy recommendations (66%), information on the course of treatment (46%) and emotional support (46%). Answers consisted of treatment recommendations (40%), emotional support (37%) and personal experiences (28%). A second opinion on the biopsy cores (51%) and additional imaging (40%) were common suggestions. The rate of advice for radical prostatectomy (RP) vs radiotherapy was 67 vs 82%. Thus, surgery was less recommended in our sample (P= 0.01); 75% of the men with an initial therapeutic preference were finally confirmed herein. Linguistic analysis showed that posters frequently use a tentative language style and that common language is avoided."

Wonder how our online site would compare? Incidentally, thanks to whomever recently recommended this website. I signed up, and have received regular emails from them, with links to very informative abstracts.

Juliet
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