Welcome to Soccerdad (ED Recovery Question)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 1/6/2011 9:32 PM (GMT -6)   
Soccerdad said...
Soccerdad
First post ever hope it works. It has been just a little over 2 yrs since my surgery. I have tried most of the oral meds with no success. I also tried injections. They worked but it hurt so bad I quit. In the last month I have had 2 erections during the night but that has been it. Have any of you been in a similar situation and did you show any improvement after 2 years?

Prostate cancer diagnosed: May, 2008 (age 64)
Gleason score: 3+3=6
PSA 4.0
daVinci radical prostatectomy: Nov 17, 2008
post-surgery Gleason score: 3+4=7; negative margins from surgery
T1A
Soccerdad, welcome to the forums. Many of us here have ED so you are in good company. It's good news about the nocturnal erections as that means things are still improving.

For injections, consider Bimx. That can give results that are as good as Trimix/Caverject but without the ache.

I am almost three years after non-nerve sparing RRP and did notice some small improvements between 2 and 3 years, but now expect that I am about as good as I will ever be. I rely solely on the pump now and get good results with it.

I expect others will be along shortly to share their experiences...

Roadracer
New Member


Date Joined Sep 2010
Total Posts : 18
   Posted 1/6/2011 10:10 PM (GMT -6)   
Soccerdad,

I'm three years post Davinci and my wife and I tried three approaches - daily 100mg Viagra (nothing but headaches), vacuum pump (worked but it was so off-putting that we abandoned it) and injections (I lost my nerve after a few tries and before we got to an effective dose..and she couldn't do it for me). In all this time I think I had one spontaneous erection and it wasn't good enough for intercourse.

Unfortunately, I lost my wife over the summer to a third recurrence of breast cancer so this isn't as urgent an issue as I once thought it was...but I'd like to have Willy working just in case (dirty old man thinking). Then, last week I awoke on two successive days with morning wood. Again, it wouldn't have been sufficient for intercourse even if my wife was there, but it totally surprised me. Unfortunately, it hasn't happened since, but I can ********* to a soft erection on some days now, which I couldn't before. I asked at Henry Ford Hospital since I had a followup appointment today and all they could suggest is maybe I might be able to function better because I'm not under so much pressure to perform now. I don't think that's a satisfactory answer myself and I believe I'm going to look for a local doctor who specializes in ED.

Roadracer

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 1/7/2011 8:48 AM (GMT -6)   
Soccerdad, I just posted you a note on another thread about the drug in your injection quest. I said the same thing as Piano.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/7/2011 9:52 AM (GMT -6)   
Welcome aboard, Soccerdad
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/7/2011 10:08 AM (GMT -6)   
Yeah, welcome to the club, so to speak. Sorry to see you here. Hang with us a while and keep us up on your story, ok?
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/7/2011 10:12 AM (GMT -6)   
Roadracer, I am so sorry for the loss of your wife. Know that you have a home here with us for your recovery.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc

soccerdad
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/21/2011 9:11 PM (GMT -6)   
Roadracer, So sorry to hear about your wife. If I caught the drift of your comment I may have something that would help you. You could e-mail me if you like.
soccerdad

Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 1/21/2011 10:49 PM (GMT -6)   
hello there soccerdad i havent been on for a while but your post caught my attention, while experimenting , i did notice that while some ed drugs worked , others did not, viagra was ok , sometimes while cialis worked great , doesnt hurt to throw some  l arginine in there as well as it supports circulation , just a thought ,,,all the best ..........dirt tongue
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 12:34 PM (GMT -6)
There are a total of 2,974,139 posts in 326,156 threads.
View Active Threads


Who's Online
This forum has 161230 registered members. Please welcome our newest member, JoyfulInquisitor.
467 Guest(s), 12 Registered Member(s) are currently online.  Details
Froggy88, countess18, Serenity Now, Girlie, Sara14, hrpufnstuf, Laura25731, JGB, FamilyGuy, quincy, suttie, Tall Allen