First Post Surgery PSA Test

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MarkMyWords
Regular Member


Date Joined Dec 2010
Total Posts : 55
   Posted 1/7/2011 10:23 PM (GMT -6)   
I received a call from my Uro today - the results from my first post surgery PSA test are in. UNDETECTABLE! What a relief. A huge weight off my shoulders.

Progress Report:

Surgery Nov 8th

Continence - down to 1-2 pads a day. Most of my leaking issues are related to stresses like sneezing, running, standing. This week I returned to work and since i work so early in the morning - I did hit the caffine several time. Caffine is not my friend. With caffine comes more leakage. Back to water for me.

Bladder Spasms are still an every bladder empty event, but pain only lasts a minute or two and are tolerable.

Bowel Movements are all over the place - seems to be the second biggest issue I am having.

Erections - none. Still limp and lifeless. Uro said to give it a few more weeks due to the spasms and we will start trying little blue pills.

PSA - Undetectable.

Thank you guys for helping with my questions and worries. Today, I feel like I am on top of the world. I raise my glass (of water) to each of you as you celebrate each small success and pick yourself up from each set back.

Cheers!

Mark

Still may need radiation. Uro wants to wait until after my April PSA test.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7087
   Posted 1/7/2011 10:37 PM (GMT -6)   
Great News! Sounds like you are doing well.
 
Water, walking, and kegels - all help.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/7/2011 10:46 PM (GMT -6)   
Way to go, Mark, and welcome to the infamous Zero Club
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/7/2011 10:58 PM (GMT -6)   
Great news Mark. Congrats

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 1/7/2011 11:10 PM (GMT -6)   
New boy buys the beers - Pint Please and Congrats..............Kev yeah

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 1/8/2011 12:03 AM (GMT -6)   
Good on you, Mark!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/8/2011 8:52 AM (GMT -6)   
Yeah, Mike, congrats. Sounds like you having a 'normal' recovery. Wishing you a lifetime of undetectables.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc

MarkMyWords
Regular Member


Date Joined Dec 2010
Total Posts : 55
   Posted 1/8/2011 11:08 AM (GMT -6)   
Thanks Guys -

Last night was the first night I laid my head on the pillow and fell right to sleep - and slept a full 8 hours with no interuption. Amazing what happens when some of the stress / worry is taken off your shoulders. =-) I hope to sleep well until April. lol
Age 45
Jul 2010 - PSA 10.1
Aug 2010 - Biopsy - 12 of 12 cores positive - Gleason 7 (3+4 on the right, 4+3 on the left)
Sept 2010 - CAT and Bone scans negative.
Nov 2010 - da vinci RP with negative margins. nerve bundles were not spared. negative lymph nodes. Pathology Stage pT3c.
Jan 2011 - PSA undetectable

lennybob
Regular Member


Date Joined Dec 2010
Total Posts : 99
   Posted 1/8/2011 12:26 PM (GMT -6)   
Mark,
Welcome to the zero club. You sound as though you are well on your way to healing. Will meet with my uro on Tuesday, this will be 18 monts post op. I am praying for zeroes as well. Congrats on the good results.
Age 53...51 when diagnosed.
February/09 PSA 11...GP discoverd during yearly physical...referred to Urologist
Biopsy found cancer, Gleason score of 6.
July 2009...Nerve-Sparing open radical prostatectomy.
Doing very well...only issue is ED and that is getting better.

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 1/8/2011 12:36 PM (GMT -6)   
Mark,
Congratulations!
Hero

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 1/8/2011 12:36 PM (GMT -6)   

Great news, Mark.  I hope the bladder spasms stop soon, and I'm sure that will be a great relief.  "Undetectable" is a beautiful word.

 

 

 


Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3072
   Posted 1/8/2011 3:06 PM (GMT -6)   
Mark,

Excellent news. I can relate to the sleeping thing.

45, DaVinci, undetectable?...if you tell me your from PA, I'm going to start to get worried...

Again, congrats...

Jerry L.
Nov. 2009 Dx at Age 44
Dec. 2009 DaVinci Robotic Surgery
Jan. 2010 T3b, Gleason 9
Feb. 2010 Adjuvant Radiation

PSA History:
-----------------
Nov. 2009 4.30
Feb. 2010 <.05
May 2010 <.05
Aug. 2010 <.05
Nov. 2010 <.05

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 1/8/2011 3:13 PM (GMT -6)   
Great news Mark

Hope your recovery continues.

Alf

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2365
   Posted 1/8/2011 3:52 PM (GMT -6)   
Terrific results, Mark!  All the best on your continued recovery.....Tim

Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 1/8/2011 8:19 PM (GMT -6)   
Great results Mark. I hope those anoying spasms settle down soon.

Peace
Age: 63
Gleason grade: 3+4=7, pT2c NX MX
Robotic RP: Sept. 15th, 2009
No lymphatic/vascular invasion, seminal vesicles, margins tumor free.
Pre surgery PSA: 4.1
Post surgery PSA's: .04, .03, .02, .05, .02
ED: Improvement slow but there are positive signs. No incontinent issues.
Surgery: Dr. Jim Hu. Dana-Farber/Brigham and Women's, Boston

MarkMyWords
Regular Member


Date Joined Dec 2010
Total Posts : 55
   Posted 1/8/2011 11:17 PM (GMT -6)   
Jerry L. said...
Mark,

Excellent news. I can relate to the sleeping thing.

45, DaVinci, undetectable?...if you tell me your from PA, I'm going to start to get worried...

Again, congrats...

Jerry L.


I am from PA - Western PA! LOL turn yeah smhair

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3072
   Posted 1/9/2011 11:28 AM (GMT -6)   
Mark,
 
Too funny...I'm from around Hershey...if you ever need to talk, shoot me an email...I know too well how this can be extra challenging for someone in their forties...
 
Jerry L.

Father of Two
New Member


Date Joined Dec 2010
Total Posts : 14
   Posted 1/13/2011 4:07 PM (GMT -6)   
I have my first post-op blood test this coming Monday. I've been sweating it because, while I have been making progress with leakage issues (no erection yet unfortunately), I feel otherwise bank to "normal." And it seems like the cancer is a thing of the past. So my fear, of course, is a bad test. Since I didn't have any symptoms beforehand, I am not sure if I could tell one way or the other now. This part is almost as stressful as waiting for the biopsy results.
Robotic Surgery 12/23/10
Age 40; PSA - 6.2; 3+4 Gleason

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/13/2011 4:14 PM (GMT -6)   
Father of Two: good luck on your first test coming up, hopefully you will be ushered into the all inclusive and exclusive Zero Club, with full honors, and dues owed, of course
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

MarkMyWords
Regular Member


Date Joined Dec 2010
Total Posts : 55
   Posted 1/13/2011 4:16 PM (GMT -6)   
Father -

Best of luck to you. I am sure the results will be great and you can join the zero club here too. As one of the newest members I can tell you that as the newbie, when you have to buy the first round - it's expensive! =) These guys know how to drink and raise a glass to your successes and weep with you over a drink when you have a set back. I love this sight - I feel like I am not alone here and people can relate and understand.

Father - you're buying when that blood test comes back UNDETECTABLE.

Good luck.
Age 45
Jul 2010 - PSA 10.1
Aug 2010 - Biopsy - 12 of 12 cores positive - Gleason 7 (3+4 on the right, 4+3 on the left)
Sept 2010 - CAT and Bone scans negative.
Nov 2010 - da vinci RP with negative margins. nerve bundles were not spared. negative lymph nodes. Pathology Stage pT3c.
Jan 2011 - PSA undetectable

Father of Two
New Member


Date Joined Dec 2010
Total Posts : 14
   Posted 1/13/2011 4:34 PM (GMT -6)   
Thanks for the good thoughts guys, it's difficult to discuss with friends and I don't want to stress out my wife with my own. So I appreciate this site. Here's hoping that I get to buy drinks, I'll let you know sometime at the end of next week or early the following week.

Speaking of which, I have the test Monday and my first post-op appointment with my surgeon the following Monday. Do you think I'll get the results before that second appointment? Also, what should I expect at that appointment other than the results of that test?
Robotic Surgery 12/23/10
Age 40; PSA - 6.2; 3+4 Gleason

cantexplain
Regular Member


Date Joined Jun 2010
Total Posts : 74
   Posted 1/13/2011 5:26 PM (GMT -6)   

Father of two: that's a very likely time line - take the PSA test and meet with the dr. a week later for results and a discussion of incontinence and ED.  Or, if the results aren't "undetectable" a discussion of the next steps related to that news.  I was very calm after my first 90 day test and remained so until the drive to meet with the surgeon, and at that time I realized I was in no way prepared for bad news.  I'm not saying to worry about it, but perhaps steeling yourself for bad news and welcoming good news is more realistic.  I have my 5th test tomorrow (all undetectable up till now) and it really is becoming easier.

Good luck.


Age at Dx: 56
DaVinci Prostatectomy: 10/28/09

Stage: T2C

Gleason - 3+4 = 7

Prosate: 52 grams

Incontinence - absolutely at first, better with time and kegels

ED - Indeed

Married, father of two (boys 19 and 18)

11 months later: member of the "zero" club, working on one "safety" pad for 24 hours. Took Cialis for 6 months (no apparent affect), Tri-mix works, though!
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