mr bill said...
May I ask what side effects led to you veto? I have read some possible side effects, but feel as if I have missed some. The thing that amazes me is the Surg and Rad doctors saying they where going by gut feeling.
Sure Bill, keep in mind this is just my views/fears and since our path is a bit different you may want to be more aggressive.
1. ED, I am lucky enough to be regaining function fairly well, radiation can cause problems down the line, especially if the nerves are already banged up (supposedly). The rad oncologist was quite up front about
this, said percentage was 30-50% with a decrease in function (for salvage).
2. Strictures, my rad oncologist was quite honest (the 2nd one, first one was a total %i@@) about
the chance of either taking a hit in the continence area or oddly going the other way and causing blockages, seems like it can go either way.
3. The percentage advantage of Adjuvant vs. Salvage is supposedly about
10% better long term survival. For me (given the lack of lymph node involvement and undetectable PSAs) just wasn't enough to do something that may not be necessary.
4. Both my Uro' and the rad guy said there was a chance that the surgery (cauterization) may have killed the cells on the small positive margin, and if it hadn't spread already the surgery would be the end of it.
Now, your pathology is worse than mine was, I was 8 with tertiary 5 (not much less than a 9 but some) and I had 12 clean nodes. This plus a possibly unrealistic opinion of my immune system (kill that positive margin dude) lead me to wait and see. If I'd have had lymph involvement it would have been a different story.
Dave in Durango CO
EDIT: I like doctors that go with their guts, and are honest about
it. The gut is usually hunches based on experience, not just books/studies.
Post Edited (daveshan) : 1/10/2011 9:03:44 PM (GMT-7)