Great meeting with my Onco Today

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/10/2011 4:21 PM (GMT -6)   
I had a great meeting with my Onco today. Just a little recap; in September (my last visit with him) my PSA was 2.2, today my PSA is 3.9

For those that don't know, my doctor is the head of Oncology at the MD Anderson Cancer Center in Orlando and his area of expertise is PCa.

Now I recognize that what I am about to relay to you may fly in the face of some of the expected norms and practices, but I like the way he explained it, it made sense to me and fits into my frame of mind in dealing with MY PCa.

When he came in he had some very nice charts and graphs of my PSA tracking as well as the MSK Nomo for the velocity/doubling time.

My DT computes to about 4.6 months. I mentioned to him that it was interesting that he was handing me a MSK Nomo. I asked him how MDA didn't at least have their own. He chuckled and said we all use theirs, we all contribute the stats to them that keeps it current and we all let them spend the money on the servers and so forth that make it accessible. We don't need our name on it. The number is what it is and we all compute it the same way.

I like this guy.

We spent quite a bit of time talking about how I feel, physically, mentally, in my role as caregiver for my wife and so on. I told him that I am feeling better than I have felt in the last 2-3 years. Lots of energy, stamina, I love my weight loss down to 185 from 215, interest in doing things that I had put aside for a couple of years (like boating and fishing), overall I told him I feel too darn good to have cancer.

We discussed a couple of things that seem to have changed as relates to continence and ecch!! bowl movements. He asked a lot of questions, I answered them honestly and at times graphically (by necessity). He feels that these changes are the result of my SRT, but went on to say that this should be about as far as it goes. In his experience about a year from SRT and the changes should settle in to where they are. These are changes I can live with as long as they don't worsen any further.

So we started talking about where do we go from here. He totally floored me at this point.

He said that my last bone scan and skeletal survey were done in May 2010 so he wanted to see me in May 2011. Wants me to have another set of scan and PSA test then.

Okay my learned brethren, this is where I came up out of the chair and asked him about HT. Okay, put your teeth back in your mouth. Yes, I asked him about it. Now don't get me wrong, I still don't cotton up to the idea on going on HT, but I was surprised as hell that he wasn't ready to jump on it given my PSA.

I asked him to explain, given that almost everybody it would seem, from the posts here, has doctors that decide 0.20 is the time to call it BCR and jump on the HT express.

He said that I wasn't experiencing BCR, I have never gotten rid of the crap in the first place. He said that he and the others there treat each PCa as any entity unto it's own and how each patient responds to treatment on an individual basis.

Hey! Isn't that what all of us keep preaching? Nobody responds to treatment the same as the next guy, everybody's PCa has a mind of it's own and each PCa no matter how similar to the next is still it's own little beast. Some more aggressive, some not and some that try hard to follow the expected norm. Hey, I am a Gleason 7 and there are plenty of you that are GS 9s and you have no issues, you still are PSA undetectable and the word METS is not in your vocabulary.

So I asked him to explain my case and his recommendation. He said yes you have had a MET and that one was a little earlier than most. NOT ALL MIND YOU, but most. He is convinced that the radiation took care of that MET.

I asked him where in the world is the high PSA coming from. This was his analogy.

YES! you have a lot of PCa cells in you body no doubt. It takes a lot to keep the PSA going up. But they are like a lot of little travelers, going along on their own just cruising around the countryside and their collective numbers of population show up in the PSA. BUT! they are like travelers. By themselves they don't cause a lot of trouble, they don't have the crowd/mob mentality. Now put a bunch of travelers in a snow bound airport, make them sleep on the floor, tell them you don't know when they will ever leave and don't feed them and that crowd mentality is going to kick in. Collectively they will join together and raise such a noise, cause destruction, set the place on fire and continue destruction until you call in the National Guard.

He likes the fact that my travelers are still on their own.

He went on to say that there is no doubt that HT or something akin to it IS IN MY FUTURE CONSIDERATION. But not know. He is treating my cancer and me as the patient. So he will wait until May, do the scans, check the PSA, reevaluate the issue and we will proceed from their.

This all makes sense to me. He doesn't see me in any danger and doesn't see this time frame of one that lets the horse out of the barn. He did say though, that I would need to really stayed tuned to my body, my mentality and so on, so that if any changes begin to occur I can contact him and we can check it out.

Lastly, I told him that I was about 16 months post surgery, and I was beginning to see really strong improvements in the ED department. I told him that Lynn is receiving blood transfusions and is getting more energy and feeling better by the day.

I told him that I really appreciated him letting me (NO HT NOW) take this new found improvement out for a test drive before he totally emptied the gas tank of the engine.

You all now that I have stated my reluctance to HT because of side effects. I am all about QoL. And for me that stands for Quality of LIFE. Reminds me of a talk I had with my boss many years ago. I had been promoted to manager and he was chiding me about not being there an hour or two before the others in the morning and then being there long after the others had left in the evening.

I told him that I worked to enjoy LIFE. I do not LIVE to work. I try to enjoy life each day to the max. I don't want to be satisfied with seeing the sun come up each day and considering that one a success. I want to use each day to enrich my life or someone else's. It is all about LIFE and not merely existing for me. Okay off the soapbox.

I would like to throw one thing out there for discussion amongst you more knowledgeable HT brethren. His PA mentioned in the meeting that since I lived so close to the facility, maybe I would be a good candidate for Degarelix as opposed to Lupron.

He said they both work to limit the production of Testosterone. They both have side effects and that most of the side effects come from the reduction of testosterone not from the drug itself. If you monitored a patient on Lupron you would find that the testosterone numbers fluctuate up and down. This is why the Lupron patient reports having good and bad days with side effects and sometimes within the same day. The Degarelix knocks the Testosterone down and at that point it mostly flatlines. There is not the fluctuation. So the side effects are more constant. In his experience the Lupron side effects are somewhat less and easier to tolerate. Does this make sense to you guys? It did to me.

So there you have it. This is a long post, but I felt the subject matter and the meeting was one that was worth investing the time into.

Every Day is A Bonus, and I Love You Guys,

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2840
   Posted 1/10/2011 4:31 PM (GMT -6)   
Sonny - having you in this HW group is a bonus !
I learned a lot about you in this posting as well as to how to (possibly - since we are all different) approach the same matter - if necessary - down the road.
-thank you for being here
-wishing you and Lynn all the best....
-am going to do my darndest to be able to get to Cajun Jeff's GFMPH weekend - just so I can shake your hand
-many thanks
hugs
BRONSON
...............
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/12/11 - TBA

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/10/2011 4:39 PM (GMT -6)   
Bronson, thanks man. Knowing you and the others here has certainly enriched my life.

Would have been nice if it was under different circumstances though. YA THINK?

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7197
   Posted 1/10/2011 5:25 PM (GMT -6)   
Sonny:
 
Very interesting and uplifting.
 
Did your doc specifiy WHEN HT might occur (eg: if the PSA gets over 10, etc. etc.)
 
Mel

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 1/10/2011 5:31 PM (GMT -6)   
Sonny: As always it's good to see your name, and read your posts, and this one is among your most interesting. While last time out my PSA horse ran another zero (guess who went to see the Secretariat movie on the weekend) I know I might follow along in your footsteps anytime.

Best to you and Lynn. As good as this meeting was I know your recent loss must be weighing heavily on you both.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 1/10/2011 5:36 PM (GMT -6)   
Sonny, its sounds like a great visit, with a wise patient and a wise doctor = good combination. From knowing you personally, and how you feel about such matters, sounded like a very balanced and sensible plan to me. Any any news of an uptick from Lynn is always good to hear. Sounds like all in all, a great day.

I am still trying to figure a way to come to the Cajun Rave, I mean Jeff's meet in BR. Sounds like quite a gang is amassing. You got my number if you want to talk, but sounds to me like you got it under control.

From one ex-swabbie to another,

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 1/10/2011 5:46 PM (GMT -6)   
Sonny I am glad that you had a good meeting. I'm even more happy about how you are feeling this should make the little speed bumps that we have a little bit better.
All the best to Lynn and you.
 
 
Neal

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/10/2011 5:49 PM (GMT -6)   
Mel, I really don't think my doc has a number in mind. I think that was his gist from the meeting. He figures that something will have to be done somewhere down the road, nut he is just judging my PCa with me as the patient and will know it when the time is time to tell me to crap or get off the pot.

Sheldon, as always your words bring a great sense of comfort. Thank you.

David, I really like the way my onco and I mesh. I asked him point blank if he was holding off on a stronger recommendation to me for HT and he said no. He said it isn't his place to be just a nice guy and spare the patients feelings. It is his job to look after my best interests and make sure I know what I am doing from a very educated viewpoint. He did say however, that he would not have recommended a shot today no matter what. He said it would totally hose my trip to Tenn with the family for the funeral.

BTW ALL, the hospital just called and they have the second unit of blood ready for Lynn. We are going down there at 9pm this evening.

She got the first unit last night and was showing a lot of energy. She was doing that little happy dance she does when she gets good news from her docs. Last night we stopped by her mother's afterward and she was doing that little dance telling her mother "I got a little 18 year athletic boy in me". I told her that it was as close as she would come to having a little 18 yr in her. I thought she and her mother would wind up rolling on the floor if they thought they could have gotten back up., LLLOOOLLL

Neal, thanks, look forward to seeing you in April.

Sonny

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/10/2011 5:53 PM (GMT -6)   
David, maybe one of those bluebirds of happiness that appear to be circling your house will land soon and Baton Rouge will be in your future.

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 1/10/2011 6:01 PM (GMT -6)   
Hey Sonny, does Lynn's happy dance mean that a certain rattlesnake rattle is rattling? I ask this in total innocence, cough cough
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/10/2011 6:07 PM (GMT -6)   
Sonny, thanks for the update and all the new info. I learned several new and valuable facts
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/10/2011 6:07 PM (GMT -6)   
David, he's making noises but can't quite stand up yet. Kinda like that snake in that insurance commercial. LOL

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 284
   Posted 1/10/2011 6:13 PM (GMT -6)   
Thanks Sonny for providing the details of your meeting. I find these accounts to be most helpful even when they don't support my direction. In this case however, your oncologist is speaking inline with recent conversations with my radiation oncologist. Not surprising though since the RO mentions studies by MK Anderson from time to time. I laughingly told him I was impressed with his continuing education.

Although my SRT success or failure has not been determined, he has brought up HT the last couple visits.... and quickly followed with "although I don't think you'll need it". His opinion (note his as a RO not a MO) was "some" of the "hit it early, hit it hard" doctors are backing off. He mentions the starting psa isn't just a number (tossing out 5-8 as examples) but dependent on the entire evaluation and QOL is big in the mix.

I actually enjoy my talks with him and have had to remind him a couple times that he has other patients to see.

Our best,
Jake
Dx 8/08 Pre-op psa 4.2, Age 60, 7 of 12 biopsies positive 3+3
DaVinci LRP 11/08, - margins, - EPE, vascular or perineural. Gleason 3+4=7, 5-10% of 4.
3 mo psa .1 2/09, 6 mo .1 5/09, 9 mo .2 8/09
broke ankle bones 6/09, 9/21/09 Bone scan clear, psa still .2
01/05/10 psa .3, SRT 01/19/10 start 39 sessions 70.2gy, psa @ 6 wks into IMRT .4; Post SRT psa @ 10 wks (5/10) .2, @20 wks .1, @8 mo still .1

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/10/2011 6:20 PM (GMT -6)   
Jake, sounds like you have a good doctor also.

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4089
   Posted 1/10/2011 6:31 PM (GMT -6)   
Sonny, Thanks for the post. I must say you inspire so many of us. I am very pleased with the Dr report. Did not know what to expect and was holding my breath.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/10/2011 6:35 PM (GMT -6)   
Great to hear Sonny and glad you are in the livin la vida loca mode, we hope your wife can do as well as possible in her fight. Hey I kind of like your doc, which I don't mention such all that often about many of them, I really have dislike for the Soup N_zi types. I mentioned some docs in the USA feel it is ok to let psa rise up to like 10.0-15.0 post treatments before resuming HT or other therapies, my rad-doc mentioned in Canada they use thresholds 15.0-20.0 psa level before 'resuming', not based on original non treatments psa levels... to make that clear. There is no warranty program anyway. Rule #1 in PCa....No Rules!

I do question the things about the side effects are supposedly all from the low testosterone and not the Lupron or LHRH drug...because when I switched to DES only...it cancelled and stopped like all the side effects from that and my testosterone level even when finally low down I did not have those side effects, at times I even had a low normal range 'T' level when going intermittent on this. Anyway best to you and enjoy.  Glad you had a nice vacation type gig.

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 1/10/2011 6:36 PM (GMT -6)   
thanks for your post it is very informative.

DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/10/2011 6:41 PM (GMT -6)   
Sonny,

I learned so much from your thread - and on so many levels!
The words "grace under pressure" come to mind.

I had never heard of the concept of "travelers". I like the idea.
Who knows, in the future there might be a device similar to a dialysis machine that looks at each of the trillions of cells moving through the blood stream and decides if it is a keeper or something that should be diverted. Optical recognition processing power is already there. A similar technique is used not to sort stem cells. We just need a much faster selective actuator. It's not beyond the realm of possibility.

Thank you for taking my mind off my problems. I am honored to call you friend.
Love back at ya,
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 3+4=7, 3+3=6. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%. 8/9/10 Now at 0.24 still 90%
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. "There must be another issue."
5/22/10 10 months: 2 pads per day, 190 ml/day Scope on June 15 "Short sphincter"
7/15/2010 one year: 2 pads per day. 140 ml/day, dry in bed.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04
1/14 6 months - 0.05 (Siemens Centaur)
4/14 9 months - 0.04 (Siemens Centaur) and <0.01 (Roche ECLIA).
7/12 1 year - 0.03 (Siemens Centaur, direct chemilum); <0.01 (Roche Cobas 601 ECLIA)

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/10/2011 7:00 PM (GMT -6)   
Jeff Cman, yeah I was kinda holding my breath too. But came away from the meeting feeling really good. Crap I have PCa, but I ain't looking for any short piers to talk a long walk off of.

zufus, thanks for chiming in. Maybe you would like this doc. I really think he is a straight shooter. I mean I volunteered to have the scans done before the end of the year for insurance purposes and he wasn't haven't any part of it. You came to mind when he was discussing the HT side effects and next meeting I plan to bring your story and drugs into the conversation.

Goldhorse, been a while since I have seen you. I have to admit that I continue to be impressed by your numbers. Maybe a little jealous too.

Jeff, what in the world of higher engineering are you doing posting here tonight. Those drugs must be some of the best ever. And there is such clarity in your engineering post, even if it does fly right across the top of my head, zzzoooooommm!

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 1/10/2011 7:20 PM (GMT -6)   
This is an interesting post. I learned a lot too. It is also greets having a good relationship with your doctor. It seems he spent a lot of time with you. That is always great.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue

Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 1/10/2011 8:04 PM (GMT -6)   
Sonny, I love your doc. Too bad we don't have many of them like that. Mine are terrific and I trust them implicitly. I also admire your grace under fire. Excellent wit.

Bob
AGE:58

Dx: October,27, 2008(the day after my birthday)
Psa 14.5,Gleason (4+3), all scans negative. Biopsy, 4 of 12 positive. DaVinci, 1/19/09. Confined to prostate? No lymph node involvement, all margins clear. 8 wk. Psa<.01,6mon .1,9 mon. .2. Began IGRT 10/09, finished.12/09. Since then,.1.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2216
   Posted 1/10/2011 8:29 PM (GMT -6)   
Sonny,
First of all glad that you and Lynn are doing well. Ditto to what the others have said about how informative your post was. Guess we are a band of travelers on this forum, each taking twists and turns and sometimes running smack dab into one another. My Oncologist says wait until 2.0 for HT, but I will get a second opionion from the Dr.s at Emory when needed. Hope to make it to Jeff's as well now that my Mother has passed. Take care and keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA .2

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/10/2011 8:39 PM (GMT -6)   
Sonny, sounds like a good meeting with your oncologist...glad to hear that you feel so strongly positive about the relationship.

I have read with interest about your wife's "new blood" experience. My wife is getting her first transfusion tomorrow, and we don't know what to expect. Your comments are helpful.

best regards...

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 1/10/2011 8:57 PM (GMT -6)   
Gosh, Worried Jeff, still trying to figure out your concept there, the only time I sound like that is when I have been buzzing on morphine at the hospital. lol. Sounds like you are doing great.

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 1/10/2011 10:50 PM (GMT -6)   
Sonny, thanks for your kind words, they mean a lot to me. You say I bring you "comfort" which is interesting because you, and Lynn, bring so much comfort to me. I've learned so much from you both. While I understood, and supported your HW holiday, it's wonderful to have you back.

I'm glad to hear that Lynn has that 18 year old coursing through her veins. Another stud pint this evening and you may need to lock yourself in the bathroom to get some sleep.

You'll be on your way to the funeral soon. You are all in my prayers in these sad times.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  
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