New guy saying hi

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EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 1/10/2011 5:22 PM (GMT -6)   
Hi everyone,

I was diagnosed with Prostate Cancer last October at 58 years old, i pushed for surgery to remove the prostate and went in for my surgery on 12th December, it was meant to be Laproscopic but i had a major hemorrhage so it was converted to an open operation, they ended up replacing more than my body's total blood volume but once the bleed was stopped they got the prostate out, the surgery took nearly 6 hours.
I was in hospital for 8 days and catheter removed after 23 days, the nurse was not amused when i peed all over her hands, the couch and then the floor, ah well the wonders of our health. The catheter has been out 6 days now and i am down to 4 pads a day, night time i find real easy and can go 5 hours before my bladder wakes me up and with squeezed muscles i do get to the toilet without leaking.
My issue is moving around without leaking, sitting still is good and i can go 2 hours but i need to get on top of moving without getting wet. I realise it is very early days and i am glad i started my pelvic floor exercises as soon as i was diagnosed last October.
But also i am glad of the level of support that is available in sites like this one, so i thank you all for that.

Take care, Bob.

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 1/10/2011 5:36 PM (GMT -6)   
Hey Bob, welcome to the group, and welcome to the other side of surgery. With surgery on December 12 you really are, as you say, in early days. Things will get better! Much, much better. I think your daily pad count and nightime dry is very good indeed. You're way ahead of where I was, and now, 18 months later, and for sometime now, I'm dry as a bone ---- even when I sneeze! Ain't life wonderful?

Hang in there and keep posting.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/10/2011 5:38 PM (GMT -6)   
Bob, glad to have you with us.

Sounds like you had a hard time with the bleeding, that use to be one of the pitfulls supposedly with open Surgery, not the other way round, glad you made it through that, and now on the recovery side.

Welcome, and keep us well posted.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 1/10/2011 5:59 PM (GMT -6)   
Sounds like a tough surgery but sounds like you are recovering pretty good. Do your kegel's. But don't over do it. Welcome to the other side as we like to say.
 
 
Neal

EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 1/11/2011 6:25 AM (GMT -6)   
When i was first diagnosed i plunged headlong into the Kegels, thinking the more i did them the stronger they would be, it was only last week when i found out that you can overdo them so ive eased off now and am taking my time with them.
I thought of it like a gym routine, how wrong can you be.
Bob.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 1/11/2011 8:34 AM (GMT -6)   
Welcome Bob and just maybe doing all of those kegels helped get you thru a major six hour surgery. Your one tuff hombre. Keep us posted and hope the improvement continues on a good pace.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA .2

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 1/11/2011 9:42 AM (GMT -6)   
Bob,

Welcome - sounds like the surgery was a bigger event than hoped, but, as others have said, it sounds like your continence recovery is going well.

My catheter removal was the same - instant flood. And the nurse was cute. Made it even worse.
DaVinci 10/2009
My IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 1/11/2011 9:56 AM (GMT -6)   
Welcome Bob!

It sounds like you had a tough time of it during the surgery, but are now on the road to an excellent recovery.

Regarding cath removal and showering the nurse, maybe someone can figure this one out:

I asked the nurse who removed my cath if she wanted to put on a raincoat first, but she said she has never had a problem with getting splashed because the catheter always kept the bladder empty so there was no buildup of urine to come out at the time of cath removal. This sounded logical to me and when my cath was pulled, nothing but one or two drops of urine. This seems to be the opposite of what happens to some guys who involuntarily let loose a little flood of urine. Why the difference?

Dan

EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 1/11/2011 10:18 AM (GMT -6)   
I asked the nurse who removed my cath if she wanted to put on a raincoat first, but she said she has never had a problem with getting splashed because the catheter always kept the bladder empty so there was no buildup of urine to come out at the time of cath removal. This sounded logical to me and when my cath was pulled, nothing but one or two drops of urine. This seems to be the opposite of what happens to some guys who involuntarily let loose a little flood of urine. Why the difference?

............


I am an engineer so a logical thinker, so here are my thoughts on this. When the catheter is in the bladder it has a liquid filled ballon on the end inside the bladder which is what holds the catheter in. I would assume it inflates circularly therefore urine would collect around the edge of the ballon where the radius drops away, this would then leak out as the catheter is removed.
This is purely my logical mind making an educated guess though, if someone has a better idea please feel free to explain,

Bob.

p_elliott
Regular Member


Date Joined Nov 2010
Total Posts : 143
   Posted 1/11/2011 10:24 AM (GMT -6)   
Welcome Bob you have a great support group here. I have learned a lot. As for letting lose on the nurses hand from what I had heard before I had my catheter that is pretty normal. I wouldn't let bother me any I'm sure it wasn't the first time for her. Sorry your surgery went south and I hope you get better. Keep your spirits up that's the main thing, you have to think positive.
 
Paul
 

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/11/2011 10:33 AM (GMT -6)   
Welcome to HW, glad you joined us and that you are having what appears to be a 'normal' recovery, as judged by our experiences here. Hope you will stay with us and share your story as you go along.
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc
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