John, you bring up some good points, as usual.
So weird for me, as when I had neck & throat radiation, in the year 2000, it was old school EBRT. The side effects and long term damage potential were well spelled out for me, and there really wasn't any surprises. It was a tough way to get 70 gys in such a small area at the time. Took a long time to recover from it too, but again, the negative side was well known.
This time, in 2009, I am told over and over, that the IMRT I had was well focused, very safe, virtually no side effects, etc, etc, and yet it went terribly wrong at 72 gys. And, old story now, but left me with perm. bladder damage and bladder neck damage.
At least with the old radiation, I knew what to expect, there weren't any surprises. With the new radiation, the whole negative side took me by complete surprise ,because I beleived what the radiation oncologist and radiation clinic told me. Boy, was I ever wrong.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10