AUS not activated but i am almost continent now?

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knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 650
   Posted 1/14/2011 11:24 AM (GMT -6)   
I had the AUS implant this tuesday and so far I am barely leaking anymore. I guess swelling? pressure from the cuff? change in uretha position? I think I remember others reporting this but not sure. Has anybody else had this happen. There is still some swelling but it has gone down a lot and my new dryness has not gone away, yet.  This does give me new hope that this thing might actually work. Maybe I should have had someone just give me a swift kick in the crotch? I am using only about a pad a day now.
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Baylor recomended AUS
AUS and IPP performed 1/11/11
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/14/2011 11:57 AM (GMT -6)   
That sounds like a success story in the making. Are you able to pee normally, witha normal stream, etc. How do you rate the quality and quantity of output?
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 650
   Posted 1/15/2011 6:34 AM (GMT -6)   
I would say my stream is reduced to maybe 60% of what it was before the implant but I would still rate it as good as I can still force a stronger stream. It is certainly better than what I had before the RRP a year ago. It might just be the swelling and drier effect might go away. Time will tell I guess.
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Baylor recomended AUS
AUS and IPP performed 1/11/11
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4089
   Posted 1/15/2011 6:48 AM (GMT -6)   
Ron, Your report sounds very promising I am so happy for you buddy and things well only get better. Have you had a chance to check out the tattoos yes. We have a pool going wanted to know if it was colors or arrows or just 2 words. :)

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/15/2011 6:55 AM (GMT -6)   
Ron,

We're friends, stop over any time and I'll give you an adjustment with my knee. :-)
I'm dry, too. - This catheter is working great. smilewinkgrin

Jeff

Post Edited (Worried Guy) : 1/15/2011 10:48:27 AM (GMT-7)


knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 650
   Posted 1/15/2011 8:56 AM (GMT -6)   
Jeff, that is what friends are for. however there are people like my wife for instance who would gladly give me a boot where the sun don't shine. Damm those catheters!
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Baylor recomended AUS
AUS and IPP performed 1/11/11
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Salty_clark
Regular Member


Date Joined Apr 2008
Total Posts : 95
   Posted 1/15/2011 10:21 AM (GMT -6)   
Knotreel I recall that when I had my surgery some two years ago I had an experience similar to you. I was swollen and had a somewhat reduced stream. The swelling also caused me to be less incontinent. As soon as the swelling began to decrease I found that the flow increased and the incontinence was in full bloom again. I hate to dash your hopes so early in the process but you will be ever so happy on activation day when you can truly say " I am dry." It does not come any earlier than that... Sorry to say that. That is the nature of this process. I am sure you will be happy with the outcome.

With best wishes

Salty

Age 75 at DX 76 on 9 May 08
DRE positive with nodule 15 Jan 08
PSA 3.8 18 Jan 08
Biopsy 11 Mar 08 Gleason 8 (4+4) on the right 3 out of 12 positive <5%. Gleason 7 (4+3) on the left 1 out of 11 positive <5%.
Bone scan and CT scan Negative 12 Mar 08
Robot Assisted da Vinci prostectomy with Dr Fagin in Austin scheduled for 30 April 08.
- - - - - - - -
da Vinci successfully completed by Dr Fagin as scheduled.
Path Report:
Gleason downgraded to 3+4=7
Tumors confined to the prostate.
Bilateral tumor on right side 5 of 10 levels and on left side tumor present in 9 of 10 levels.
Margins Negative.
Extraprostatic Extension Negative
Seminal Vesicle Invasion Negative
Stage pT2c
As far as it goes between you, me and the fence post I am cured. 
06-24-08 <0.1 Undetectable.
09-23-08 <0.1 Undetectable.
01-10-09 <0.01 Undetectable. 
04-17-09 <0.1 Undetectable.
AUS/IPP installed by Dr Morey 1/21/09 Activation 03/09/09 successfully completed by Dr Morey...All Systems GO!  99.9% continent.
12-09 0.01 Undetectable.

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 650
   Posted 1/15/2011 10:47 AM (GMT -6)   
Salty, it is my first bit of relief from total incontinence in over a year and got me exicted. Also maybe having both implants done at once increased the swelling effect. I am getting my hopes up for dry or at least sort of dry at my activation on the AUS in only three weeks now.
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Baylor recomended AUS
AUS and IPP performed 1/11/11
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 1/15/2011 11:35 AM (GMT -6)   
Ron, after what you have been through, it still has to feel good about things. Good luck.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10
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