TT sorry to hear you are having a rough time. It sounds to me ( but I am on Hydrcocone too!) that you have two problems and they might need to addressed seperatly. THe secondary cancer treatment and complications from the RRP. It seems you have some confidence in the secondary treatment program so it's the complications that are causing you the most concern AND you don't have 100%, or enough, confidence in your doctor. In the end your present doctor (uro) might be right but in the meantime you aren't sure and he could be wrong. If it were me I would want to find a uro that could give me a definative answer as to what is the problem, leakage or prolaspe or whatever. If for nothing else than peace of mind, I think would locate a specilaist at a major med center, perhaps Duke, and go and have them get to the bottom of the urine pocket problem. Then maybe the path ahead won't be so confused. I don't know, but it seems like your bladder problem should not be that difficult to diagnose. I went to the urology dept at Methodist Houston which is part of the "Texas Medical Center" in Houston. I was awed and if you have a place like that in your area, then go where you will be awed. It really helps your mental state to feel that for the doctors and facility. But remember as Jeff said we are all three on Hyrocodone so......
Anyway, I feel for you having two seperate issues where their treatments
could be mutually detrimental.
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.
Post Edited (knotreel) : 1/16/2011 5:10:04 AM (GMT-7)