Things looking good

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sfigato
Regular Member


Date Joined Dec 2010
Total Posts : 144
   Posted 1/16/2011 7:44 AM (GMT -6)   
I just wanted to post some encouraging thoughts for my friends here especially those contemplating RP

There are good outcomes and you do get back to life as you knew it

I had my surgery (open RP) 12-8-2010, I'm now 5+ weeks

pain meds - in the hospital when they ask you how much pain you are in on a scale of 0-10 - just skip the in depth analysis and say "10"
my main regret was letting the pain get too intense before asking for meds

no post cath incontinence in everyday activities - i.e. no pads - maybe a drop or 2 leakage from time to time (standing from sitting)

went back to my desk job Dec 20

pain - the pain is mostly gone - sitting is not a problem. it took about 4 weeks to be completely comfortable

standing - no pain in the last week - at times over the past 5 weeks I felt like I couldn't stand for more than 2 minutes - walking was fine, just standing still was sometimes bad - a lot of perineal pain/pressue - but it seems to be gone for the moment

ED - little sfigato has been growing lately, orgasm acheved multiple times - seems to be getting to the "stuffable" stage (pardon the expression)
no drugs/devices used - just a patient partner. one note - it seems that physical stimulation is much more effective than visual/mental. it used to be that little sfigato would raise the flag on seeing or hearing. now 98% physical although there are inklings of activity with visual/aural stim

Doctors - choose your doctors ever so carefully - you only get one shot and experience with the techniques is critical - the more the better - you deserve the best.

luck - you can't control it , but it's good to have if you can find some

fitness and blood flow - be active - I'm positive that my physical state pre-surgery helped me. get the blood flowing and activity going - I think makes you heal quicker

Activities - I am getting back to my running - ran 3 miles yesterday - this does cause leakage - I think I leak until there's nothing left in my bladder.
I've been out running 3-4 times since Dec 31 - the leakage seems to be improving - but hard to tell. Get out and so what you like to the extent you can - make yourself feel normal. post surgery - get out and walk with the cath if you can - go to a coffee shop - resist the urge to stay at home.

Rest - you will be tired and low stamina after surgery - take naps, go to bed when you are tired - rest is therapy

Partner - my wife has been an absolute angel - can't say that enough

first Post-Op PSA test - end of Jan, wish me luck - not looking forward to any further treatment if needed.

Regrets - I still wonder if I should have waited - the doc thinks the surgery was absolutely indicated. I will post the post-op path report when I get it from the doc (I got it verbally - but the printed details) - I guess I'm still in denial

happy trails!
Age at diagnosis 48
Gleason 3+3
Pre-Surgery PSA 5.1, 5.7
Cores Positive: 10 of 12 up to 40%
Treatment: open Surgery Dec 2010

Post Edited (sfigato) : 1/16/2011 7:03:53 AM (GMT-7)


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 1/16/2011 8:16 AM (GMT -6)   
Very good report Sfigato. Your bouncing back pretty quickly. Like you I was in very good condition prior to surgery bur an anesthia error probably contributed to my neuropathy. If I had the extra money I would have chosen a Dr who did not do 4-6 operations on operating day. It becomes like a surgery mill, but most the time it turns out fine, my did not. But back to running as I can and still dealing with pain almost 18 months out. Hope to see the light at the end of the tunnell this year.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA .2

dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 147
   Posted 1/16/2011 9:12 AM (GMT -6)   
Seems very early to be sexually and physically active, such as running 3 miles. I must admit visual turn on`s do not seem to work like they used to, and some attention is required to obtain response.
I had robotic surgery and did not suffer any pains, but I did find sitting uncomfortable for several weeks after.
Now 20 months post op and 99.99% dry, but still some Ed issues.
 
All the best from England.

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1096
   Posted 1/16/2011 9:20 AM (GMT -6)   
Great news, sf.  With 10 of 12 cores positive, up to 40%, and at age 48, you probably did the right thing by going forward with the surgery.  You wouldn't want to wait until your cancer has spread.  Best wishes, medved

NEIrish
Regular Member


Date Joined Aug 2010
Total Posts : 245
   Posted 1/16/2011 10:53 AM (GMT -6)   
I liked your report. Thank you for the good news! And for what it's worth, I agree with medved. With all those cores positive, and the percentage amount in them at your age, the doc was correct. No crystal balls, as many have said here, come with the diagnosis.
Husband 60yrs., no symptms: PSA 10/04 2.73, 12/06 3.64, 5/09 3.9, 10/09 4.6, 1/10 5.0w/ free PSA 24
6 core biop 4/1/10 path rept: rt mid: adnocarc. G=3+3, 5% of core; R apx v. susp. minute ca, R base bnign w/ mod. atrophy, L side atrphy only; 2nd opnion JH confrmd
MRI - 15mm nodule
BiLatRP surg 7/6/10, path: T2c, nodes, sem.ves, extra caps. neg., adenoc both sides G=3+3 cntinent, Viagr-8/27 ED

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 1/16/2011 12:35 PM (GMT -6)   
I too had 10 of 12 positive and I actually catch myself thinking from time to time "what if"....Also like you I'm convinced that physical conditioning pre-operative was why I was able to bounce back as fast as I could. Best of luck with the running and keep us updated.
Hero
Age 51 PSA 6.8
Bxy 10 of 12 Cores positive for Gleason 6. up to 75%
Robotic surg 11-02-09
Post op path. 20% neoplasm;4+3=7 Gleason
All nodes (14) and other related tissue negative for cancer
No EPE
Post op PSA x 3, all <0.01
walkbobwithjack.blogspot.com
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 9:41 PM (GMT -6)
There are a total of 2,974,652 posts in 326,194 threads.
View Active Threads


Who's Online
This forum has 161293 registered members. Please welcome our newest member, UnknownBlueLight.
392 Guest(s), 4 Registered Member(s) are currently online.  Details
lorasplora, acarined, Lwnsmld13, Lanie G