I just wanted to post some encouraging thoughts for my friends here especially those contemplating RP
There are good outcomes and you do get back to life as you knew it
I had my surgery (
open RP) 12-8-2010, I'm now 5+ weeks
pain meds - in the hospital when they ask you how much pain you are in on a scale of 0-10 - just skip the in depth analysis and say "10"
my main regret was letting the pain get too intense before asking for meds
no post cath incontinence in everyday activities - i.e. no pads - maybe a drop or 2 leakage from time to time (standing from sitting)
went back to my desk job Dec 20
pain - the pain is mostly gone - sitting is not a problem. it took about
4 weeks to be completely comfortable
standing - no pain in the last week - at times over the past 5 weeks I felt like I couldn't stand for more than 2 minutes - walking was fine, just standing still was sometimes bad - a lot of perineal pain/pressue - but it seems to be gone for the moment
ED - little sfigato has been growing lately, orgasm acheved multiple times - seems to be getting to the "stuffable" stage (pardon the expression)
no drugs/devices used - just a patient partner. one note - it seems that physical stimulation is much more effective than visual/mental. it used to be that little sfigato would raise the flag on seeing or hearing. now 98% physical although there are inklings of activity with visual/aural stim
Doctors - choose your doctors ever so carefully - you only get one shot and experience with the techniques is critical - the more the better - you deserve the best.
luck - you can't control it , but it's good to have if you can find some
fitness and blood flow - be active - I'm positive that my physical state pre-surgery helped me. get the blood flowing and activity going - I think makes you heal quicker
Activities - I am getting back to my running - ran 3 miles yesterday - this does cause leakage - I think I leak until there's nothing left in my bladder.
I've been out running 3-4 times since Dec 31 - the leakage seems to be improving - but hard to tell. Get out and so what you like to the extent you can - make yourself feel normal. post surgery - get out and walk with the cath if you can - go to a coffee shop - resist the urge to stay at home.
Rest - you will be tired and low stamina after surgery - take naps, go to bed when you are tired - rest is therapy
Partner - my wife has been an absolute angel - can't say that enough
first Post-Op PSA test - end of Jan, wish me luck - not looking forward to any further treatment if needed.
Regrets - I still wonder if I should have waited - the doc thinks the surgery was absolutely indicated. I will post the post-op path report when I get it from the doc (I got it verbally - but the printed details) - I guess I'm still in denial
Age at diagnosis
5.1, 5.7Cores Positive:
10 of 12 up to 40%Treatment: open Surgery Dec 2010
Post Edited (sfigato) : 1/16/2011 7:03:53 AM (GMT-7)