Moving my AUS pump

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knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 1/18/2011 10:52 AM (GMT -6)   
It has been a week since my AUS implant and I may be getting ahead of things a bit but the pump is not what I think is the proper postion. So, should I start trying to postion it now or wait. I don't see my doctor untill three weeks from now for activation. Some have reported that their pumps were left high in the scrotum and need to be pulled down in stages. This is not the case for me but it could be 1/4-1/2" lower, maybe, but my concern right now is the bulb part of the pump is not at the front. I don't want it to become stuck or can these these be moved around some later on in the months to come?
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/18/2011 11:04 AM (GMT -6)   
RON- call your doctor and ask him what to do - today - please

I don't think it is a play-around situation - you and your plumbing is important - to get it right the first time -and to avoid any OOOPS!

sincere hugs
BRONSON

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 1/18/2011 11:13 AM (GMT -6)   
Don't have one of those, but the thought of shifting things around internally makes my first-responder alarm bells go off.
 
Call the doctor FIRST. If you have concerns, call him NOW.

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 1/18/2011 11:53 AM (GMT -6)   
I was told ( by the doc) I could move it around but not sure about when others had the best results when they adjusted their pump. I am pretty sure that is something that will be left up to me to perform.
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/18/2011 12:07 PM (GMT -6)   
Do you know if yours has two band/clamps or one? Just curious if others are getting the two bands/clamp method, supposedly has the best control no leak, no drip advantages. Hope it goes well for you.

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 1/18/2011 1:31 PM (GMT -6)   
Just one,Dr said that he perfered to start that way. I am guessing there must be some downside tradeoff or they all would use two? I trust his judgement but, we will see. Thanks,
ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 1/18/2011 1:32 PM (GMT -6)   
Just one,Dr said that he perfered to start that way. I am guessing there must be some downside tradeoff or they all would use two? I trust his judgement but, we will see. Thanks,
ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 1/18/2011 2:11 PM (GMT -6)   
knotreel,

My doctor told me to pull down on the pump each day. He said that by pulling on it, there would be less of a tendency of the pump to "settle" high in the scrotum. Mine seemed to be "turned" in the right position; however, I am left-handed so it may have been just that.

Wigs
Diagnosed @ age 46 - September 1997
PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007
PSA 2.7 - July 2008
PSA 3.0 - November 2008
Diagnosed @ age 57 - December 2007
Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Suprapubic cathether installed - July 2008 @ Cleveland Clinic, OH
Urethral-Rectal Fistula Repair - August 2008 @   Cleveland Clinic, OH
PSA < .03 - Aug 2008
Penile catheter removed October 2008
Suprapubic catheter removed December 2008
Colostomy Reversal - January 2009 @ Cleveland Clinic
Urethral stricture removed - January 2009 @ Cleveland Clinic
(Total incontinence - 4 diapers & 6 - 8 pads per 24 hour period)
PSA < .03 - Jan 2009
AUS implant - May 2009 @ Cleveland Clinic
PSA < .03 - May 2009
AUS activated - July 2009
(Wearing a light pad daily.)
PSA < .03 - July 2009
Penile Implant - December 2009 @ Cleveland Clinic
PSA < .03 - December 2009
Penile Implant activated - February 2010
PSA < .01 - April 2010 
 

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 1/18/2011 2:55 PM (GMT -6)   
Wigs, thanks. IPP looks good as far as I can tell , I am thinking the AUS needs just a little adjusting . I just didn't want to wait too long if there might be a window when it is best done.
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Neoman
Regular Member


Date Joined Nov 2010
Total Posts : 192
   Posted 1/19/2011 2:42 PM (GMT -6)   

I thought my  pump was too high also. I just waited because I was so swollen and sore. I could feel the tubes and everything. It also was poking out the skin a bit. Thought it might erode through...

Then I went in at the six week mark and he grabbed the pump squeezed it for a second and told me to go drink a bunch of water and come back in one hour.

I thought he would mention something about the placement of the pump...

Any way as time went on I move the pump around quite a bit. The directions say to grab those tubes as a method of holding the little guy still. Some times I have to turn it around a little.

Do not think much about it any more. In fact I like it where it is now. So I think you may be too early to rush to judgment. Let the swelling go down and see what happens. If I remember you have two toys in the bag, right? yeah

Lucky man!!

Chris
Bladder Cancer fall 2008, age 53
MVAC Chemo fall 2008 to Jan 2009.
RC of Bladder Feb 2009
Stage 2 high grade bladder cancer
also detected after bladder surgery high grade Prostate cancer
Had AMS 800 implanted July 2009 but surgeon nicked uretha and the cuff had to come out. Then developed infection soon after and they took it all out. Reimplanted Oct. 12 2010 after fistula/infections healed

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 419
   Posted 1/19/2011 6:54 PM (GMT -6)   
Ron,
My doc also told me to pull down a little each day to avoid the bulb settling in too high. Also I felt mine always seemed to be behind the testicles so I would have to move it to the side. It still does that a bit now but moving it a bit is easy. I have always had a bit of a "kink" in one of the tubes leading down to the bulb. The doc did not seen to be concerned about it. I too would stress to ask your doc what to do. That said my experience would lead me to believe that gently moving it to the correct position should be fine. The little bugger always feels a little slippery if I to activate with my "one hand" method. Seems to me that it is supposed to have some to move quite a bit. But then, our bodies are all a little different......down there.
Carl
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts:
http://www.healingwell.com/community/default.aspx?f=35&m=1847812
http://www.healingwell.com/community/default.aspx?f=35&m=1710681
http://www.healingwell.com/community/default.aspx?f=35&m=1948599

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 1/20/2011 8:54 AM (GMT -6)   
Thanks, well, I guess I will just leave it alone. I was mainly concerned about when to do it and later on suits me fine as things should get a little more comfortable making moving it around easier.
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.
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