I had Davinci surgery in December, went back to the Dr. one week later for bladder check and removal of the catheter. This was done by the physician's assistant. My surgeon came in with the post surgical pathology report and said somthing about margins(?) that I understood to mean I still had cancer. He was in and out within 2 minutes, really before I could comprehend what he had just told me. His comment to me - EXACT WORDS - "Don't worry about it, if we have to, we'll just zap you with a little radiation and you'll be fine". The idea of radiation scares the crap out of me and the fact that the surgery was for nothing has me mad as hell. I return for a six week follow-up visit next week and really need to figure out what's happening and what my options are, but I don't know what questions to ask. I'm not dealing with this well, up until surgery I was a very healthy, active 58 year old, now I'm trying to deal with all the potential side effects of the next level of treatment (salvage??) as well as a limp, drippy male member.
Maybe someone could help me understand some of the information on my pathology report, it says:
Margin IS involved by invasive carcinoma (focally)
Perineural Invasion present
Lymph nodes not submitted
Prostate, Radical Prostatectomy:
- Adenocarcinoma, Gleason score 3+4, occupying approximately 10% of glandular volume + focally involving peripheral surgical margin
I need to know what to ask in order to help figure out what to do next. My thought at this time is not to continue on with this hospital for additional treatment. I have family in Sarasota, FL and I understand that the Dattoli Clinic there has a very good reputation for treatment after failed surgerys.
I hope someone here can help me understand what happens next and where I go from here on this very scary trip. I don't even know enough to know what to ask.