Good to see you here... I posted this on Friday and had a couple responses. Click below and you'll see some comments:www.healingwell.com/community/default.aspx?f=35&m=2007871
Welcome to HealingWell. I think James C's post was in reference to a couple guys here from Colorado that are using the VA system. I know of a few others here as well. If you'll remember in our meeting last Thursday we had a couple guys there that were also a bit frustrated with the Las Vegas VA. One other new member had brachytherapy there 5 years ago and was in the midst of a relapse when the urological "genius" there was suggesting he have a radical prostatectomy. Absolutely a terrible recommendation from what I have learned in 4 years. He does have Medicare so he switched to my oncologist which was the right move. I know how frustrating it is when you have limited resources for insurance and you are getting the run around. Some of the guys here suggested going to the VA in the Los Angeles area as they do use some quality doctors from UCLA and such.
Also I have found a couple guys who decided to go their own way and pay for treatment out of pocket. One such gentleman on the PPML mailing list paid 18k for his surgery and he was able to do it in installments. This might be a great question for Dr. Tim Wilson from the City of Hope when he comes next month.
Again, welcome to HealingWell. I hope the good folks here will be a good service to you. They certainly have been that for me.
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas
Blog : www.caringbridge.org/visit/tonycrispino