AUS AMS 800 installed 1/21/11 at Cleveland Clinic

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tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 1/22/2011 11:08 AM (GMT -6)   
Well yesterday Dr Drago Montague and Dr Chris Bede installed tha AUS AMS 800 at Cleveland Clinic's Beachwood Outpatient Clinic ( though I stayed util 630 am this morniing).
So far so good, just got home after a 3.5hr drive.
Wednesday did the preop testing and was worried I could't have surgery due to scar tissue.  Dr Montague looked at monitor which I could see also and thought no problem but used a 14 foley and all looked good .  I asked Dr M about the double cuff because of the level of incontinence.   He stated that the one cuff may do the job and two cuffs, though installed by others, raised the level of risk and other problems.  Since he was the doctor I went with his suggestion.  The nurses at the outpatient says he is operating as much as 3 times a week with install of the AUS and IPP, so hearing that I had no question on single versus double.
 
Friday, I walked into the surgery room, they got me going and 1hr later I became bionic.  Recovery no problem but overnight stay wasn't the best.  There were only 3 guys in 3 rooms and one guy, I believe, had the IPP while I and the other guy had the sphincter.   The IPP guy went from puking to ring the call button it seemed like every 1/2hr to 1hr.   I am sorre with black and blue scrotum.   I asked they put the pump on the right side since I am left handed.   Staff at out patient were great as was Dr Montague.   I have to do the tug 3x for next 6 wks and schedule activation.  ON Vicodone since Percoset/Oxycotin doesn't work.  So far not a lot of pain.
We got a very good deal on hotel for outpatient - Clarion in Beachwood was $69/night and we stayed 3 nights because of weather concerns and long drive.  The next hotel the Hampton was $104/night. 
 
Thanks to tall guy and rest for your info and support.  Good luck to those looking to have the AUS installed.  I am looking forward to activation   smhair

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/22/2011 11:16 AM (GMT -6)   
Good luck, glad you got that behind you, and now on the recovery side. Hope you heal fast and the device works as advertised.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 1/22/2011 11:50 AM (GMT -6)   
Glad to hear you had an uneventful implant surgery. I had dual implants AUS/IPP on the 11th and as far as I can see the AUS might have been the worst of it but it is hard to tell which pain is which. Now, in the 11th. day, I am feeling good and you should look forward to feeling well after a week or so, although you seem to be feeling pretty good now.
Have a good recovery and get dry!
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 1/22/2011 3:24 PM (GMT -6)   
Great to hear you are on your way to "dry". I had my Aus done back in August and life is good.
Give progress reports and let any of us AUS vets know if we can help.
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts:
http://www.healingwell.com/community/default.aspx?f=35&m=1847812
http://www.healingwell.com/community/default.aspx?f=35&m=1710681
http://www.healingwell.com/community/default.aspx?f=35&m=1948599

Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 1/24/2011 8:03 AM (GMT -6)   
tvwohio,

Congratulations!!! The next six weeks will go slowly as you can't wait to get the AUS activated. But it will be worth the wait.

Wigs
Diagnosed @ age 46 - September 1997
PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007
PSA 2.7 - July 2008
PSA 3.0 - November 2008
Diagnosed @ age 57 - December 2007
Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Suprapubic cathether installed - July 2008 @ Cleveland Clinic, OH
Urethral-Rectal Fistula Repair - August 2008 @   Cleveland Clinic, OH
PSA < .03 - Aug 2008
Penile catheter removed October 2008
Suprapubic catheter removed December 2008
Colostomy Reversal - January 2009 @ Cleveland Clinic
Urethral stricture removed - January 2009 @ Cleveland Clinic
(Total incontinence - 4 diapers & 6 - 8 pads per 24 hour period)
PSA < .03 - Jan 2009
AUS implant - May 2009 @ Cleveland Clinic
PSA < .03 - May 2009
AUS activated - July 2009
(Wearing a light pad daily.)
PSA < .03 - July 2009
Penile Implant - December 2009 @ Cleveland Clinic
PSA < .03 - December 2009
Penile Implant activated - February 2010
PSA < .01 - April 2010 
 

tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 1/26/2011 6:49 AM (GMT -6)   
Just an update on post-op of Sphincter Implant.
Day 6 and feeling well but still using Vicodan to cut pain as needed.
The pain isn't much but enough that I feel stitches in scrotum and muscle cut in lower abdomen.  They are tender!
In some ways feel better than I am.
 Could push it and go to work but know better after sitting on chair or getting out of bed in morning.
 I am tired even though just woke up.
 
The swelling in scrotum is going down and can feel the pump.  Doing the tug 3 x per day.
I am allot drier than I have been in 6 months but know swelling hasn't gone down yet.
Because of swelling need to push urinating.
 
So far so good.  Thanks for good reading guys on the AUS.
 

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 1/26/2011 8:08 AM (GMT -6)   
Your progress sounds right on track. You should be able to switch to Advil soon. The strong pain killers slowed down my bowels to the point of constipation and I got off them asap.
When I felt like it I started back to my office job half days...liked that afternoon nap.
The relative dryness could also be related to your degree of inactivity and being in a prone position a lot...as well as swelling. But then you know all this. Great to hear your progress....only five weeks until you get to push the pump.

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 1/26/2011 9:28 PM (GMT -6)   
TV, I had the same thing, relative dryness, it went away about day 9 or 10 but on days 13-15 I have had a resurgence of "relative" dryness. If this thing works, boy that will be nice. I will have mine activated at four weeks which is two weeks from now. My swelling is almost gone now on day 15 and I can feel the bump where the new sphincter is especially if I sit on something hard. Even at day 15 I can still have some pain and had one today. Lets get dry!
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 1/26/2011 9:45 PM (GMT -6)   
Y'all hang in there.  It'll all be good.
Gene214

Neoman
Regular Member


Date Joined Nov 2010
Total Posts : 192
   Posted 2/2/2011 10:56 AM (GMT -6)   
Congrats on your bionic perfection.. I have had my AUS in working order since Thanksgiving.. I tell you we just should have been born with it.. I like it that much.
 
Though, I remember being young and then again.... well moving on, we all lose a little function over time!! wink
 
I would not bother about trying to mess with the pump much until the doc activates it. You will become very aquainted with it in a very short time yeah . It is very easy to work, and you will find what works for you. I have a Neo bladder (Bladder Cancer) and do not have a muscle to force the urine out so I found out what works for me. A little different than the other guys here. But the end result is Iam very happy and very dry!!
 
Neo
Bladder Cancer fall 2008, age 53
MVAC Chemo fall 2008 to Jan 2009.
RC of Bladder Feb 2009
Stage 2 high grade bladder cancer
also detected after bladder surgery high grade Prostate cancer
Had AMS 800 implanted July 2009 but surgeon nicked uretha and the cuff had to come out. Then developed infection soon after and they took it all out. Reimplanted Oct. 12 2010 after fistula/infections healed
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