Before I went on my recent vacation I set in action a project to make some significant changes in the Yana site. These were aimed at allowing me to process information more rapidly as the numbers of contributors to the Experiences sections grow and also to enable people to access the data I have more conveniently and quickly. Thanks to a very helpful contractor and some sterling work by George Hardy, who I cannot thank enough, the data is now all loaded and can be accessed here TREATMENT EXPERIENCES
Apart from the categories I included previously, I have finally got the
location (Country or State of residence) sorted out so it is easier for men to find and communicate with other men in their own country or state and I have also included an Update sort, so that it will be simple to see whose story has been updated lately.
As at the close of business today there are 1,022 stories. The man who have submitted them range in age from 34 to 78 when they were diagnosed. The median age for diagnosis is 57 – about
10 years younger than the median age for diagnosis in the US. The men had PSA levels in a range from 0.10 to 7,000 (Yes, seven thousand) with a median of 5.3 ng/ml. The most common Gleason Score is 6 (51%) although there were many GS 7 scores – 32%. At each end of the Gleason range are 19 men with a GS of 4 or 5 (they would not be diagnosed as having prostate cancer in the US today) and 11 with a Gleason of 10.
The majority of the men chose Surgery (321 chose RALP (Robotic Assisted Laparoscopic Surgery) although there were some who chose Manual Laparoscopic procedures and 222 chose normal RP (Radical Prostatectomy). Radiation was the next most common choice with 175 men (104 chose EBRT (External Beam Radiation Treatment) and 69 chose Brachytherapy).
AS (Active Surveillance) accounts for 98 of the entries; ADT (Androgen Deprivation Therapy) for 92; PBT (Proton Beam Therapy) for 68; HIFU (High Intensity Focused Ultrasound) for 18 and Cryotherapy for 13. There were 17 men who were Undecided but who may have made their decision and not told me.
I hope the changes will help you access the site. I have tested what I can, but if there are any problems, please mail me Off List at firstname.lastname@example.org
Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 7: No treatment. Jun '07 PSA 42.0 - Bony Metastasis: Aug '07: Intermittent ADT: PSA 2.3 Aug '10
It is a tragedy of the world that no one knows what he doesn’t know, and the less a man knows, the more sure he is that he knows everything. Joyce Carey