First Timers and recommendations

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tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 1/26/2011 6:39 AM (GMT -6)   
I am a first timer for the forum but had PC - 10 yrs ago.
I have gone through assorted procedures for both strictures and bulking trying to stop the flow.
Unfortunately, I didn't know about the forum until I was going for my artificial sphincter ( 6 days post op).
In one way I agree about recommendations from newbie's since PC is a very emotional issue.
 
Personnally I was wrong about my present urologist ( he was partner and not my primary) that I have now versus when I was desparate to get dry.  He questioned the bulking and why try it.  His experience was not favorable but he didn't explain it only came off harsh and egotistical.   Had to apologize for that and found out he is a good guy.
 
Newbie's or that case any of us, have to understand that PC is an emotional issue.  This forum to me is for us to chat and not necessarily take everything as gospel but rather a starting point for ME to understand options, experiences and points to explore.  
 
You guys helped me to ask questions, understand some of your experiences and be better prepared for Sphincter.
 
The one guys question about Staph infection hit home.-  being one who got Staph with my RP.  I know what a simple question such as Staph infection statostocs may have changed some of my after RP care.
 
Thanks
 

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/26/2011 9:14 AM (GMT -6)   
tvwohio, thanks for the post. Sounds like you have travelled a long road to get here. I'm glad you have joined us and shared your story.... After 21 posts, you can settle into a regular chair, you're no longer a first timer.... tongue
James C. Age 63
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 01/11-.09
ED-total-Bimix 30cc

Pocketman
Regular Member


Date Joined Aug 2010
Total Posts : 121
   Posted 1/26/2011 10:22 PM (GMT -6)   
tvwohio said...
... PC is a very emotional issue. ...

Amen brother!
Age 61, Diagnosed July 2010
PSA 04/09 - 2.5; 05/10 - 3.7; 07/10 - 4.7
DRE and Ultrasound - Negative
Size at biopsy - 32 grams
T1C, 3+3=6, 1 core of 12 60% positive
da Vinci nerve sparing RP 10/29/10
Post op biopsy indicated bilateral Gleason 6 tumors
Continent 90% and hopeful
Minor ED - 85% naturally, 95% with Cialis
6 week PSA - "undetectable"

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 1/26/2011 10:39 PM (GMT -6)   
Glad to have you among us.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 814
   Posted 1/27/2011 9:16 PM (GMT -6)   
tvwohio,

I live in Delaware, not too far from you I assume. 10 years out, wow. What were your stats.

What is your PSA now?
Dx @ 42years old on 4/2008
Gleason 6 (tertiary score 0)
open RP 10/08 Johns Hopkins
pT2 Organ confined Gleason 6
PSA
10/15/2009 <.1
10/15/2010 <0.03
10/15/2011 -
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