Gleason Score 6

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Joko
Regular Member


Date Joined Dec 2010
Total Posts : 119
   Posted 1/27/2011 7:31 AM (GMT -6)   
Well, I got the call from DR. yesterday with the results of my mapping biopsy.  I had one sample with a Gleason score of 6.  Samples around the area did not have any signs of precancerous condition.  We had a good discussion of what to do next.  Basically, Dr and I are taking a wait and see attitude and continue to track.  Dr said that treating now maybe over board and I agree.  At least now I know why my PSA has risen in the last 3 years to 6.75.  Dr also mentioned for the size of my prostrate a predicatble value would be greater than 8. 
 
With the help of this forum I at least new what he was talking about and could ask questions during the conversation.  I really feel good about what I know now and can deal with whatever comes in the future.

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4089
   Posted 1/27/2011 7:47 AM (GMT -6)   
Joko, rhat is about as good a result as you could hope for and it sounds like you are taking a reasonable approach.  We have had a number of discussions about Active Surveillance on this forum...you may want to read back through some of those old threads to get some pretty good perspective.
 
Good luck,
 
Tudpock (Jim)
Age 62 (64 now), G 3 + 4 = 7, T1C, PSA 4.2, 2/16 cancerous, 27cc. Brachytherapy 12/9/08. 73 Iodine-125 seeds. Procedure went great, catheter out before I went home, only minor discomfort. Everything continues to function normally as of 12/8/10. PSA: 6 mo 1.4, 1 yr. 1.0, 2 yr. .8. My docs are "delighted"! My journey:
http://www.healingwell.com/community/default.aspx?f=35&m=1305643&g=1305643#m1305643

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 1/27/2011 8:21 AM (GMT -6)   
Joko,
Your numbers are very good indeed. AS is a good option as this point.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18 months) undetectable
Latest PSA test (21 months) .005

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/27/2011 9:59 AM (GMT -6)   
Did you get a copy of the actual pathology report, if not own it, posses it and read it throughly as more info is there concerning ones whole pathology. My brother is like past year 6 now of doing nothing or A.S./W.W. and has an indolent version of PCa found, as defined by John Hopkins-Brady Urology Dept. (gleason 6, less than 5% in one core in his case). No rise in psa and it was only 1.0 anyway, DRE lead to his biopsies. He is no hurry via his own choices of which he knows enough on PCa in general.
Dx-2002 total urinary blockage, bPsa 46.6 12/12 biopsies all loaded 75-95% vol.; Gleasons scores 7,8,9's (2-sets), gland size 35, ct and bone scans look clear- ADT3 5 months prior to radiations neutron/photon 2-machines, cont'd. ADT3, quit after 2 yrs. switched to DES 1-mg, off 1+ yr., controlled well, resumed, used intermittently, resumed useage

NY-Sooner
Regular Member


Date Joined Sep 2009
Total Posts : 462
   Posted 1/27/2011 10:12 AM (GMT -6)   

You seem like a perfect candidate for AS, just like I was when I had my biospy done in 2007. IN my case, they found only 2 of 12 cores with <5% cancer with a psa of 4.5.  My psa was slow moving like yours and took five years to go from 3.00 to 4.5. 

The one thing you have to remember is,  a biopsy is not 100% accurate because of the sampling.  I did a lot of research and thinking, and my emotions kept telling me to hold off on surgery and just go with AS until my psa goes higher.  But deep down inside, my gut reaction was to go with the surgery and get it out now.

Well after the surgery, my patholgy came back with a lot more cancer than was found on the biopsy, 20% , but still a gleason 6.  The big thing that really shocked me was my surgeon said that there was some cancer found within a few 3 or 4 mm of the outside margin and that if I had opted for AS and postponed surgery a few years there was a good chance that I would left with a positive margin in the future, so I was lucky that I had the surgery when I did.  But then again, there is a chance that nothing could have happened, so I guess you never know and it is just a crap shot.


 
Age 56, Biopsy 6/2007 - PSA 4.5, 2 of 12 with  <5% cancer Gleason 6
Surgery 9/2007 Strong Memorial,  Rochester  NY with Dr. Jean Joseph (1300 plus surgeries)
 Path - Negative margins, cancer in 20% examined tissue, Gleason 6
 Post Op - No ED issues, full erections without drugs,  used 5-7 pads a day for 3 months. Now dry except for stress leaks now and then.
 All post op psa's <.04

Joko
Regular Member


Date Joined Dec 2010
Total Posts : 119
   Posted 1/28/2011 8:39 AM (GMT -6)   
I will see Dr in Mid April and ask him for the pathology report. Every Dr I see at the clinic is very open to giving you any information that you want. My Dr told me about a couple of good sites on prostate and eating right to help prostrate. I am still digesting all info. LOL.

Thanks for your replies and encourage. You never know if you are making the right decision. BUT 1 out of 40 just seems like a AS condition.

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3637
   Posted 1/28/2011 9:34 AM (GMT -6)   
The problem with cancer, it doesn't get better...It only gets worse..

AS means lets wait and see how fast it gets worse...But that plan works and works successfully for many men...
Age 68.
PSA at age 55: 3.5, DRE normal. Advice, "Keep an eye on it".
age 58: 4.5
" 61: 5.2
" 64: 7.5, DRE "Abnormal"
" 65: 8.5, " normal", biopsy, 12 core, negative...
" 66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
" 67 4.5 DRE "normal"
" 68 7.0 third biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT NOW

Putt
Regular Member


Date Joined Aug 2010
Total Posts : 154
   Posted 1/28/2011 9:44 AM (GMT -6)   
Joko
It sounds like your doctor is a rare breed who considers the welfare of the patient first. I'd hang onto him for a while.........
PSA at Dx 105 at age 68, 4/04. ADT (Lupron only), RRP, 5/04. Gleason 4+5=9, Staged pT3bc NO MO, 3D rad, 40 treatments, 8/04. PSA 1/05 <0.01. ADT till 7/07. PSA 0.03 12/08, 0.07 4/09, 0.13 8/09, 0.19 12/09, 0.30 4/10, 8/10 0.42, 12/10 47. Will start ADT3 after PSA reaches 1.2.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 1/28/2011 10:23 AM (GMT -6)   
Sounds like you might be a Poster Child here for doing AS. I am glad your numbers indicate that and that you have an understanding and cooperative doctor to help you administer this thinking and plan.

David in Sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 1/28/2011 11:11 AM (GMT -6)   
Joko said...
I will see Dr in Mid April and ask him for the pathology report. Every Dr I see at the clinic is very open to giving you any information that you want. My Dr told me about a couple of good sites on prostate and eating right to help prostrate. I am still digesting all info. LOL.

Thanks for your replies and encourage. You never know if you are making the right decision. BUT 1 out of 40 just seems like a AS condition.
 
 
Joko, sounds like a very solid, common-sense approach.
 
Here's a good link to a free online patient education document titled "Nutrition & Prostate Cancer" published by UCSF, which is an institutional leader in Active Surveillance for PC.  LINK
 
The UCSF document's author is an oncology dietitian specialist, and also wrote the chapter on Prostate Cancer in the dietitian's training textbook titled "Clinical Nutrition for Oncology Patients."  Download the free pdf document, and you will essentially get the same info that well-trained dietitians also get.
 
 
Another common-sense learning reference is the book "Anticancer, A New Way of Life."  (LINK to Amazon)  After my wife's cancer diagnosis, we have both read this and strive to implement these learnings.  It's a journey.
 
 
best wishes...
 
 
--------------------------------------------------
 
Added later as an edit:  Not wanting to de-rail this thread, but I couldn't disagree more with Fairwind's comment that "The problem with cancer, it doesn't get better...It only gets worse."   It often does get worse, but not always.  Prostate cancer, in specific, can hold steady in an indolent state for a long time, and sometimes a long, long time.

Post Edited (Casey59) : 1/28/2011 10:17:24 AM (GMT-7)


Joko
Regular Member


Date Joined Dec 2010
Total Posts : 119
   Posted 2/1/2011 7:56 AM (GMT -6)   
Thanks for all your responses and support.

Yes, I really like this Dr and will keep him for awhile. Soft spoken, but levels with you.

Also, thanks Casey59 for the recommendations on reading.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 26, 2018 10:41 PM (GMT -6)
There are a total of 2,956,131 posts in 324,293 threads.
View Active Threads


Who's Online
This forum has 162265 registered members. Please welcome our newest member, UglyLoser.
264 Guest(s), 5 Registered Member(s) are currently online.  Details
countingstarsx, Michael_T, 1000Daisies, DJBearGuy, fmdgsn