Visit to Urology ...... Non nerve sparing update

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EnglishBob
Regular Member


Date Joined Jan 2011
Total Posts : 126
   Posted 1/27/2011 12:15 PM (GMT -6)   
Hi everyone,

Had my first post op appointment today at Urology at 6 weeks post op, after looking through various posts in here we went armed with a list of questions. Most of these were based on advice about when to go back to work and about ED and erection issues.

I am a press tool engineer which can regularly involve me lifting 20 to 30 kilos (45 to 67 pounds) or all the way up to the maximum i can physically lift before i end up using the lifting equipment we have. My own doctor felt i would be ok to do this at 6 to 8 weeks which i disputed so i wanted feedback from the surgical team. The surgeon insisted i was to be off work for at least 12 weeks and to be reassessed at this point. The reason being that my Laproscopic surgery was converted to open surgery due to me having a major hemorrhage and me being on the operating table for nearly six hours in total and having more than my total body volume in blood replaced.

Obviously there are lots of posts in here in relation to ED, natural erections returning and penile therapy using various ED medication so we wanted to know if the surgeon had performed the Nerve Sparing Technique as promised. It turned out that due to the severity of my surgery and the risks involved in keeping me there any longer, they felt it was wiser to just finish the surgery as quick as they could to minimise any more risks and they did a Non Nerve Sparing operation instead.

Now i am still here to tell you this instead of the worse possible news and i am happy about that, BUT what dissapoints my wife and I, is that if we had not asked about this they would not have told us. But they have said it is OK for me to start using my Caverject again in lower doses as a penile therapy to aid blow flow back into the penile tissue.

So it was a mixture of news today but i feel that i am making good progress, but dissapointed not to have my nerves spared and this potentially being kept from me, i get longer off work which is good and we start our first small steps to our sex life returning wink

Take care, Bob.
Age 58
Prostate problems since early 40s
Ed since early 40s
April 2007 biopsy & all clear
July 2010 prostate swollen more, psa up to 5.6 August 6.7
September Biopsy again
October 7th diagnosed cancer, Gleason grade 6 at 10% mass
December 13th 2010 open radical proctatectomy
Pathology results came back Gleason grade 7 at 12% mass BUT clear margins
Catheter out Jan 5th 2011

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4823
   Posted 1/27/2011 1:36 PM (GMT -6)   

Sounds like you alive and well.

Probably 90% of your surgeons patients don't know anything about the nerve bundles and stuff.... Don't ask - don't tell shocked

It was probably a year after surgery that I asked about and was told he spared the nerves on one side. It didn't really change a thing. Mr pee wee is still a bashful guy that doesn't like standing at attention.

 


lennybob
Regular Member


Date Joined Dec 2010
Total Posts : 99
   Posted 1/27/2011 8:16 PM (GMT -6)   

Hi Bob,

Thanks for sharing your story; I am convinced that people sharing their personal journeys are what make us all stronger. I am glad you are here to share your story. I had nerve sparing surgery in July of 2009 and I am still dealing with ED. Things are better but Mr. Happy just doesn’t want to stand on his own merits. But, like you, I am blessed to be here to be able to talk about this. Trimix has turned out to be a wonderful thing for my wife and I. I am not sure I will ever return to the glory days, but I am happy with the results so far. I did leak early in this process but things got much better with time. The main thing I focus on is that I just had my 18 month post op PSA and I am still a member of the zero club. At six weeks post op you are most likely still dealing with incontinence, which can take a while to get back to normal.

I hope those zeroes keep coming.

Lynn


Age 53...51 when diagnosed.
February/09 PSA 11...GP discoverd during yearly physical...referred to Urologist
Biopsy found cancer, Gleason score of 6.
July 2009...Nerve-Sparing open radical prostatectomy.
Doing very well...only issue is ED and that is getting better.

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/27/2011 8:26 PM (GMT -6)   
I have a feeling that a lot of docs hold back quite a bit of information about how things went in the theatre ------- pehaps looking after their reputation, perhaps not wanting to dash a patients hopes of full recovery.Then again there is no shortage of guys who had nerve sparing and still continue with ED ------ I guess it's just the luck of the draw.
Bill
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