zen: i love being stereotyped and pigeon-holed on my views. it wasnt me that decided that HW was primarily a patient to patient support site, kind of has to do with the owner of the site's intention. i am not "throwing cold water" on anything. or does that simply mean that if one has a different opinion, perhaps negative to the normal ebb and flow of thread, it's a "negative" thing?
i think it does a terrible diservice to all here, newcomers especcially, when certain people (not you) come across as self-made experts in complicated medical matters. there is also a fair amount of "doctor bashing", which does not help a new comer, who already has enough fears going to choke a goat. when i want real medical advice, i go to my doctors, and unless common sense tells me different, i am compliant to my doctors, their advice, and their orders.
and zen, sadily, in my opinion, there are men here that are OCD about stats and reports, and they make decisions based on biased reports, instead of listening to their own doctors. There are guys here, that I am sure that their doctors cringe everytime they see them, because they are the "know it all" kind of patients, or worse yet, the "wilkipedia patient", that comes armed with questionable reports and stats.
there is a good place for numbers and reports, i have made my entire working life off of numbers. A PC journey is not about having a check list and picking the best dr. money can buy, going to the best facility, running numbers through a nonogram and looking sweet. We have plenty of brothers here that made all their choices like they were ordering a luxury car, going off the options list, and despite all their learning, still end up with miserable results. Were there choices wrong? Probably not, but goes back to each human body reacts in its own unique way. It's that simple.
My original point, was not to put too much faith into loaded reports and stats, that a person like us, can't really prove or disprove. I would make no medical decision off of anything that the reliability couldn't be proven in some real way.
David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10