Re-Evaluation Meeting with the VA Doctors Yesterday

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 2/1/2011 12:18 PM (GMT -6)   
Yesterday I had a re-evaluation exam with the VA . Different doctor than I had last year when I was granted 100% disability for Agent Orange (Vietnam) related PCa.

Now it is obvious that this guy has never seen me before and they don't have all/any of my medical records. In addition they have a computer login and then they ask questions to fill in the blanks as we go along. I tried to bring him up to speed on where I was in treatment path at this point and he kept saying we'll get to that, as he continued to fill in the online forms and answers.

So here we are at the point in the conversation where he asks me my latest PSA test and he responds just like the nurse did by telling me that 3.9 was within normal ranges. So I was obliged to give him the same response that I gave her. You may remember it from my previous posts, "It would be normal if I still had a ****ing Prostate".

Well that kinda stopped him in his computer answers and he then decided to listen to me and let me bring him up to speed. My recap was, Surgery 2009, SRT 2009/10, MET radiation 2010, PSA Sept 2010- 2.2, PSA Jan 2011- 3.9.

Strange look came over his face and he said, "you seem to have an aggressive strain of PCa" To which I replied, "Jeez, You Think".

After that he started to act and talk more like a doctor and less like a clone filling in the required blanks. The meeting ended on a fairly good note and he wished me the best of luck. He added that after he filled his report I probably won't be called in for any more annual evaluations.

Funny thing about the government, last Friday I received a letter from the VA recapping my benefits and status and the letter said I had be upgraded to Permanent and Total Disability. Which would mean no more evals anyway. I figure it is just a case of two departments not knowing what the other is doing.

So I am good for another year and thank the VA every time I fill up the tank on my RV or boat.

Every Day is Still A Bonus, and the VA is helping it stay that way.

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 2/1/2011 12:32 PM (GMT -6)   
Sonny - I am preaching to the converted when I say - "you have to take ownership of your body and your health" ... so many men and women step back and let gov't /power sources trod all over them ...

-HOORAH FOR YOU -

- mind you, with a last name of Smith - I get lost in someone's computer files at least once a year !
:-)
- are you allowed to keep copies of files imputed ( like your story today?) to remind them if you get lost in the shuffle, that they already did the work?

-it wasn't until I got on this support group that I learned that Viet Nam Vets who were exposed to Agent Orange have a 50% greater chance of developing a re-occurance of agressive PCa after initial treatment.
- I wonder what ever happened to those guys ( shown on TV) drinking the stuff to show how safe it was for the troops....

-Sonny, having you and Lynn here at HW is Bonus for all concerned. Wishing you all the best.

hugs from the frozen north ( we are getting the snow from south of the border today)
BRONSON
Age: 55 - gay with spouse of 14 years, Steve
location: Peterborough, Ontario, Canada
PSA: 10/06/09 - 3.86
Biopsy: 10/16/09- 6 of 12 cancerous samples, Gleason 7 (4+3)
Radical Prostatectomy: 11/18/09
Pathology: pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA: 04/08/10 -0.05 -Zero Club
PSA: 09/23/10 -0.05 -Zero Club
PSA: 03/12/11 - TBA

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 2/1/2011 1:43 PM (GMT -6)   
Ok Buddy I came to HW looking for the update. Sounds great! Keep that coach rolling!

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/1/2011 3:02 PM (GMT -6)   
Sonny pardon the pun, you gave that doc one of the best educations he ever saw from a layperson (LOL). I wish I could have been a witness or fly on the wall. He might be asking you what he should do if he gets PCa! Government forms are more important than the real details.....do you think?  Next........!

Glad you got another doc whom knows the score, pardon the pun.

Best as always to you.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 2/1/2011 5:50 PM (GMT -6)   
Sonny,
Did you go to the VA or a Private Contractor. I found OTC to be fairly professional, but you just never know what your going to get. Anyway, hope you and Lynn are doing well.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4
Started IMRT Jan. 2010 72gys
7month post SRT PSA .2

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/1/2011 8:00 PM (GMT -6)   
Great news, Sonny, glad that part is working well for you. My claim is still floating around Washington DC somewhere among hundreds of thousands of other unprocessed claims. Perhaps one day while I am still alive, it will work out.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4269
   Posted 2/1/2011 11:44 PM (GMT -6)   
Tatt,
Where did you hear of the 50% reoccurrance rate for Agent Orange exposure? Never heard of this before and it just doesn't sound right knowing how PC works.
I think it is another urban myth.
JT
65 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, no side affects and psa .1 at 1.5 years.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/2/2011 11:06 AM (GMT -6)   
This article sheds some light on the issue:

http://www.sciencedaily.com/releases/2008/08/080805092016.htm
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 2/2/2011 5:08 PM (GMT -6)   
Thanks for that little gem.

This paragraph certainly jumped off the page at me;

"Agent Orange-exposed men were diagnosed two-and-a-half years younger and were nearly four times more likely to present with metastatic disease. Other prostate cancer risk factors — race, body-mass index and smoking — were not statistically different between the two groups."

I would say that this study had sufficient numbers and follow-up protocol to bear paying attention to. Although I have to admit, in my case I really don't like to see it in print. Think I'll print it out and take to my doc the next visit.

Thanks for the insight,

Sonny confused
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 2/2/2011 5:14 PM (GMT -6)   
Oh! and how about this little gem from another article;

Veterans exposed to Agent Orange have a 48 percent increased risk of prostate cancer recurrence following surgery than their unexposed peers, and when the disease comes back, it seems more aggressive, researchers say.

www.sciencedaily.com/releases/2007/05/070520091858.htm

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Completed Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 2/2/2011 5:30 PM (GMT -6)   
Thought it would an eye opener to any us Viet-Nam vets
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 2/2/2011 6:07 PM (GMT -6)   

I'm a Vietnam-era vet who served stateside and was never exposed to Agent Orange, but I have used my share of weed and feed on the lawn, and most weed and feed contains 2, 4-D, which is one of the compounds in Agent Orange.  I suspect many of us here on the forum have used weed and feed with some degree of regularity.

A study of farmers in Alberta, Saskatchewan and Manitoba has linked use of 2,4-D to an increased incidence of prostate cancer. 

 


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 2/2/2011 9:34 PM (GMT -6)   
Thanks for the link guys, sobering to read the stats.
Michael

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 2/2/2011 11:38 PM (GMT -6)   
Sonny, nice to see your name posting.

Always good to hear from you. Loved your story. A classic!

No fun to deal with but a hoot to read.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  
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