Incontinence and RT

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mr bill
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Date Joined Sep 2010
Total Posts : 688
   Posted 2/1/2011 6:52 PM (GMT -6)   
Does anyone have an idea how frequently incontinence occurs after RT?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/1/2011 6:55 PM (GMT -6)   
I had none before SRT, and none since.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 688
   Posted 2/1/2011 7:16 PM (GMT -6)   
David,
With a conduit is it possible to be incontinent?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/1/2011 10:09 PM (GMT -6)   
Mr. Bill, as the owner of a stoma, to be completely honest, i would be considered 100% incontinent in the normal sense of the word, without my 2-piece wafer and bag attached to the stoma, i would leak urine constantly 24 hours a day. The "device" acts as an external collection device. I have no sensation of urinating. The conduit/stoma has no pain nerves in it, so there is no feeling whatsover. Since the uterers from the kidneys are perm. disconnected from the bladder, no urine can leak/drip from that area, or through my penis as far as that goes.

I am surprised that more men haven't discussed this surgery as a possible alternative to the AUS and other devices. Though it is a major operation, but one that is considered tried and true.

David in SC

PS Before this OP, I was still 100% on my own. This was done as the result of perm. radiation damage to my bladder and bladder neck from the SRT that I underwent.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 Not taking it
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/23/10

John T
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Date Joined Nov 2008
Total Posts : 4226
   Posted 2/1/2011 10:21 PM (GMT -6)   
Incontinance is not usually a factor in any radiation treatment.
JT
65 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, no side affects and psa .1 at 1.5 years.

Fairwind
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Date Joined Jul 2010
Total Posts : 3742
   Posted 2/1/2011 10:31 PM (GMT -6)   
Someone posted some statistics on this board recently that showed 3 years post treatment, the rate of incontinence was about the same for both surgery and radiation..Or maybe it was impotence...

I had treatment (SRT) number 32 today and my only side-effects so far are increased frequency and urgency but no leakage..

English Alf
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Date Joined Oct 2009
Total Posts : 2215
   Posted 2/2/2011 1:58 AM (GMT -6)   
If RT is your only treatment, then I am not sure how much incontinence it causes. My brother-in-law only had RT, and while he initially had some BM problems he never reported and incontinence issues.
I know that if you have some incontinence after surgery and then have RT that you may find the incontinence is made a little worse.

I too have increased urgency and frequency. Which in real terms means that to stay dry I need to go to the bathroom every 45 minutes or so. The uro thought that this was too frequent when I saw him a fortnight ago, but I can sometimes go for about 90 minutes. I need to get up once a night. Occasionally I dribble a teaspoonful for no obvious reason.
Before diagnosis/surgery I also had to go to the bathroom pretty frequently compared to other guys (every 90 minutes). After surgery and before RT I was going about once an hour.
The urgency is however the problem. Once I get the signal I have a few seconds to get to a bathroom. I thus tend to go whenever there is an opportunity rather than find myself stuck in traffic or in the street with nowhere to go. I also have to plan my whole day around the availability of a bathroom or equivalent. When I have to travel somewhere unfamiliar, then in goes a pad just to be on the safe side.

Alf

Post Edited (English Alf) : 2/2/2011 1:03:56 AM (GMT-7)


JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3746
   Posted 2/2/2011 9:02 AM (GMT -6)   
I just underwent HDR brachytherapy and 25 IMRT sessions. I was never incontinent.

After the two HDR procedures I had a little urinary burning for a day or so. For about a three week period toward the end of the IMRT I had some increased frequency that usually included one trip at about 3 am. I tried to control that by limiting fluid intake after dark.

I finished the IMRT on Dec 23 and for the last three weeks I have not gotten up during the the night at all. I also had a little more frequency of bms during the same period and that has also returned to my pre-treatment normal.

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6948
   Posted 2/2/2011 9:37 AM (GMT -6)   
I first had DaVinci surgery. At 5 months out, I was at just 1 pad per day, and often that would be dry at the end of the day.
 
Then I did IGRT as adjuvant. Well into the 39 treatments I started experiencing urgency and frequency increases. Toward the end my leakage picked up. By leakage I mean suddenly wet, not a large quantity, but no warning. That remains. Now at 6 months from the end of IGRT, I am at 1-4 pads a day. Some days all dry, a wasted pad. Others ...
DaVinci 10/2009
My IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 3056
   Posted 2/2/2011 12:27 PM (GMT -6)   
Mr. Bill,

I had surgery and 8 weeks later, radiation. My incontinence was terrible leading up to radiation. I waited 2 weeks for it to get better. It didn't, but I took a chance and went ahead with the radiation. Oddly enough, after starting radiation, it got significatly better. It wasn't until a few months after radiation that I didn't need to wear anything.

Everyone is different.

Jerry L.
Nov. 2009 Dx at Age 44
Dec. 2009 DaVinci Robotic Surgery
Jan. 2010 T3b, Gleason 9
Feb. 2010 Adjuvant Radiation

PSA History:
-----------------
Nov. 2009 4.30
Feb. 2010 <.05
May 2010 <.05
Aug. 2010 <.05
Nov. 2010 <.05

Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted 2/2/2011 12:48 PM (GMT -6)   
Mr. Bill,
 
My rad onc says that SRT is not likely to cause incontinence.  He tells me since I was LFPF at the start of SRT that I should stay that way.  I have one more week to go and have not experienced any problems other than a noticeably weaker stream. 
 
When do you plan to start treatment?
 
Carlos
Dx 2/2008, age 71, PSA 9.1, G8,T1c. daVinci surgery 5/2008, G8(5+3), pT2c. LFPF, good QOL. PSA <0.1 for 2 yrs. PSA rose to .2 at 30 months, started SRT 12/15/2010.

SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 2/2/2011 12:56 PM (GMT -6)   
I was 99.9% free of incontinence before starting radiation and remained the same.  (I get a little squirt every once in awhile when body is stressed). Frequency of urinatiion at night has increased though to every 2 hours.  Hopefully that will improve with time. Squid.

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 688
   Posted 2/2/2011 1:08 PM (GMT -6)   
Carlos,
Glad to hear you are just about done. I know you will be happy to see the last day, calls for a bit of a celebration. I should start in 7 to 10 days.  Unless they find something else with the pet scan I had Monday. 
 
I certainly liked the optimism I found talking to the folks at Woodland.  I am now regretting my decision to stay in the frozen north.
 
Mr. Bill
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